Literature DB >> 33372858

Supported Decision Making With People at the Margins of Autonomy.

Andrew Peterson1, Jason Karlawish2, Emily Largent2.   

Abstract

This article argues that supported decision making is ideal for people with dynamic cognitive and functional impairments that place them at the margins of autonomy. First, we argue that guardianship and similar surrogate decision-making frameworks may be inappropriate for people with dynamic impairments. Second, we provide a conceptual foundation for supported decision making for individuals with dynamic impairments, which integrates the social model of disability with relational accounts of autonomy. Third, we propose a three-step model that specifies the necessary conditions of supported decision making: identifying domains for support; identifying kinds of supports; and reaching a mutually acceptable and formal agreement. Finally, we identify a series of challenges for supported decision making, provide preliminary responses, and highlight avenues for future bioethics research.

Entities:  

Keywords:  Disability; aging; chronic conditions; decision making; health policy; neurodegenerative disease; neurology; rehabilitation

Mesh:

Year:  2020        PMID: 33372858      PMCID: PMC8239054          DOI: 10.1080/15265161.2020.1863507

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


  27 in total

1.  Beyond the medical model? Disability, formal justice, and the exception for the "profoundly impaired".

Authors:  Sara Goering
Journal:  Kennedy Inst Ethics J       Date:  2002-12

2.  (Almost) everything you ever wanted to know about informed consent. [Review of: Faden, RR and Beauchamp, TL. A history and theory of informed concsent. New York and Oxford: Oxford University Press, 1986].

Authors:  A M Capron
Journal:  Med Humanit Rev       Date:  1987-01

3.  Rethinking neuroethics in the light of the extended mind thesis.

Authors:  Neil Levy
Journal:  Am J Bioeth       Date:  2007-09       Impact factor: 11.229

Review 4.  Supported decision making: a review of the international literature.

Authors:  Gavin Davidson; Berni Kelly; Geraldine Macdonald; Maria Rizzo; Louise Lombard; Oluwaseye Abogunrin; Victoria Clift-Matthews; Alison Martin
Journal:  Int J Law Psychiatry       Date:  2015-02-09

Review 5.  Cognitive, social, and neural determinants of diminished decision-making and financial exploitation risk in aging and dementia: A review and new model.

Authors:  R Nathan Spreng; Jason Karlawish; Daniel C Marson
Journal:  J Elder Abuse Negl       Date:  2016-09-20

6.  Memory and communication support in dementia: research-based strategies for caregivers.

Authors:  Erin R Smith; Megan Broughton; Rosemary Baker; Nancy A Pachana; Anthony J Angwin; Michael S Humphreys; Leander Mitchell; Gerard J Byrne; David A Copland; Cindy Gallois; Desley Hegney; Helen J Chenery
Journal:  Int Psychogeriatr       Date:  2010-09-20       Impact factor: 3.878

7.  Medical decision-making capacity in patients with mild cognitive impairment.

Authors:  O Okonkwo; H R Griffith; K Belue; S Lanza; E Y Zamrini; L E Harrell; J C Brockington; D Clark; R Raman; D C Marson
Journal:  Neurology       Date:  2007-10-09       Impact factor: 9.910

8.  Dementia, Healthcare Decision Making, and Disability Law.

Authors:  Megan S Wright
Journal:  J Law Med Ethics       Date:  2019-12       Impact factor: 1.718

9.  Autonomy and couples' joint decision-making in healthcare.

Authors:  Pauline E Osamor; Christine Grady
Journal:  BMC Med Ethics       Date:  2018-01-11       Impact factor: 2.652

10.  How should the 'privilege' in therapeutic privilege be conceived when considering the decision-making process for patients with borderline capacity?

Authors:  Sumytra Menon; Vikki Entwistle; Alastair Vincent Campbell; Johannes J M van Delden
Journal:  J Med Ethics       Date:  2020-01-07       Impact factor: 2.903

View more
  4 in total

1.  Written discharge communication of diagnostic and decision-making information for persons living with dementia during hospital to skilled nursing facility transitions.

Authors:  Laura Block; Melissa Hovanes; Andrea L Gilmore-Bykovskyi
Journal:  Geriatr Nurs       Date:  2022-05-13       Impact factor: 2.525

2.  Supported Decision Making with People at the Margins of Autonomy: Response to Commentaries.

Authors:  Andrew Peterson; Jason Karlawish; Emily A Largent
Journal:  Am J Bioeth       Date:  2022-01       Impact factor: 14.676

Review 3.  Empowering the voiceless. Disorders of consciousness, neuroimaging and supported decision-making.

Authors:  Timo Istace
Journal:  Front Psychiatry       Date:  2022-09-06       Impact factor: 5.435

4.  Implications of preclinical Alzheimer's disease biomarker disclosure for US policy and society.

Authors:  Claire M Erickson; Lindsay R Clark; Fred B Ketchum; Nathaniel A Chin; Carey E Gleason; Emily A Largent
Journal:  Alzheimers Dement (Amst)       Date:  2022-08-25
  4 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.