Literature DB >> 24707160

Modern Advances in Genetic Testing: Ethical Challenges and Training Implications for Current and Future Psychologists.

Leah S Richmond-Rakerd1.   

Abstract

The ethical implications for psychological practice of genetic testing are largely unexplored. Predictive testing can have a significant impact on health and well-being, and increasing numbers of individuals with knowledge of their risk for various disorders are likely to present for psychotherapy. In addition, more people will struggle with the decision of whether to obtain information regarding their genetic material. Psychologists will need to have the appropriate knowledge and clinical skills to effectively counsel this population. This article highlights the relevant ethical issues surrounding psychological treatment of individuals pursuing or considering undergoing genetic testing. These issues are extended to psychologists working in research, education, and policy domains. Recommendations for graduate training programs to facilitate current and future practitioner competence are also discussed.

Entities:  

Keywords:  ethics; genetic testing; psychology; training

Year:  2013        PMID: 24707160      PMCID: PMC3975604          DOI: 10.1080/10508422.2012.728477

Source DB:  PubMed          Journal:  Ethics Behav        ISSN: 1050-8422


  25 in total

Review 1.  Genetic testing and psychology. New roles, new responsibilities.

Authors:  Andrea Farkas Patenaude; Alan E Guttmacher; Francis S Collins
Journal:  Am Psychol       Date:  2002-04

Review 2.  Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective.

Authors:  Béatrice Godard; Jörg Schmidtke; Jean-Jacques Cassiman; Ségolène Aymé
Journal:  Eur J Hum Genet       Date:  2003-12       Impact factor: 4.246

3.  How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systems.

Authors:  Bradley Malin; Latanya Sweeney
Journal:  J Biomed Inform       Date:  2004-06       Impact factor: 6.317

4.  Racial and ethnic variations in knowledge and attitudes about genetic testing.

Authors:  Eleanor Singer; Toni Antonucci; John Van Hoewyk
Journal:  Genet Test       Date:  2004

5.  Lay Attitudes toward Genetic Testing for Susceptibility to Inherited Diseases.

Authors:  J S Shaw; K L Bassi
Journal:  J Health Psychol       Date:  2001-07

6.  A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report.

Authors:  Robert Resta; Barbara Bowles Biesecker; Robin L Bennett; Sandra Blum; Susan Estabrooks Hahn; Michelle N Strecker; Janet L Williams
Journal:  J Genet Couns       Date:  2006-04       Impact factor: 2.537

7.  Protecting confidentiality rights: the need for an ethical practice model.

Authors:  Mary Alice Fisher
Journal:  Am Psychol       Date:  2008-01

8.  ASHG statement. Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure.

Authors: 
Journal:  Am J Hum Genet       Date:  1998-02       Impact factor: 11.025

9.  Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-making.

Authors:  Gail Geller; Ellen S Tambor; Barbara A Bernhardt; Gertrude Fraser; Lawrence S Wissow
Journal:  J Adolesc Health       Date:  2003-04       Impact factor: 5.012

10.  Public experiences, knowledge and expectations about medical genetics and the use of genetic information.

Authors:  Lidewij Henneman; Danielle R M Timmermans; Gerrit van der Wal
Journal:  Community Genet       Date:  2004
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