Literature DB >> 32048874

Creating a communication space in the healthcare context: Children's perspective of using the eHealth service, Sisom.

Ing-Marie Carlsson1, Susann Arvidsson1, Petra Svedberg1, Jens M Nygren1, Åsa Viklund2, Anna-Lena Birkeland2, Ingrid Larsson1.   

Abstract

According to the United Nation's Convention of the Rights of the Child, children have the right to participate in their own healthcare and make their opinions heard. The aim of this study was thus to explore the impact of using an eHealth service, Sisom, to gain the children's perspectives during their healthcare appointments. Data were gathered through individual interviews with a purposeful sample of 16 children, aged 6-13 years old, treated for different diseases and using the eHealth service, Sisom, during their healthcare appointments. The interviews were analysed using a constructivist grounded theory. The results showed that using Sisom made children's voice heard by creating a communication space in the healthcare setting. This meant that the children got involved in the communication, were acknowledged as an important person who could give the answers to questions and were given time. Implementing the use of Sisom is a way to make children's needs and preferences explicitly visible for decision-making in practice and thereby supporting the further development of child-centred care in practice.

Entities:  

Keywords:  Child-centred care; communication; eHealth; grounded theory; implementation

Year:  2020        PMID: 32048874      PMCID: PMC7897780          DOI: 10.1177/1367493520904804

Source DB:  PubMed          Journal:  J Child Health Care        ISSN: 1367-4935            Impact factor:   1.979


  34 in total

1.  The iPad and mobile technology revolution: benefits and challenges for individuals who require augmentative and alternative communication.

Authors:  David McNaughton; Janice Light
Journal:  Augment Altern Commun       Date:  2013-06       Impact factor: 2.214

2.  Children and young people's experiences of cancer care: a qualitative research study using participatory methods.

Authors:  Faith Gibson; Susie Aldiss; Maire Horstman; Stephanie Kumpunen; Alison Richardson
Journal:  Int J Nurs Stud       Date:  2010-04-28       Impact factor: 5.837

3.  'Kids need to talk too': inclusive practices for children's healthcare education and participation.

Authors:  Donna Koller
Journal:  J Clin Nurs       Date:  2017-02-19       Impact factor: 3.036

4.  Evaluation of Sisom: A computer-based animated tool to elicit symptoms and psychosocial concerns from children with cancer.

Authors:  Christina Baggott; Jennifer Baird; Pamela Hinds; Cornelia M Ruland; Christine Miaskowski
Journal:  Eur J Oncol Nurs       Date:  2015-02-15       Impact factor: 2.398

Review 5.  Triadic communication in the primary care paediatric consultation: a review of the literature.

Authors:  Patricia Cahill; Alexia Papageorgiou
Journal:  Br J Gen Pract       Date:  2007-11       Impact factor: 5.386

6.  Reframing the focus from a family-centred to a child-centred care approach for children's healthcare.

Authors:  Imelda Coyne; Inger Hallström; Maja Söderbäck
Journal:  J Child Health Care       Date:  2016-07-25       Impact factor: 1.979

7.  Children's participation in shared decision-making: children, adolescents, parents and healthcare professionals' perspectives and experiences.

Authors:  Imelda Coyne; Aislinn Amory; Gemma Kiernan; Faith Gibson
Journal:  Eur J Oncol Nurs       Date:  2014-03-11       Impact factor: 2.398

8.  Evidence-Based Evaluation of eHealth Interventions: Systematic Literature Review.

Authors:  Amia Enam; Johanna Torres-Bonilla; Henrik Eriksson
Journal:  J Med Internet Res       Date:  2018-11-23       Impact factor: 5.428

9.  Barriers and Enablers Affecting Successful Implementation of the Electronic Health Service Sisom: Multicenter Study of Child Participation in Pediatric Care.

Authors:  Petra Svedberg; Susann Arvidsson; Ingrid Larsson; Ing-Marie Carlsson; Jens M Nygren
Journal:  J Med Internet Res       Date:  2019-11-15       Impact factor: 5.428

10.  Perspectives of adolescents on decision making about participation in a biobank study: a pilot study.

Authors:  Petronella Grootens-Wiegers; Eline G Visser; Annemarie M C van Rossum; Claudia N van Waardhuizen; Saskia N de Wildt; Boudewijn Sweep; Jos M van den Broek; Martine C de Vries
Journal:  BMJ Paediatr Open       Date:  2017-08-23
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