Literature DB >> 24243756

Internet-based interventions for cancer-related distress: exploring the experiences of those whose needs are not met.

Amanda Gorlick1, Erin O'Carroll Bantum, Jason E Owen.   

Abstract

OBJECTIVE: Low levels of engagement in Internet-based interventions are common. Understanding users' experiences with these interventions is a key to improving efficacy. Although qualitative methods are well-suited for this purpose, few qualitative studies have been conducted in this area. In the present study, we assessed experiences with an Internet-based intervention among cancer survivors who made minimal use of the intervention.
METHODS: Semi-structured interviews were conducted with 25 cancer survivors who were minimally engaged (i.e., spent around 1 h total on website) with the online intervention, health-space.net. The intervention was a 12-week, facilitated support group with social and informational components. Interviews were analyzed using an interpretive descriptive design.
RESULTS: Three broad categories, consisting of 18 specific themes, were identified from the interviews, which included connecting with similar others, individual expectations, and problems with the site (Κ = 0.88). The 'similar others' category reflected the significance of interacting with relatable survivors (i.e., same cancer type), the 'individual expectations' category reflected the significance of participants' expectations about using online interventions (i.e., personally relevant information), and the 'problems with the site' category reflected the significance of study procedures (i.e., website structure).
CONCLUSIONS: The data indicate that minimally engaged participants have high variability regarding their needs and preferences for Internet-based interventions. Using qualitative methodologies to identify and incorporate these needs into the next generation of interventions has the potential to increase engagement and outcomes. The current study provides a foundation for future research to characterize survivors' needs and offer suggestions for better meeting these needs.
Copyright © 2013 John Wiley & Sons, Ltd.

Entities:  

Keywords:  Internet; cancer; distress; engagement; oncology; support

Mesh:

Year:  2013        PMID: 24243756      PMCID: PMC4167707          DOI: 10.1002/pon.3443

Source DB:  PubMed          Journal:  Psychooncology        ISSN: 1057-9249            Impact factor:   3.894


  18 in total

Review 1.  Future directions in evaluation research: people, organizational, and social issues.

Authors:  B Kaplan; N T Shaw
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Authors:  Katherine M Melville; Leanne M Casey; David J Kavanagh
Journal:  Br J Clin Psychol       Date:  2009-10-01

3.  Evidence based patient information. is important, so there needs to be a national strategy to ensure it.

Authors:  A Coulter
Journal:  BMJ       Date:  1998-07-25

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Authors:  S Thorne; S R Kirkham; J MacDonald-Emes
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5.  Effect of computer support on younger women with breast cancer.

Authors:  D H Gustafson; R Hawkins; S Pingree; F McTavish; N K Arora; J Mendenhall; D F Cella; R C Serlin; F M Apantaku; J Stewart; A Salner
Journal:  J Gen Intern Med       Date:  2001-07       Impact factor: 5.128

6.  Evaluation of an internet support group for women with primary breast cancer.

Authors:  Andrew J Winzelberg; Catherine Classen; Georg W Alpers; Heidi Roberts; Cheryl Koopman; Robert E Adams; Heidemarie Ernst; Parvati Dev; C Barr Taylor
Journal:  Cancer       Date:  2003-03-01       Impact factor: 6.860

7.  Improving the effectiveness of adjuvant psychological treatment for women with breast cancer: the feasibility of providing online support.

Authors:  Jason E Owen; Joshua C Klapow; David L Roth; Lisle Nabell; Diane C Tucker
Journal:  Psychooncology       Date:  2004-04       Impact factor: 3.894

8.  Pilot study of an Internet patient-physician communication tool for heart failure disease management.

Authors:  Robert C Wu; Diego Delgado; Jeannine Costigan; Jane Maciver; Heather Ross
Journal:  J Med Internet Res       Date:  2005-03-26       Impact factor: 5.428

9.  A comparison of changes in anxiety and depression symptoms of spontaneous users and trial participants of a cognitive behavior therapy website.

Authors:  Helen Christensen; Kathleen M Griffiths; Ailsa E Korten; Kylie Brittliffe; Chloe Groves
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10.  Usage and longitudinal effectiveness of a Web-based self-help cognitive behavioral therapy program for panic disorder.

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Journal:  J Med Internet Res       Date:  2005-03-26       Impact factor: 5.428

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  13 in total

1.  An online randomized controlled trial, with or without problem-solving treatment, for long-term cancer survivors after hematopoietic cell transplantation.

Authors:  Karen L Syrjala; Jean C Yi; Samantha B Artherholt; Joan M Romano; Marie-Laure Crouch; Allison S Fiscalini; Mark T Hegel; Mary E D Flowers; Paul J Martin; Wendy M Leisenring
Journal:  J Cancer Surviv       Date:  2018-05-05       Impact factor: 4.442

2.  A qualitative exploration of barriers and facilitatorsto adherence to an online self-help intervention for cancer-related distress.

Authors:  Lisa Beatty; Claire Binnion; Emma Kemp; Bogda Koczwara
Journal:  Support Care Cancer       Date:  2017-03-15       Impact factor: 3.603

3.  Factors influencing engagement in an online support group for family caregivers of individuals with advanced cancer.

Authors:  Karla T Washington; Debra Parker Oliver; Jacquelyn J Benson; Abigail J Rolbiecki; Lucas A Jorgensen; Dulce M Cruz-Oliver; George Demiris
Journal:  J Psychosoc Oncol       Date:  2019-11-06

4.  Characterizing Social Networks and Communication Channels in a Web-Based Peer Support Intervention.

Authors:  Jason E Owen; Michaela Curran; Erin O'Carroll Bantum; Robert Hanneman
Journal:  Cyberpsychol Behav Soc Netw       Date:  2016-06

5.  Randomized Trial of a Social Networking Intervention for Cancer-Related Distress.

Authors:  Jason E Owen; Erin O'Carroll Bantum; Ian S Pagano; Annette Stanton
Journal:  Ann Behav Med       Date:  2017-10

6.  Randomized psychosocial interventions for breast cancer: impact on life purpose.

Authors:  Maria G Mens; Vicki S Helgeson; Barry C Lembersky; Andrew Baum; Michael F Scheier
Journal:  Psychooncology       Date:  2015-06-28       Impact factor: 3.894

7.  Engagement with a social networking intervention for cancer-related distress.

Authors:  Jason E Owen; Erin O Bantum; Amanda Gorlick; Annette L Stanton
Journal:  Ann Behav Med       Date:  2015-04

8.  The Prevalence and Characteristics of Emergency Medicine Patient Use of New Media.

Authors:  Lori Ann Post; Federico E Vaca; Brian J Biroscak; James Dziura; Cynthia Brandt; Steven L Bernstein; Richard Taylor; Liudvikas Jagminas; Gail D'Onofrio
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Review 9.  Self-Guided Web-Based Interventions: Scoping Review on User Needs and the Potential of Embodied Conversational Agents to Address Them.

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Journal:  J Med Internet Res       Date:  2017-11-16       Impact factor: 5.428

Review 10.  Evaluation Methods for Assessing Users' Psychological Experiences of Web-Based Psychosocial Interventions: A Systematic Review.

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Journal:  J Med Internet Res       Date:  2016-06-30       Impact factor: 5.428

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