Literature DB >> 24118752

'Too much for one day': a case study of disclosure in the paediatric HIV/AIDS clinic.

Claire Penn1.   

Abstract

BACKGROUND: Despite acknowledgement of the complexity and challenges of the process of disclosure of HIV status to adolescents, little work has been carried out on the communication features which facilitate or hinder the process. This qualitative case study reflects the interactional dynamics of an interaction between caregiver, physician and counsellor around the topic of disclosure in a South African clinic.
METHODS: A 40-minute encounter between a doctor, the grandmother of an adolescent with HIV/AIDS and a counsellor around the process of disclosure was transcribed and examined in detail in relation to its structure, topics, timing and sequence as well as its movement towards a collaborative ending. Analysis was based on elements of conversational and thematic analysis.
RESULTS: The session was characterized by distinct stages and the emergence of multiple voices and perspectives from the participants. The negotiated management of the session sheds light on multiple barriers to care as well as the influence of contextual factors on the process. The important mediating role of the counsellor in the triad emerges. The analysis highlights both unique features of the consultation and common challenges to clinicians when disclosing. DISCUSSION AND
CONCLUSIONS: The task of disclosure is complex and intricate. Results suggest team processes are critical, as are temporal and contextual factors and the need for an understanding of communication. Implications for the clinic team are discussed and suggestions made for the development of collaborative partnership based on an understanding of roles and responsibilities, time factors and enhancement of features such as trust and communication.
© 2013 John Wiley & Sons Ltd.

Entities:  

Keywords:  HIV/AIDS; adolescent; case study; counsellor; disclosure; team collaboration

Mesh:

Year:  2013        PMID: 24118752      PMCID: PMC5060797          DOI: 10.1111/hex.12140

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


  20 in total

1.  Shared brokering: the development of a nurse/interpreter partnership.

Authors:  E Labun
Journal:  J Immigr Health       Date:  1999-10

Review 2.  Conversation analysis, doctor-patient interaction and medical communication.

Authors:  Douglas W Maynard; John Heritage
Journal:  Med Educ       Date:  2005-04       Impact factor: 6.251

3.  The influence of burnout on skills retention of junior doctors at Red Cross War Memorial Children's Hospital: a case study.

Authors:  J M Stodel; A Stewart-Smith
Journal:  S Afr Med J       Date:  2011-02

4.  'Are we allowed to disclose?': a healthcare team's experiences of talking with children and adolescents about their HIV status.

Authors:  Jennifer Watermeyer
Journal:  Health Expect       Date:  2013-10-01       Impact factor: 3.377

5.  Recommendations for communication to enhance informed consent and enrolment at multilingual research sites.

Authors:  Claire Penn; Melanie Evans
Journal:  Afr J AIDS Res       Date:  2009-09       Impact factor: 1.300

6.  Interpreters as co-diagnosticians: overlapping roles and services between providers and interpreters.

Authors:  Elaine Hsieh
Journal:  Soc Sci Med       Date:  2006-11-28       Impact factor: 4.634

Review 7.  Paediatric HIV/AIDS disclosure: towards a developmental and process-oriented approach.

Authors:  A Lesch; L Swartz; A Kagee; K Moodley; Z Kafaar; L Myer; M Cotton
Journal:  AIDS Care       Date:  2007-07

8.  Physician self-disclosure in primary care visits: enough about you, what about me?

Authors:  Susan H McDaniel; Howard B Beckman; Diane S Morse; Jordan Silberman; David B Seaburn; Ronald M Epstein
Journal:  Arch Intern Med       Date:  2007-06-25

9.  Dimensions of trust: the tensions and challenges in provider--interpreter trust.

Authors:  Elaine Hsieh; Hyejung Ju; Haiying Kong
Journal:  Qual Health Res       Date:  2009-10-13

10.  Patients' perceptions of entitlement to time in general practice consultations for depression: qualitative study.

Authors:  Kristian Pollock; Janet Grime
Journal:  BMJ       Date:  2002-09-28
View more
  1 in total

Review 1.  Why Tell Children: A Synthesis of the Global Literature on Reasons for Disclosing or Not Disclosing an HIV Diagnosis to Children 12 and under.

Authors:  Beatrice J Krauss; Susan Letteney; Chioma N Okoro
Journal:  Front Public Health       Date:  2016-09-08
  1 in total

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