Literature DB >> 23674174

Autonomy and the patient's right 'not to know' in clinical whole-genomic sequencing.

Anne Townsend1, Francois Rousseau2, Jan Friedman3, Shelin Adam3, Zoe Lohn3, Patricia Birch3.   

Abstract

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Mesh：

Year:  2013        PMID： 23674174      PMCID： PMC3865416          DOI： 10.1038/ejhg.2013.94

Source DB:  PubMed          Journal:  Eur J Hum Genet        ISSN： 1018-4813            Impact factor:   4.246


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  4 in total

1.  Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process.

Authors:  Carmen Ayuso; José M Millán; Marta Mancheño; Rafael Dal-Ré
Journal:  Eur J Hum Genet       Date:  2013-01-16       Impact factor: 4.246

2.  "I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.

Authors:  Anne Townsend; Shelin Adam; Patricia H Birch; Zoe Lohn; Francois Rousseau; Jan M Friedman
Journal:  Am J Med Genet A       Date:  2012-08-17       Impact factor: 2.802

3.  The right not to know: an autonomy based approach.

Authors:  R Andorno
Journal:  J Med Ethics       Date:  2004-10       Impact factor: 2.903

4.  Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.

Authors:  Jonathan S Berg; Muin J Khoury; James P Evans
Journal:  Genet Med       Date:  2011-06       Impact factor: 8.822
  4 in total
  3 in total

1.  Reply to Townsend et al.

Authors:  Carmen Ayuso; José M Millán; Marta Mancheño; Rafael Dal-Ré
Journal:  Eur J Hum Genet       Date:  2013-05-15       Impact factor: 4.246

2.  Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study.

Authors:  Elise T Bui; Natalie K Anderson; Layla Kassem; Francis J McMahon
Journal:  PLoS One       Date:  2014-07-01       Impact factor: 3.240

3.  Genetics and primary care: where are we headed?

Authors:  Vasiliki Rahimzadeh; Gillian Bartlett
Journal:  J Transl Med       Date:  2014-08-28       Impact factor: 5.531
  3 in total

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