OBJECTIVE: To examine the role of primary care providers in informing and supporting families who receive positive screening results. DESIGN: Cross-sectional survey. SETTING: Ontario. PARTICIPANTS: Family physicians, pediatricians, and midwives involved in newborn care. MAIN OUTCOME MEASURES: Beliefs, practices, and barriers related to providing information to families who receive positive screening results for their newborns. RESULTS: A total of 819 providers participated (adjusted response rate of 60.9%). Of the respondents, 67.4% to 81.0% agreed that it was their responsibility to provide care to families of newborns who received positive screening results, and 64.2% to 84.8% agreed they should provide brochures or engage in general discussions about the identified conditions. Of the pediatricians, 67.3% endorsed having detailed discussions with families, but only 24.1% of family physicians and 27.6% of midwives endorsed this practice. All provider groups reported less involvement in information provision than they believed they should have. This discrepancy was most evident for family physicians: most stated that they should provide brochures (64.2%) or engage in general discussions (73.5%), but only a minority did so (15.3% and 27.7%, respectively). Family physicians reported insufficient time (42.2%), compensation (52.2%), and training (72.3%) to play this role, and only a minority agreed they were up to date (18.5%) or confident (16.5%) regarding newborn screening. CONCLUSION: Providers of primary newborn care see an information-provision role for themselves in caring for families who receive positive newborn screening results. Efforts to further define the scope of this role combined with efforts to mitigate existing barriers are warranted.
OBJECTIVE: To examine the role of primary care providers in informing and supporting families who receive positive screening results. DESIGN: Cross-sectional survey. SETTING: Ontario. PARTICIPANTS: Family physicians, pediatricians, and midwives involved in newborn care. MAIN OUTCOME MEASURES: Beliefs, practices, and barriers related to providing information to families who receive positive screening results for their newborns. RESULTS: A total of 819 providers participated (adjusted response rate of 60.9%). Of the respondents, 67.4% to 81.0% agreed that it was their responsibility to provide care to families of newborns who received positive screening results, and 64.2% to 84.8% agreed they should provide brochures or engage in general discussions about the identified conditions. Of the pediatricians, 67.3% endorsed having detailed discussions with families, but only 24.1% of family physicians and 27.6% of midwives endorsed this practice. All provider groups reported less involvement in information provision than they believed they should have. This discrepancy was most evident for family physicians: most stated that they should provide brochures (64.2%) or engage in general discussions (73.5%), but only a minority did so (15.3% and 27.7%, respectively). Family physicians reported insufficient time (42.2%), compensation (52.2%), and training (72.3%) to play this role, and only a minority agreed they were up to date (18.5%) or confident (16.5%) regarding newborn screening. CONCLUSION: Providers of primary newborn care see an information-provision role for themselves in caring for families who receive positive newborn screening results. Efforts to further define the scope of this role combined with efforts to mitigate existing barriers are warranted.
Authors: Wylie Burke; Louise Acheson; Jeffery Botkin; Kenneth Bridges; Ardis Davis; James Evans; Jaime Frias; James Hanson; Norman Kahn; Ruth Kahn; David Lanier; Linda E Pinsky; Nancy Press; Michele A Lloyd-Puryear; Eugene Rich; Nancy Stevens; Elizabeth Thomson; Steven Wartman; Modena Wilson Journal: Community Genet Date: 2002
Authors: Robin Z Hayeems; Fiona A Miller; Carolyn J Barg; Yvonne Bombard; Pranesh Chakraborty; Beth K Potter; Sarah Patton; Jessica Peace Bytautas; Karen Tam; Louise Taylor; Elizabeth Kerr; Christine Davies; Jennifer Milburn; Felix Ratjen; Astrid Guttmann; June C Carroll Journal: Can Fam Physician Date: 2021-06 Impact factor: 3.275
Authors: Margaret Lilley; Stephanie Hoang; Pamela Blumenschein; Ann-Marie Peturson; Iveta Sosova; Lauren Macneil; Ross Ridsdale; Susan Christian Journal: J Community Genet Date: 2020-10-26