Literature DB >> 24001330

What is a biobank? Differing definitions among biobank stakeholders.

D M Shaw1, B S Elger, F Colledge.   

Abstract

While there is widespread agreement on the broad aspects of what constitutes a biobank, there is much disagreement regarding the precise definition. This research aimed to describe and analyze the definitions of the term biobank offered by various stakeholders in biobanking. Interviews were conducted with 36 biobanking stakeholders with international experience currently working in Switzerland. The results show that, in addition to the core concepts of biological samples and linked data, the planned use of samples (including sharing) is held to be a key criterion. It also emerges that some researchers avoid the term in order to circumvent certain regulatory guidelines, including informed consent requirements. Developments in the field of biobanking will be complicated if researchers are unaware, or deny that their collection is a biobank. A clear definition of the term is therefore an important step towards fostering collaboration amongst researchers, enabling them to more easily identify potential sources of samples.
© 2013 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.

Keywords:  biobank; definition; governance

Mesh:

Year:  2013        PMID: 24001330     DOI: 10.1111/cge.12268

Source DB:  PubMed          Journal:  Clin Genet        ISSN: 0009-9163            Impact factor:   4.438


  17 in total

1.  Returning a Research Participant's Genomic Results to Relatives: Perspectives from Managers of Two Distinct Research Biobanks.

Authors:  Gloria M Petersen; Brian Van Ness
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

2.  Human embryos and eggs: from long-term storage to biobanking.

Authors:  Françoise Baylis; Heather Widdows
Journal:  Monash Bioeth Rev       Date:  2015-12

3.  Perceptions of patients with inflammatory bowel diseases on biobanking.

Authors:  Millie D Long; R Jean Cadigan; Suzanne F Cook; Kaaren Haldeman; Kriste Kuczynski; Robert S Sandler; Christopher F Martin; Wenli Chen; Michael D Kappelman
Journal:  Inflamm Bowel Dis       Date:  2015-01       Impact factor: 5.325

Review 4.  Biobanking of Exosomes in the Era of Precision Medicine: Are We There Yet?

Authors:  Edna M Mora; Silvia Álvarez-Cubela; Elisa Oltra
Journal:  Int J Mol Sci       Date:  2015-12-24       Impact factor: 5.923

5.  The social dimension of biobanking: objectives and challenges.

Authors:  E V Bryzgalina; K Y Alasania; T A Varkhotov; S M Gavrilenko; E M Shkomova
Journal:  Life Sci Soc Policy       Date:  2017-09-13

6.  Consensus-Driven Development of a Terminology for Biobanking, the Duke Experience.

Authors:  Helena Ellis; Mary-Beth Joshi; Aenoch J Lynn; Anita Walden
Journal:  Biopreserv Biobank       Date:  2017-03-24       Impact factor: 2.300

7.  Business Planning in Biobanking: How to Implement a Tool for Sustainability.

Authors:  Mirella Ciaburri; Mariarosaria Napolitano; Elena Bravo
Journal:  Biopreserv Biobank       Date:  2016-11-29       Impact factor: 2.300

8.  Biobanks and scientists: supply and demand.

Authors:  Angelo Virgilio Paradiso; Maria Grazia Daidone; Vincenzo Canzonieri; Alfredo Zito
Journal:  J Transl Med       Date:  2018-05-22       Impact factor: 5.531

9.  From Ebola to COVID-19: emergency preparedness and response plans and actions in Lagos, Nigeria.

Authors:  Akin Abayomi; Mobolanle R Balogun; Munir Bankole; Aduragbemi Banke-Thomas; Bamidele Mutiu; John Olawepo; Morakinyo Senjobi; Oluwakemi Odukoya; Lanre Aladetuyi; Chioma Ejekam; Akinsanya Folarin; Madonna Emmanuel; Funke Amodu; Adesoji Ologun; Abosede Olusanya; Moses Bakare; Abiodun Alabi; Ismail Abdus-Salam; Eniola Erinosho; Abimbola Bowale; Sunday Omilabu; Babatunde Saka; Akin Osibogun; Ololade Wright; Jide Idris; Folasade Ogunsola
Journal:  Global Health       Date:  2021-07-09       Impact factor: 4.185

Review 10.  Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.

Authors:  Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2016-03-03       Impact factor: 8.929

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