Literature DB >> 24648289

Patient reported outcomes in pediatric oncology practice: suggestions for future usage by parents and pediatric oncologists.

S A Schepers1, V E Engelen, L Haverman, H N Caron, P M Hoogerbrugge, G J L Kaspers, R M Egeler, M A Grootenhuis.   

Abstract

Several studies in adults have shown patient reported outcomes (PROs) to be effective in enhancing patient-physician communication and discussion of Health Related Quality of Life outcomes. Although less studied, positive results have been demonstrated in children. A PRO-intervention needs to be feasible in clinical practice to be successful. In the current study, 74 parents of children who successfully completed their cancer treatment and 21 pediatric oncologists (POs) evaluated a PRO-intervention and gave recommendations for future use in their practice. Most parents and POs suggested PROs to be an important part of standard care, starting during treatment, with an assessment frequency of every 3 months.
© 2014 Wiley Periodicals, Inc.

Entities:  

Keywords:  monitoring; oncology; patient reported outcomes; pediatrics; quality of life

Mesh:

Year:  2014        PMID: 24648289     DOI: 10.1002/pbc.25034

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN: 1545-5009            Impact factor:   3.167


  9 in total

1.  Integration of Pediatric Palliative Care Into Cardiac Intensive Care: A Champion-Based Model.

Authors:  Katie M Moynihan; Jennifer M Snaman; Erica C Kaye; Wynne E Morrison; Aaron G DeWitt; Loren D Sacks; Jess L Thompson; Jennifer M Hwang; Valerie Bailey; Deborah A Lafond; Joanne Wolfe; Elizabeth D Blume
Journal:  Pediatrics       Date:  2019-08       Impact factor: 7.124

2.  Healthcare provider utility ratings of a psychosocial screening summary: from diagnosis to 6 months.

Authors:  Leandra Desjardins; Laurel Etkin-Spigelman; Kelly Hancock; Joanna Chung; Wendy Shama; Denise Mills; Sarah Alexander; Maru Barrera
Journal:  Support Care Cancer       Date:  2019-07-10       Impact factor: 3.603

3.  Using formative evaluation to plan for electronic psychosocial screening in pediatric oncology.

Authors:  Jordan Gilleland Marchak; Sean N Halpin; Cam Escoffery; Shadé Owolabi; Ann C Mertens; Karen Wasilewski-Masker
Journal:  Psychooncology       Date:  2020-10-20       Impact factor: 3.894

4.  Symptom Monitoring in Pediatric Oncology Using Patient-Reported Outcomes: Why, How, and Where Next.

Authors:  Allison Barz Leahy; Chris Feudtner; Ethan Basch
Journal:  Patient       Date:  2018-04       Impact factor: 3.883

5.  Healthcare Professionals' Preferences and Perceived Barriers for Routine Assessment of Patient-Reported Outcomes in Pediatric Oncology Practice: Moving Toward International Processes of Change.

Authors:  Sasja A Schepers; Lotte Haverman; Sima Zadeh; Martha A Grootenhuis; Lori Wiener
Journal:  Pediatr Blood Cancer       Date:  2016-08-11       Impact factor: 3.167

6.  Randomized comparative study of child and caregiver responses to three software functions added to the Japanese version of the electronic Pediatric Quality of Life Inventory (ePedsQL) questionnaire.

Authors:  Iori Sato; Mariko Sakka; Takafumi Soejima; Sachiko Kita; Kiyoko Kamibeppu
Journal:  J Patient Rep Outcomes       Date:  2020-06-23

7.  Patient reported outcomes - experiences with implementation in a University Health Care setting.

Authors:  Joshua Biber; Dominik Ose; Jenny Reese; Anna Gardiner; Julio Facelli; Joshua Spuhl; Darrel Brodke; Vivian S Lee; Rachel Hess; Howard Weeks
Journal:  J Patient Rep Outcomes       Date:  2018-08-17

Review 8.  Can We Compare the Health-Related Quality of Life of Childhood Cancer Survivors Following Photon and Proton Radiation Therapy? A Systematic Review.

Authors:  Mikaela Doig; Eva Bezak; Nayana Parange; Peter Gorayski; Victoria Bedford; Michala Short
Journal:  Cancers (Basel)       Date:  2022-08-15       Impact factor: 6.575

9.  Patients' and parents' perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal.

Authors:  Maud M van Muilekom; Lorynn Teela; Hedy A van Oers; Johannes B van Goudoever; Martha A Grootenhuis; Lotte Haverman
Journal:  Qual Life Res       Date:  2021-07-29       Impact factor: 4.147

  9 in total

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