Literature DB >> 24445287

"Use it or lose it" as an alternative approach to protect genetic privacy in personalized medicine.

Jennifer K Wagner1, Jessica T Mozersky1, Reed E Pyeritz2.   

Abstract

Entities:  

Keywords:  ELSI; Genetic information; Precision medicine; Privacy; Whole genome sequencing

Mesh:

Year:  2014        PMID: 24445287      PMCID: PMC3970576          DOI: 10.1016/j.urolonc.2013.09.016

Source DB:  PubMed          Journal:  Urol Oncol        ISSN: 1078-1439            Impact factor:   3.498


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  24 in total

1.  The coming explosion in genetic testing--is there a duty to recontact?

Authors:  Reed E Pyeritz
Journal:  N Engl J Med       Date:  2011-10-13       Impact factor: 91.245

2.  Multiple personal genomes await.

Authors:  J Craig Venter
Journal:  Nature       Date:  2010-04-01       Impact factor: 49.962

3.  The incidentalome: a threat to genomic medicine.

Authors:  Isaac S Kohane; Daniel R Masys; Russ B Altman
Journal:  JAMA       Date:  2006-07-12       Impact factor: 56.272

4.  Be prepared for the big genome leak.

Authors:  Steven E Brenner
Journal:  Nature       Date:  2013-06-13       Impact factor: 49.962

5.  Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider.

Authors:  Amy L McGuire; Rebecca Fisher; Paul Cusenza; Kathy Hudson; Mark A Rothstein; Deven McGraw; Stephen Matteson; John Glaser; Douglas E Henley
Journal:  Genet Med       Date:  2008-07       Impact factor: 8.822

Review 6.  From genetic privacy to open consent.

Authors:  Jeantine E Lunshof; Ruth Chadwick; Daniel B Vorhaus; George M Church
Journal:  Nat Rev Genet       Date:  2008-05       Impact factor: 53.242

7.  Realizing the opportunities of genomics in health care.

Authors:  Geoffrey S Ginsburg
Journal:  JAMA       Date:  2013-04-10       Impact factor: 56.272

8.  You never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative.

Authors:  Misha Angrist
Journal:  Per Med       Date:  2011-11       Impact factor: 2.512

Review 9.  Next-generation sequencing in the clinic: are we ready?

Authors:  Leslie G Biesecker; Wylie Burke; Isaac Kohane; Sharon E Plon; Ron Zimmern
Journal:  Nat Rev Genet       Date:  2012-11       Impact factor: 53.242

10.  The indispensable role of professional judgment in genomic medicine.

Authors:  Amy L McGuire; Laurence B McCullough; James P Evans
Journal:  JAMA       Date:  2013-04-10       Impact factor: 56.272

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  3 in total

1.  Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe.

Authors:  Shaman Narayanasamy; Varvara Markina; Adrian Thorogood; Adriana Blazkova; Mahsa Shabani; Bartha M Knoppers; Barbara Prainsack; Robert Koesters
Journal:  Front Genet       Date:  2020-05-06       Impact factor: 4.599

Review 2.  Using ncRNAs as Tools in Cancer Diagnosis and Treatment-The Way towards Personalized Medicine to Improve Patients' Health.

Authors:  Roberto Piergentili; Giuseppe Basile; Cristina Nocella; Roberto Carnevale; Enrico Marinelli; Renato Patrone; Simona Zaami
Journal:  Int J Mol Sci       Date:  2022-08-19       Impact factor: 6.208

Review 3.  Is there a duty to recontact in light of new genetic technologies? A systematic review of the literature.

Authors:  Ellen Otten; Mirjam Plantinga; Erwin Birnie; Marian A Verkerk; Anneke M Lucassen; Adelita V Ranchor; Irene M Van Langen
Journal:  Genet Med       Date:  2014-12-11       Impact factor: 8.822

  3 in total

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