Literature DB >> 24448684

Understanding the relative importance of preserving functional abilities in Alzheimer's disease in the United States and Germany.

A Brett Hauber1, Ateesha F Mohamed, F Reed Johnson, Michael Cook, H Michael Arrighi, Jing Zhang, Michael Grundman.   

Abstract

PURPOSE: To estimate the relative importance that Alzheimer's disease (AD) caregivers in the United States and Germany place on preserving patients' ability to perform activities of daily living.
METHODS: US and German residents providing care for a person with AD completed an online preference survey. Each respondent completed five best-worst scaling questions. Each question related to five of 10 activities from the Disability Assessment for Dementia scale. Preference weights, indicating the relative importance of preserving the ability to perform these 10 activities for 36 months, were estimated using maximum-difference scaling. A separate model was estimated for each country.
RESULTS: Four hundred and three US and 400 German caregivers completed the survey. In both countries, preserving a patients' ability to use the toilet without accidents was the most important activity and handling money was the least important activity. There were few differences between US and German caregivers in the relative importance across activities.
CONCLUSIONS: Caregivers generally placed greater importance on preserving basic activities of daily living than on preserving instrumental activities of daily living. Understanding differences in the relative importance of functional items in the DAD may contribute to a better understanding of the benefits of different AD treatment and support measures.

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Year:  2014        PMID: 24448684     DOI: 10.1007/s11136-013-0620-5

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  5 in total

Review 1.  Valuing citizen and patient preferences in health: recent developments in three types of best-worst scaling.

Authors:  Terry N Flynn
Journal:  Expert Rev Pharmacoecon Outcomes Res       Date:  2010-06       Impact factor: 2.217

2.  How redesigning AD clinical trials might increase study partners' willingness to participate.

Authors:  Jason Karlawish; Mark S Cary; Jonathan Rubright; Tom Tenhave
Journal:  Neurology       Date:  2008-12-02       Impact factor: 9.910

3.  Forecasting the global burden of Alzheimer's disease.

Authors:  Ron Brookmeyer; Elizabeth Johnson; Kathryn Ziegler-Graham; H Michael Arrighi
Journal:  Alzheimers Dement       Date:  2007-07       Impact factor: 21.566

4.  Willingness to pay for alternative policies for patients with Alzheimer's Disease.

Authors:  Miguel A Negrín; Jaime Pinilla; Carmelo J León
Journal:  Health Econ Policy Law       Date:  2008-07

5.  Best--worst scaling: What it can do for health care research and how to do it.

Authors:  Terry N Flynn; Jordan J Louviere; Tim J Peters; Joanna Coast
Journal:  J Health Econ       Date:  2006-05-16       Impact factor: 3.883

  5 in total
  9 in total

1.  International depiction of the cost of functional independence limitations among older adults living in the community: a systematic review and cost-of-impairment study.

Authors:  Ryan S Falck; Alexis G Percival; Daria Tai; Jennifer C Davis
Journal:  BMC Geriatr       Date:  2022-10-22       Impact factor: 4.070

Review 2.  Using Best-Worst Scaling to Investigate Preferences in Health Care.

Authors:  Kei Long Cheung; Ben F M Wijnen; Ilene L Hollin; Ellen M Janssen; John F Bridges; Silvia M A A Evers; Mickael Hiligsmann
Journal:  Pharmacoeconomics       Date:  2016-12       Impact factor: 4.981

3.  Quantifying the importance of inhaler attributes corresponding to items in the patient satisfaction and preference questionnaire in patients using Combivent Respimat.

Authors:  Kimberly H Davis; Jun Su; Juan Marcos González; Jeremiah J Trudeau; Lauren M Nelson; Brett Hauber; Kelly A Hollis
Journal:  Health Qual Life Outcomes       Date:  2017-10-16       Impact factor: 3.186

4.  Using best-worst scaling choice experiments to elicit the most important domains of health for health-related quality of life in Singapore.

Authors:  Elenore Judy B Uy; Dianne Carrol Bautista; Xiaohui Xin; Yin Bun Cheung; Szu-Tien Thio; Julian Thumboo
Journal:  PLoS One       Date:  2018-02-08       Impact factor: 3.240

5.  What outcomes are important to patients with mild cognitive impairment or Alzheimer's disease, their caregivers, and health-care professionals? A systematic review.

Authors:  Claire Tochel; Michael Smith; Helen Baldwin; Anders Gustavsson; Amanda Ly; Christin Bexelius; Mia Nelson; Christophe Bintener; Enrico Fantoni; Josep Garre-Olmo; Olin Janssen; Christoph Jindra; Isabella F Jørgensen; Alex McKeown; Buket Öztürk; Anna Ponjoan; Michele H Potashman; Catherine Reed; Emilse Roncancio-Diaz; Stephanie Vos; Cathie Sudlow
Journal:  Alzheimers Dement (Amst)       Date:  2019-03-07

6.  Identifying relevant outcomes in the progression of Alzheimer's disease; what do patients and care partners want to know about prognosis?

Authors:  Arenda Mank; Ingrid S van Maurik; Els D Bakker; Esther M M van de Glind; Linus Jönsson; Milica G Kramberger; Petr Novak; Ana Diaz; Dianne Gove; Philip Scheltens; Wiesje M van der Flier; Leonie N C Visser
Journal:  Alzheimers Dement (N Y)       Date:  2021-08-20

Review 7.  A research agenda for promoting continence for people living with dementia in the community: Recommendations based on a critical review and expert-by-experience opinion.

Authors:  Vanessa Burholt; Johanna Davies; Michal Boyd; Jane M Mullins; E Zoe Shoemark
Journal:  J Clin Nurs       Date:  2020-11-15       Impact factor: 4.423

8.  The Patient Voice: Exploring Treatment Preferences in Participants with Mild Cognitive Concerns to Inform Regulatory Decision Making.

Authors:  Carol Mansfield; Kristin Bullok; Jillian Venci Fuhs; Antje Tockhorn-Heidenreich; J Scott Andrews; Dana DiBenedetti; Brandy R Matthews; Joshua C Darling; Jessie Sutphin; Brett Hauber
Journal:  Patient       Date:  2022-04-18       Impact factor: 3.481

9.  Experimental measurement of preferences in health and healthcare using best-worst scaling: an overview.

Authors:  Axel C Mühlbacher; Anika Kaczynski; Peter Zweifel; F Reed Johnson
Journal:  Health Econ Rev       Date:  2016-01-08
  9 in total

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