Literature DB >> 23975378

How to measure quality of life in shared-housing arrangements? A comparison of dementia-specific instruments.

Johannes Gräske1, Hilde Verbeek, Paul Gellert, Thomas Fischer, Adelheid Kuhlmey, Karin Wolf-Ostermann.   

Abstract

PURPOSE: The appropriateness of existing quality of life (QoL) instruments in small-scale, homelike care facilities for people with dementia is as yet unknown. This study evaluated the psychometric properties of three QoL instruments in German shared-housing arrangements (SHA).
METHOD: A cross-sectional study was conducted in 36 SHA in Berlin to evaluate the acceptability, internal consistency, and validity (construct, convergent, and discriminant) of three QoL instruments: Alzheimer's Disease Related Quality of Life (ADRQL), Quality of Life-Alzheimer's Diseases (QoL-AD), and measuring QUAlity of LIfe in DEMentia (QUALIDEM).
RESULTS: A total of 104 residents (mean age 79.0 years, 73 % female) were included. All instruments showed good acceptability, with QUALIDEM the best. Adequate levels of internal consistency for the ADRQL and QoL-AD and most of the QUALIDEM domains were found. Validity of all the instruments measuring QoL was confirmed.
CONCLUSIONS: Study findings suggest that QUALIDEM is the preferred instrument to evaluate QoL of residents in SHA, especially due to the high acceptability. Further research is needed to develop and improve these existing measurements.

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Year:  2013        PMID: 23975378     DOI: 10.1007/s11136-013-0504-8

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  41 in total

1.  Estimating preference-based single index measures for dementia using DEMQOL and DEMQOL-Proxy.

Authors:  Donna Rowen; Brendan Mulhern; Sube Banerjee; Ben van Hout; Tracey A Young; Martin Knapp; Sarah C Smith; Donna L Lamping; John E Brazier
Journal:  Value Health       Date:  2012-01-27       Impact factor: 5.725

2.  Reliability and validity of the Dementia Quality of Life measure in nursing home residents.

Authors:  Efrat Adler; Barbara Resnick
Journal:  West J Nurs Res       Date:  2010-08       Impact factor: 1.967

3.  Dementia care redesigned: Effects of small-scale living facilities on residents, their family caregivers, and staff.

Authors:  Hilde Verbeek; Sandra M G Zwakhalen; Erik van Rossum; Ton Ambergen; Gertrudis I J M Kempen; Jan P H Hamers
Journal:  J Am Med Dir Assoc       Date:  2010-11       Impact factor: 4.669

4.  Measuring quality of life in dementia: purposes, goals, challenges and progress.

Authors:  Peter V Rabins; Betty S Black
Journal:  Int Psychogeriatr       Date:  2007-03-09       Impact factor: 3.878

5.  Use of the QOL-AD for measuring quality of life in people with severe dementia--the LASER-AD study.

Authors:  Juanita Hoe; Cornelius Katona; Brigitte Roch; Gill Livingston
Journal:  Age Ageing       Date:  2005-03       Impact factor: 10.668

6.  Neuropsychiatric symptoms predict change in quality of life of Alzheimer disease patients: a two-year follow-up study.

Authors:  Hiroshi Tatsumi; Shutaro Nakaaki; Katsuyoshi Torii; Yoshihiro Shinagawa; Norio Watanabe; Yoshie Murata; Junko Sato; Masaru Mimura; Toshiaki A Furukawa
Journal:  Psychiatry Clin Neurosci       Date:  2009-06       Impact factor: 5.188

7.  Validity, reliability, and feasibility of a quality of life questionnaire for people with dementia.

Authors:  M Dichter; S Bartholomeyczik; J Nordheim; W Achterberg; M Halek
Journal:  Z Gerontol Geriatr       Date:  2011-12       Impact factor: 1.281

8.  The Global Deterioration Scale for assessment of primary degenerative dementia.

Authors:  B Reisberg; S H Ferris; M J de Leon; T Crook
Journal:  Am J Psychiatry       Date:  1982-09       Impact factor: 18.112

9.  Factors related to perceived quality of life in patients with Alzheimer's disease: the patient's perception compared with that of caregivers.

Authors:  Josep Lluís Conde-Sala; Josep Garre-Olmo; Oriol Turró-Garriga; Secundino López-Pousa; Joan Vilalta-Franch
Journal:  Int J Geriatr Psychiatry       Date:  2009-06       Impact factor: 3.485

10.  Health outcomes and quality of life of residents of shared-housing arrangements compared to residents of special care units - results of the Berlin DeWeGE-study.

Authors:  Karin Wolf-Ostermann; Andreas Worch; Thomas Fischer; Ines Wulff; Johannes Gräske
Journal:  J Clin Nurs       Date:  2012-11       Impact factor: 3.036

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  8 in total

1.  Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study.

Authors:  Maartje S Klapwijk; Monique A A Caljouw; Marjoleine J C Pieper; Jenny T van der Steen; Wilco P Achterberg
Journal:  Dement Geriatr Cogn Disord       Date:  2016-09-27       Impact factor: 2.959

2.  Family visits in shared-housing arrangements for residents with dementia--a cross-sectional study on the impact on residents' quality of life.

Authors:  Johannes Gräske; Saskia Meyer; Andreas Worch; Karin Wolf-Ostermann
Journal:  BMC Geriatr       Date:  2015-02-25       Impact factor: 3.921

3.  Item distribution and inter-rater reliability of the German version of the quality of life in Alzheimer's disease scale (QoL-AD) proxy for people with dementia living in nursing homes.

Authors:  Martin Nikolaus Dichter; Eva-Maria Wolschon; Christian G G Schwab; Gabriele Meyer; Sascha Köpke
Journal:  BMC Geriatr       Date:  2018-06-19       Impact factor: 3.921

4.  Quality of life in persons with dementia using regional dementia care network services in Germany: a one-year follow-up study.

Authors:  Johannes Gräske; Annika Schmidt; Sylvia Schmidt; Franziska Laporte Uribe; Jochen René Thyrian; Bernhard Michalowsky; Susanne Schäfer-Walkmann; Karin Wolf-Ostermann
Journal:  Health Qual Life Outcomes       Date:  2018-09-14       Impact factor: 3.186

5.  More staff = better quality of life for people with dementia? results of a secondary data analysis in German shared-housing arrangements.

Authors:  Johannes Gräske; Annika Schmidt; Karin Wolf-Ostermann
Journal:  Isr J Health Policy Res       Date:  2019-02-20

6.  Use of cannabinoid-based medicine among older residential care recipients diagnosed with dementia: study protocol for a double-blind randomised crossover trial.

Authors:  Amanda Timler; Caroline Bulsara; Max Bulsara; Alistair Vickery; Jill Smith; Jim Codde
Journal:  Trials       Date:  2020-02-14       Impact factor: 2.279

7.  The DemWG study: reducing the risk of hospitalisation through a complex intervention for people with dementia and mild cognitive impairment (MCI) in German shared-housing arrangements: study protocol of a prospective, mixed-methods, multicentre, cluster-randomised controlled trial.

Authors:  André Kratzer; Jennifer Scheel; Karin Wolf-Ostermann; Annika Schmidt; Katrin Ratz; Carolin Donath; Elmar Graessel
Journal:  BMJ Open       Date:  2020-12-02       Impact factor: 2.692

8.  Quality of life ratings in dementia care--a cross-sectional study to identify factors associated with proxy-ratings.

Authors:  Johannes Gräske; Saskia Meyer; Karin Wolf-Ostermann
Journal:  Health Qual Life Outcomes       Date:  2014-12-12       Impact factor: 3.186

  8 in total

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