Argerie Tsimicalis1, Patricia W Stone, Suzanne Bakken, Sunmoo Yoon, Stephen Sands, Rechelle Porter, Cornelia Ruland. 1. Author Affiliations: Ingram School of Nursing, Faculty of Medicine, McGill University, Montreal, Quebec, Canada (Dr Tsimicalis); School of Nursing (Drs Stone, Bakken and Yoon) and Department of Biomedical Informatics, Columbia University (Drs Bakken and Ruland), Department of Pediatrics, Columbia University Medical Center (Dr Sands), New York, and Morgan Stanley Children's Hospital of New York Presbyterian (Dr Sands and Ms Porter); and Faculty of Medicine, Department of Medicine, Centre for Shared Decision Making and Collaborative Care, Oslo University Hospital Rikshospitalet, University of Oslo, Norway (Dr Ruland).
Abstract
BACKGROUND: Developed in Norway, Sisom is an interactive, rigorously tested, computerized, communication tool designed to help children with cancer express their perceived symptoms/problems. Children travel virtually from island to island rating their symptoms/problems. While Sisom has been found to significantly improve communication in patient consultations in Norway, usability testing is warranted with US children prior to further use in research studies. OBJECTIVE: The objective of this study was to determine the usability of Sisom in a sample of English- and Spanish-speaking children in an urban US community. METHODS: A mixed-methods usability study was conducted with a purposive sample of healthy children and children with cancer. Semistructured interviews were used to assess healthy children's symptom recognition. Children with cancer completed 8 usability tasks captured with Morae 3.3 software. Data were downloaded, transcribed, and analyzed descriptively. RESULTS: Four healthy children and 8 children with cancer participated. Of the 44 symptoms assessed, healthy children recognized 15 (34%) pictorial symptoms immediately or indicated 13 (30%) pictures were good representations of the symptom. Six children with cancer completed all tasks. All children navigated successfully from one island to the next, ranking their symptom/problem severity, clicking the magnifying glass for help, or asking the researcher for assistance. All children were satisfied with the aesthetics and expressed an interest in using Sisom to communicate their symptoms/problems. CONCLUSIONS: A few minor suggestions for improvement and adjustment may optimize the use of Sisom for US children. IMPLICATIONS FOR PRACTICE: Sisom may help clinicians overcome challenges assessing children's complex symptoms/problems in a child-friendly manner.
BACKGROUND: Developed in Norway, Sisom is an interactive, rigorously tested, computerized, communication tool designed to help children with cancer express their perceived symptoms/problems. Children travel virtually from island to island rating their symptoms/problems. While Sisom has been found to significantly improve communication in patient consultations in Norway, usability testing is warranted with US children prior to further use in research studies. OBJECTIVE: The objective of this study was to determine the usability of Sisom in a sample of English- and Spanish-speaking children in an urban US community. METHODS: A mixed-methods usability study was conducted with a purposive sample of healthy children and children with cancer. Semistructured interviews were used to assess healthy children's symptom recognition. Children with cancer completed 8 usability tasks captured with Morae 3.3 software. Data were downloaded, transcribed, and analyzed descriptively. RESULTS: Four healthy children and 8 children with cancer participated. Of the 44 symptoms assessed, healthy children recognized 15 (34%) pictorial symptoms immediately or indicated 13 (30%) pictures were good representations of the symptom. Six children with cancer completed all tasks. All children navigated successfully from one island to the next, ranking their symptom/problem severity, clicking the magnifying glass for help, or asking the researcher for assistance. All children were satisfied with the aesthetics and expressed an interest in using Sisom to communicate their symptoms/problems. CONCLUSIONS: A few minor suggestions for improvement and adjustment may optimize the use of Sisom for US children. IMPLICATIONS FOR PRACTICE: Sisom may help clinicians overcome challenges assessing children's complex symptoms/problems in a child-friendly manner.
Authors: Argerie Tsimicalis; Mary Jo De Courcy; Bruna Di Monte; Christine Armstrong; Patti Bambury; Julie Constantin; Barbara Dagelman; Marilyn Eves; Patty Jansen; Lisa Honeyford; Denise Stregger Journal: Pediatr Blood Cancer Date: 2011-02-11 Impact factor: 3.167
Authors: Kristen S Higgins; Perri R Tutelman; Christine T Chambers; Holly O Witteman; Melanie Barwick; Penny Corkum; Doris Grant; Jennifer N Stinson; Chitra Lalloo; Sue Robins; Rita Orji; Isabel Jordan Journal: Pain Rep Date: 2018-09-11
Authors: Petra Svedberg; Susann Arvidsson; Ingrid Larsson; Ing-Marie Carlsson; Jens M Nygren Journal: J Med Internet Res Date: 2019-11-15 Impact factor: 5.428