Literature DB >> 24446938

Supported decision-making and personal autonomy for persons with intellectual disabilities: article 12 of the UN convention on the rights of persons with disabilities.

Nandini Devi1.   

Abstract

Making decisions is an important component of everyday living, and issues surrounding autonomy and self-determination are crucial for persons with intellectual disabilities. Article 12 (Equal Recognition before the Law) of the UN Convention on the Rights of Persons with Disabilities addresses this issue of decision-making for persons with disabilities: the recognition of legal capacity. Legal capacity means recognizing the right to make decisions for oneself. Article 12 is also moving in the direction of supported decision-making, as an alternative to substituted decision-making. The objective of this paper is to show conceptually the connection between supported decisionmaking and the preservation of personal autonomy for persons with intellectual disabilities. This paper discusses supported decision-making based on Bach and Kerzner's model: (a) legally independent status, (b) supported decision- making status, and (c) facilitated decision-making status. Arguments will be made based on John Stuart Mill's concept of autonomy and arguments against it using Sarah Conly's argument for paternalism.
© 2013 American Society of Law, Medicine & Ethics, Inc.

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Year:  2013        PMID: 24446938     DOI: 10.1111/jlme.12090

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.718


  8 in total

1.  Promoting health care decision-making capabilities of adults with intellectual and developmental disabilities.

Authors:  William F Sullivan; John Heng; Karen McNeil; Michael Bach; Megan Henze; Andrea Perry; Janet Vogt
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

2.  Getting the Balance Right: Conceptual Considerations Concerning Legal Capacity and Supported Decision-Making.

Authors:  Malcolm Parker
Journal:  J Bioeth Inq       Date:  2016-06-21       Impact factor: 1.352

3.  Supported Decision Making With People at the Margins of Autonomy.

Authors:  Andrew Peterson; Jason Karlawish; Emily Largent
Journal:  Am J Bioeth       Date:  2020-12-29       Impact factor: 11.229

4.  Managing relational autonomy in interactions: People with intellectual disabilities.

Authors:  Sandra Dowling; Val Williams; Joe Webb; Marina Gall; Deborah Worrall
Journal:  J Appl Res Intellect Disabil       Date:  2019-04-12

5.  Disparities in cancer-related healthcare among people with intellectual disabilities: A population-based cohort study with health insurance claims data.

Authors:  Maarten Cuypers; Hilde Tobi; Cornelis A A Huijsmans; Lieke van Gerwen; Michiel Ten Hove; Chris van Weel; Lambertus A L M Kiemeney; Jenneken Naaldenberg; Geraline L Leusink
Journal:  Cancer Med       Date:  2020-07-25       Impact factor: 4.452

6.  Sexual health concerns in women with intellectual disabilities: a systematic review in qualitative studies.

Authors:  Behzad Karami Matin; Michelle Ballan; Fatemeh Darabi; Ali Kazemi Karyani; Moslem Soofi; Shahin Soltani
Journal:  BMC Public Health       Date:  2021-10-30       Impact factor: 3.295

Review 7.  Empowering the voiceless. Disorders of consciousness, neuroimaging and supported decision-making.

Authors:  Timo Istace
Journal:  Front Psychiatry       Date:  2022-09-06       Impact factor: 5.435

8.  Living with support: Experiences of people with mild intellectual disability.

Authors:  Sanne A H Giesbers; Lex Hendriks; Andrew Jahoda; Richard P Hastings; Petri J C M Embregts
Journal:  J Appl Res Intellect Disabil       Date:  2018-10-26
  8 in total

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