Literature DB >> 24030888

Contact with primary care: the experience of people with intellectual disabilities.

Jonathan Perry1, David Felce, Mike Kerr, Stuart Bartley, Judith Tomlinson, Janet Felce.   

Abstract

BACKGROUND: People with intellectual disabilities experience disparities in their health and health care. Annual health checks are intended to counter such disparity by improving access to primary health care. However, little is known about their experience of having a health check or other types of contact with primary care services.
MATERIALS AND METHODS: The findings of two studies which used focus groups were combined. 102 people with intellectual disabilities participated in the focus groups.
RESULTS: Participants' experiences of primary care services generally, and health checks in particular, were positive. However, unanimity was rare on any of the topics discussed and a number of areas of dissatisfaction emerged.
CONCLUSIONS: Further studies with larger and more representative samples are necessary as feedback from people with intellectual disabilities about their experience of contact with primary care staff might help to enhance GP knowledge about their health requirements.
© 2013 John Wiley & Sons Ltd.

Entities:  

Keywords:  GPs; health; health checks; intellectual disabilities; primary care; user views

Mesh:

Year:  2013        PMID: 24030888     DOI: 10.1111/jar.12072

Source DB:  PubMed          Journal:  J Appl Res Intellect Disabil        ISSN: 1360-2322


  16 in total

1.  Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines.

Authors:  William F Sullivan; Heidi Diepstra; John Heng; Shara Ally; Elspeth Bradley; Ian Casson; Brian Hennen; Maureen Kelly; Marika Korossy; Karen McNeil; Dara Abells; Khush Amaria; Kerry Boyd; Meg Gemmill; Elizabeth Grier; Natalie Kennie-Kaulbach; Mackenzie Ketchell; Jessica Ladouceur; Amanda Lepp; Yona Lunsky; Shirley McMillan; Ullanda Niel; Samantha Sacks; Sarah Shea; Katherine Stringer; Kyle Sue; Sandra Witherbee
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

Review 2.  Circles of care for people with intellectual and developmental disabilities: Communication, collaboration, and coordination.

Authors:  Karen McNeil; Meg Gemmill; Dara Abells; Samantha Sacks; Terry Broda; Catherine R Morris; Cynthia Forster-Gibson
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

3.  Improving care for adults with intellectual and developmental disabilities: Role of clerical staff.

Authors:  Max Zworth; Avra Selick; Janet Durbin; Ian Casson; Yona Lunsky
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

4.  Narrowing the health inequality gap by annual health checks for patients with intellectual disability.

Authors:  Dominic Slowie; Graham Martin
Journal:  Br J Gen Pract       Date:  2014-02       Impact factor: 5.386

5.  Health information exchange for patients with intellectual disabilities: a general practice perspective.

Authors:  Mathilde Mastebroek; Jenneken Naaldenberg; Francine A van den Driessen Mareeuw; Geraline L Leusink; Antoine Lm Lagro-Janssen; Henny Mj van Schrojenstein Lantman-de Valk
Journal:  Br J Gen Pract       Date:  2016-08-01       Impact factor: 5.386

6.  Teaching family medicine residents about care of adults with intellectual and developmental disabilities.

Authors:  Ian Casson; Dara Abells; Kerry Boyd; Elspeth Bradley; Meg Gemmill; Elizabeth Grier; Jane Griffiths; Brian Hennen; Alvin Loh; Yona Lunsky; Kyle Sue
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

7.  Consumer inclusion: Experience of patients with intellectual and developmental disabilities informs primary care.

Authors:  Kerry Boyd; Heidi Diepstra; Kareem Elbard; Yani Hamdani; Yona Lunsky
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

8. 

Authors:  William F Sullivan; Heidi Diepstra; John Heng; Shara Ally; Elspeth Bradley; Ian Casson; Brian Hennen; Maureen Kelly; Marika Korossy; Karen McNeil; Dara Abells; Khush Amaria; Kerry Boyd; Meg Gemmill; Elizabeth Grier; Natalie Kennie-Kaulbach; Mackenzie Ketchell; Jessica Ladouceur; Amanda Lepp; Yona Lunsky; Shirley McMillan; Ullanda Niel; Samantha Sacks; Sarah Shea; Katherine Stringer; Kyle Sue; Sandra Witherbee
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

9.  Factors associated with ambulatory care sensitive emergency department visits for South Carolina Medicaid members with intellectual disability.

Authors:  S McDermott; J Royer; J R Mann; B S Armour
Journal:  J Intellect Disabil Res       Date:  2017-10-13

10.  Do people with disabilities have difficulty finding a family physician?

Authors:  Mary Ann McColl; Alice Aiken; Michael Schaub
Journal:  Int J Environ Res Public Health       Date:  2015-04-28       Impact factor: 3.390

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