Literature DB >> 23989528

Groups experiment with digital tools for patient consent.

Bridget M Kuehn.   

Abstract

Entities:  

Mesh：

Year:  2013        PMID： 23989528     DOI： 10.1001/jama.2013.194643

Source DB:  PubMed          Journal:  JAMA        ISSN： 0098-7484            Impact factor:   56.272


× No keyword cloud information.
  7 in total

1.  "Use it or lose it" as an alternative approach to protect genetic privacy in personalized medicine.

Authors:  Jennifer K Wagner; Jessica T Mozersky; Reed E Pyeritz
Journal:  Urol Oncol       Date:  2014-02       Impact factor: 3.498

Review 2.  Living laboratory: whole-genome sequencing as a learning healthcare enterprise.

Authors:  M Angrist; L Jamal
Journal:  Clin Genet       Date:  2014-09-06       Impact factor: 4.438

3.  Did I Tell You That? Ethical Issues Related to Using Computational Methods to Discover Non-Disclosed Patient Characteristics.

Authors:  Kenrick D Cato; Walter Bockting; Elaine Larson
Journal:  J Empir Res Hum Res Ethics       Date:  2016-07       Impact factor: 1.742

4.  Testing an online, dynamic consent portal for large population biobank research.

Authors:  Daniel B Thiel; Jodyn Platt; Tevah Platt; Susan B King; Nicole Fisher; Robert Shelton; Sharon L R Kardia
Journal:  Public Health Genomics       Date:  2014-10-30       Impact factor: 2.000

5.  Research participants' attitudes towards the confidentiality of genomic sequence information.

Authors:  Leila Jamal; Julie C Sapp; Katie Lewis; Tatiane Yanes; Flavia M Facio; Leslie G Biesecker; Barbara B Biesecker
Journal:  Eur J Hum Genet       Date:  2013-11-27       Impact factor: 4.246

6.  Personalized assent for pediatric biobanks.

Authors:  Noor A A Giesbertz; Karen Melham; Jane Kaye; Johannes J M van Delden; Annelien L Bredenoord
Journal:  BMC Med Ethics       Date:  2016-10-12       Impact factor: 2.652

7.  "Data is the new oil": citizen science and informed consent in an era of researchers handling of an economically valuable resource.

Authors:  Etain Quigley; Ingrid Holme; David M Doyle; Aileen K Ho; Eamonn Ambrose; Katie Kirkwood; Gerardine Doyle
Journal:  Life Sci Soc Policy       Date:  2021-12-10
  7 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.