Literature DB >> 33041608

"They know what they are getting into:" Researchers confront the benefits and challenges of online recruitment for HIV research.

Elise Bragard1, Celia B Fisher2, Brenda L Curtis3.   

Abstract

Online research has become a critical recruitment modality for understanding and reducing health disparities among hidden populations most at risk for HIV infection. There is a lack of consensus and guidelines for the responsible conduct of online recruitment for HIV risk populations. Using semi-structured phone interviews, this study drew on the experiences of principal investigators (PIs) engaged in online HIV research to illuminate scientific and ethical benefits and challenges of social media recruitment. Using Thematic Analysis five major themes emerged: sampling advantages and disadvantages; challenges of data integrity; control of privacy protections; researcher competence and responsibility; and resources.

Entities:  

Keywords:  HIV; ethics Internet research; online recruitment; privacy; social media

Year:  2019        PMID: 33041608      PMCID: PMC7539627          DOI: 10.1080/10508422.2019.1692663

Source DB:  PubMed          Journal:  Ethics Behav        ISSN: 1050-8422


  40 in total

1.  National Trends in Sexual Behavior, Substance Use and HIV Testing Among United States Men Who have Sex with Men Recruited Online, 2013 Through 2017.

Authors:  Travis H Sanchez; Maria Zlotorzynska; R Craig Sineath; Erin Kahle; Stephen Tregear; Patrick S Sullivan
Journal:  AIDS Behav       Date:  2018-08

Review 2.  A Review of HIV Prevention Studies that Use Social Networking Sites: Implications for Recruitment, Health Promotion Campaigns, and Efficacy Trials.

Authors:  Jamal Jones; Laura F Salazar
Journal:  AIDS Behav       Date:  2016-11

3.  Mixed-Method Evaluation of Social Media-Based Tools and Traditional Strategies to Recruit High-Risk and Hard-to-Reach Populations into an HIV Prevention Intervention Study.

Authors:  Sarah J Iribarren; Alhasan Ghazzawi; Alan Z Sheinfil; Timothy Frasca; William Brown; Javier Lopez-Rios; Christine T Rael; Iván C Balán; Raynier Crespo; Curtis Dolezal; Rebecca Giguere; Alex Carballo-Diéguez
Journal:  AIDS Behav       Date:  2018-01

Review 4.  The qualitative research interview.

Authors:  Barbara Dicicco-Bloom; Benjamin F Crabtree
Journal:  Med Educ       Date:  2006-04       Impact factor: 6.251

5.  Using Social Media as a Research Recruitment Tool: Ethical Issues and Recommendations.

Authors:  Luke Gelinas; Robin Pierce; Sabune Winkler; I Glenn Cohen; Holly Fernandez Lynch; Barbara E Bierer
Journal:  Am J Bioeth       Date:  2017-03       Impact factor: 11.229

6.  Self-Consent for HIV Prevention Research Involving Sexual and Gender Minority Youth: Reducing Barriers Through Evidence-Based Ethics.

Authors:  Celia B Fisher; Miriam R Arbeit; Melissa S Dumont; Kathryn Macapagal; Brian Mustanski
Journal:  J Empir Res Hum Res Ethics       Date:  2016-03-07       Impact factor: 1.742

7.  HIV sexual risk behavior by men who use the Internet to seek sex with men: results of the Men's INTernet Sex Study-II (MINTS-II).

Authors:  B R Simon Rosser; J Michael Oakes; Keith J Horvath; Joseph A Konstan; Gene P Danilenko; John L Peterson
Journal:  AIDS Behav       Date:  2009-02-10

Review 8.  Online survey tools: ethical and methodological concerns of human research ethics committees.

Authors:  Elizabeth A Buchanan; Erin E Hvizdak
Journal:  J Empir Res Hum Res Ethics       Date:  2009-06       Impact factor: 1.742

9.  Comparing internet-based and venue-based methods to sample MSM in the San Francisco Bay Area.

Authors:  H Fisher Raymond; Greg Rebchook; Alberto Curotto; Jason Vaudrey; Matthew Amsden; Deb Levine; Willi McFarland
Journal:  AIDS Behav       Date:  2009-01-22

10.  Use of the location-based social networking application GRINDR as a recruitment tool in rectal microbicide development research.

Authors:  Earl R Burrell; Heather A Pines; Edward Robbie; Leonardo Coleman; Ryan D Murphy; Kristen L Hess; Peter Anton; Pamina M Gorbach
Journal:  AIDS Behav       Date:  2012-10
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  1 in total

1.  Adapting psychiatric research in the age of COVID-19: role of online studies.

Authors:  Andrew M Novick; Joel Stoddard; Rachel L Johnson; Mary D Sammel; Lily Berkowitz; C Neill Epperson
Journal:  BJPsych Open       Date:  2021-09-24
  1 in total

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