Literature DB >> 12599221

Evaluation of an internet support group for women with primary breast cancer.

Andrew J Winzelberg1, Catherine Classen, Georg W Alpers, Heidi Roberts, Cheryl Koopman, Robert E Adams, Heidemarie Ernst, Parvati Dev, C Barr Taylor.   

Abstract

BACKGROUND: Women with breast carcinoma commonly experience psychologic distress following their diagnosis. Women who participate in breast cancer support groups have reported significant reduction in their psychologic distress and pain and improvement in the quality of their lives. Web-based breast cancer social support groups are widely used, but little is known of their effectiveness. Preliminary evidence suggests that women benefit from their participation in web-based support groups.
METHODS: Seventy-two women with primary breast carcinoma were assigned randomly to a 12-week, web-based, social support group (Bosom Buddies). The group was semistructured, moderated by a health care professional, and delivered in an asynchronous newsgroup format.
RESULTS: The results indicate that a web-based support group can be useful in reducing depression and cancer-related trauma, as well as perceived stress, among women with primary breast carcinoma. The effect sizes ranged from 0.38 to 0.54. Participants perceived a variety of benefits and high satisfaction from their participation in the intervention
CONCLUSIONS: This study demonstrated that the web-based program, Bosom Buddies, was effective in reducing participants' scores on depression, perceived stress, and cancer-related trauma measures. The effect size of the intervention was in the moderate range. Although web-based social support groups offer many advantages, this delivery mechanism presents a number of ethical issues that need to be addressed. Copyright 2003 American Cancer Society.

Entities:  

Mesh:

Year:  2003        PMID: 12599221     DOI: 10.1002/cncr.11174

Source DB:  PubMed          Journal:  Cancer        ISSN: 0008-543X            Impact factor:   6.860


  127 in total

1.  Unmet needs in information flow between breast cancer patients, their spouses, and physicians.

Authors:  E Salminen; J Vire; T Poussa; S Knifsund
Journal:  Support Care Cancer       Date:  2004-09       Impact factor: 3.603

2.  Creating a bond between caregivers online: effect on caregivers' coping strategies.

Authors:  Kang Namkoong; Lori L DuBenske; Bret R Shaw; David H Gustafson; Robert P Hawkins; Dhavan V Shah; Fiona M McTavish; James F Cleary
Journal:  J Health Commun       Date:  2011-10-17

3.  Internet cancer support groups: a feminist analysis.

Authors:  Eun-Ok Im; Wonshik Chee; Hsiu-Min Tsai; Li-Chen Lin; Ching-Yu Cheng
Journal:  Cancer Nurs       Date:  2005 Jan-Feb       Impact factor: 2.592

Review 4.  Characteristics and methodological quality of 25 years of research investigating psychosocial interventions for cancer patients.

Authors:  Anne Moyer; Stephanie J Sohl; Sarah K Knapp-Oliver; Stefan Schneider
Journal:  Cancer Treat Rev       Date:  2009-03-04       Impact factor: 12.111

5.  Breast Cancer Survivors' Contribution to Psychosocial Adjustment of Newly Diagnosed Breast Cancer Patients in a Computer-Mediated Social Support Group.

Authors:  Tae-Joon Moon; Ming-Yuan Chih; Dhavan V Shah; Woohyun Yoo; David H Gustafson
Journal:  Journal Mass Commun Q       Date:  2017-01-19

6.  The implementation of web-based cognitive rehabilitation in adult cancer survivors: examining participant engagement, attrition and treatment fidelity.

Authors:  Mary E Mihuta; Heather J Green
Journal:  Support Care Cancer       Date:  2017-09-02       Impact factor: 3.603

7.  Online discussion of drug side effects and discontinuation among breast cancer survivors.

Authors:  Jun J Mao; Annie Chung; Adrian Benton; Shawndra Hill; Lyle Ungar; Charles E Leonard; Sean Hennessy; John H Holmes
Journal:  Pharmacoepidemiol Drug Saf       Date:  2013-01-16       Impact factor: 2.890

8.  Online focus groups as an HIV prevention program for gay, bisexual, and queer adolescent males.

Authors:  Michele L Ybarra; L Zachary DuBois; Jeffrey T Parsons; Tonya L Prescott; Brian Mustanski
Journal:  AIDS Educ Prev       Date:  2014-12

9.  One-year effect of a nurse-led psychosocial intervention on depressive symptoms in patients with head and neck cancer: a randomized controlled trial.

Authors:  Ingeborg C van der Meulen; Anne M May; Wynand J G Ros; Miriam Oosterom; Gert-Jan Hordijk; Ron Koole; J Rob J de Leeuw
Journal:  Oncologist       Date:  2013-02-21

10.  Attitudes about internet support groups among adolescents and young adults with neurofibromatosis type 1 and their parents.

Authors:  Staci Martin; Pamela L Wolters; Andrea Baldwin; Marie Claire Roderick; Mary Anne Toledo-Tamula; Andrea Gillespie; Brigitte Widemann
Journal:  J Genet Couns       Date:  2014-01-28       Impact factor: 2.537

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