Literature DB >> 24337762

Parent perspectives on family-based psychosocial interventions in pediatric cancer: a mixed-methods approach.

Matthew C Hocking1, Anne E Kazak, Stephanie Schneider, Darlene Barkman, Lamia P Barakat, Janet A Deatrick.   

Abstract

Family-based interventions in pediatric cancer face challenges associated with integrating psychosocial care into a period of intensive treatment and escalating stress. Little research has sought input from parents on the role of interventions delivered shortly after diagnosis. This mixed-methods study obtained parents' perspectives on the potential role of family-based interventions. Twenty-five parents provided feedback on the structure and timing of psychosocial interventions via focus groups and a questionnaire. Qualitative analyses resulted in three themes that were illustrative of a traumatic stress framework: (1) tension between focusing on child with cancer and addressing other family needs, (2) factors influencing parents' perception of a shared experience with other parents, and (3) the importance of matching interventions to the trajectory of parent adjustment. Quantitative data indicated that parents preferred intervention within 6 months of diagnosis, with almost half favoring within 2 months of diagnosis, and the majority wanted interventions targeted to parents only. Qualitative themes highlight the importance of using a traumatic stress framework to inform the development of family-based interventions for those affected by pediatric cancer.

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Mesh:

Year:  2013        PMID: 24337762      PMCID: PMC3969770          DOI: 10.1007/s00520-013-2083-1

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  32 in total

Review 1.  The use of focus group methodology in health disparities research.

Authors:  Coralease C Ruff; Ivy M Alexander; Charmaine McKie
Journal:  Nurs Outlook       Date:  2005 May-Jun       Impact factor: 3.250

2.  Psychosocial services in the first 30 days after diagnosis: results of a web-based survey of Children's Oncology Group (COG) member institutions.

Authors:  Rebecca Selove; Thilo Kroll; Max Coppes; Yao Cheng
Journal:  Pediatr Blood Cancer       Date:  2011-07-13       Impact factor: 3.167

3.  Introduction to the Special Issue: Time for Family-Based Interventions in Pediatric Psychology?

Authors:  Barbara H Fiese
Journal:  J Pediatr Psychol       Date:  2005-12

4.  The problem of rigor in qualitative research.

Authors:  M Sandelowski
Journal:  ANS Adv Nurs Sci       Date:  1986-04       Impact factor: 1.824

5.  A clinic-based interdisciplinary intervention for mothers of children newly diagnosed with cancer: a pilot study.

Authors:  Larry L Mullins; David A Fedele; Mark Chaffin; Stephanie E Hullmann; Carol Kenner; Angelica R Eddington; Sean Phipps; Rene Y McNall-Knapp
Journal:  J Pediatr Psychol       Date:  2012-09-03

6.  Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: report of a multisite randomized trial.

Authors:  Olle Jane Z Sahler; Diane L Fairclough; Sean Phipps; Raymond K Mulhern; Michael J Dolgin; Robert B Noll; Ernest R Katz; James W Varni; Donna R Copeland; Robert W Butler
Journal:  J Consult Clin Psychol       Date:  2005-04

Review 7.  Family adjustment to childhood cancer: a systematic review.

Authors:  Kristin A Long; Anna L Marsland
Journal:  Clin Child Fam Psychol Rev       Date:  2011-03

8.  Brief report: does posttraumatic stress apply to siblings of childhood cancer survivors?

Authors:  Melissa A Alderfer; Larissa E Labay; Anne E Kazak
Journal:  J Pediatr Psychol       Date:  2003-06

9.  Conducting a randomized clinical trial of an psychological intervention for parents/caregivers of children with cancer shortly after diagnosis.

Authors:  Meredith Lutz Stehl; Anne E Kazak; Melissa A Alderfer; Alyssa Rodriguez; Wei-Ting Hwang; Ahna L H Pai; Alexandra Boeving; Anne Reilly
Journal:  J Pediatr Psychol       Date:  2008-12-17

10.  Patterns of family management of childhood chronic conditions and their relationship to child and family functioning.

Authors:  Kathleen A Knafl; Janet A Deatrick; George J Knafl; Agatha M Gallo; Margaret Grey; Jane Dixon
Journal:  J Pediatr Nurs       Date:  2013-04-19       Impact factor: 2.145

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  9 in total

1.  Parent Perspectives on Family-Based Psychosocial Interventions for Congenital Heart Disease.

Authors:  Colette Gramszlo; Allison Karpyn; Abigail C Demianczyk; Amanda Shillingford; Erin Riegel; Anne E Kazak; Erica Sood
Journal:  J Pediatr       Date:  2019-11-14       Impact factor: 4.406

2.  Applicability and evaluation of a psychosocial intervention program for childhood cancer patients.

Authors:  Elisabeth M van Dijk-Lokkart; Katja I Braam; Gertjan J L Kaspers; Eline van Dulmen-den Broeder; Tim Takken; Martha A Grootenhuis; Isabelle C Streng; Marc Bierings; Johannes H Merks; Marry M van den Heuvel-Eibrink; Margreet A Veening; Jaap Huisman
Journal:  Support Care Cancer       Date:  2015-01-11       Impact factor: 3.603

3.  Psychosocial risk, symptom burden, and concerns in families affected by childhood cancer.

Authors:  K Brooke Russell; Michaela Patton; Courtney Tromburg; Hailey Zwicker; Gregory M T Guilcher; Barry D Bultz; Fiona Schulte
Journal:  Support Care Cancer       Date:  2021-10-31       Impact factor: 3.603

4.  Exploring factors influencing health-seeking decisions and retention in childhood cancer treatment programmes: perspectives of parents in Ghana.

Authors:  Lorna Awo Renner; Deborah McGill
Journal:  Ghana Med J       Date:  2016-09

5.  Strategies for Successful Recruitment and Retention of Parents in Pediatric Psychosocial eHealth Interventions: A Qualitative Study in Pediatric Oncology.

Authors:  Kimberly S Canter; Gabriela Vega; Alejandra Perez Ramirez; Janet E Deatrick; Anne E Kazak
Journal:  J Pediatr Psychol       Date:  2020-06-01

Review 6.  Standards of Psychosocial Care for Parents of Children With Cancer.

Authors:  Julia A Kearney; Christina G Salley; Anna C Muriel
Journal:  Pediatr Blood Cancer       Date:  2015-12       Impact factor: 3.167

7.  When trust is threatened: Qualitative study of parents' perspectives on problematic clinical relationships in child cancer care.

Authors:  Sarah Davies; Peter Salmon; Bridget Young
Journal:  Psychooncology       Date:  2017-06-08       Impact factor: 3.894

8.  The effect of personalised versus non-personalised study invitations on recruitment within the ENGAGE feasibility trial: an embedded randomised controlled recruitment trial.

Authors:  Ella Thiblin; Joanne Woodford; Mattias Öhman; Louise von Essen
Journal:  BMC Med Res Methodol       Date:  2022-03-06       Impact factor: 4.615

9.  Pediatric Psychosocial Standards of Care in action: Research that bridges the gap from need to implementation.

Authors:  Lori Wiener; Kimberly Canter; Kristin Long; Alexandra M Psihogios; Amanda L Thompson
Journal:  Psychooncology       Date:  2020-10-21       Impact factor: 3.955

  9 in total

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