Literature DB >> 23583171

Preserving personhood of individuals with advanced dementia: lessons from family caregivers.

Janice L Palmer1.   

Abstract

This article reports on a phenomenological study of 15 family caregivers who admitted their spouse or parent with probable Alzheimer's disease to long-term care. The caregivers were attuned to the needs, desires, moods and concerns of their family members with dementia; thus, they were attuned to personhood. Caregivers also reported observations of care by nurses and nursing staff. Observations were of individualized care and actions that promoted personhood and impoverished care delivered with minimal or no communication. These family caregivers' perspectives can inform the care of individuals with advanced dementia by nurses and nursing staff.
Copyright © 2013 Mosby, Inc. All rights reserved.

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Year:  2013        PMID: 23583171      PMCID: PMC4177850          DOI: 10.1016/j.gerinurse.2013.03.001

Source DB:  PubMed          Journal:  Geriatr Nurs        ISSN: 0197-4572            Impact factor:   2.361


  17 in total

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Journal:  Alzheimers Dement       Date:  2012       Impact factor: 21.566

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Journal:  J Gerontol Nurs       Date:  2011-01-21       Impact factor: 1.254

4.  The qualitative research audit trail: a complex collection of documentation.

Authors:  B L Rodgers; K V Cowles
Journal:  Res Nurs Health       Date:  1993-06       Impact factor: 2.228

5.  Life history collages: effects on nursing home staff caring for residents with dementia.

Authors:  Bill Buron
Journal:  J Gerontol Nurs       Date:  2010-12       Impact factor: 1.254

6.  A national study of the location of death for older persons with dementia.

Authors:  Susan L Mitchell; Joan M Teno; Susan C Miller; Vincent Mor
Journal:  J Am Geriatr Soc       Date:  2005-02       Impact factor: 5.562

7.  Caregivers' desired patterns of communication with nursing home staff- just TALKKK!

Authors:  Janice L Palmer
Journal:  J Gerontol Nurs       Date:  2012-02-15       Impact factor: 1.254

8.  Levels of personhood: a model for dementia care.

Authors:  Bill Buron
Journal:  Geriatr Nurs       Date:  2008 Sep-Oct       Impact factor: 2.361

9.  Expressions of personhood in Alzheimer's disease: an evaluation of research-based theatre as a pedagogical tool.

Authors:  Pia C Kontos; Gary Naglie
Journal:  Qual Health Res       Date:  2007-07

10.  Day-to-day care: the interplay of CNAs' views of residents & nursing home environments.

Authors:  Lucy Takesue Fisher; Margaret I Wallhagen
Journal:  J Gerontol Nurs       Date:  2008-11       Impact factor: 1.254

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  7 in total

1.  Cross-cultural conceptualization of a good end of life with dementia: a qualitative study.

Authors:  Mayumi Nishimura; Karen Harrison Dening; Elizabeth L Sampson; Edison Iglesias de Oliveira Vidal; Wilson Correia de Abreu; Sharon Kaasalainen; Yvonne Eisenmann; Laura Dempsey; Kirsten J Moore; Nathan Davies; Sascha R Bolt; Judith M M Meijers; Natashe Lemos Dekker; Mitsunori Miyashita; Miharu Nakanishi; Takeo Nakayama; Jenny T van der Steen
Journal:  BMC Palliat Care       Date:  2022-06-08       Impact factor: 3.113

2.  How Can Autonomy Be Maintained and Informal Care Improved for People With Dementia Living in Residential Care Facilities: A Systematic Literature Review.

Authors:  Jogé Boumans; Leonieke C van Boekel; Caroline A Baan; Katrien G Luijkx
Journal:  Gerontologist       Date:  2019-11-16

3.  Dementia and dignity of identity: A qualitative evidence synthesis.

Authors:  Cera E Cruise; Bonnie M Lashewicz
Journal:  Dementia (London)       Date:  2022-03-02

4.  Family's role in long-term care-A qualitative study of Finnish family members' experiences on supporting the functional ability of an older relative.

Authors:  Vilhelmiina Lehto-Niskala; Outi Jolanki; Marja Jylhä
Journal:  Health Soc Care Community       Date:  2021-12-30

5.  The meaning of living close to a person with Alzheimer disease.

Authors:  Mette Bergman; Caroline Graff; Maria Eriksdotter; Kerstin S Fugl-Meyer; Marja Schuster
Journal:  Med Health Care Philos       Date:  2016-09

6.  Entangled in uncertainty: The experience of living with dementia from the perspective of family caregivers.

Authors:  Els van Wijngaarden; Hugo van der Wedden; Zerline Henning; Rikke Komen; Anne-Mei The
Journal:  PLoS One       Date:  2018-06-13       Impact factor: 3.240

Review 7.  Dignifying and undignifying aspects of care for people with dementia: a narrative review.

Authors:  Wendy van der Geugten; Anne Goossensen
Journal:  Scand J Caring Sci       Date:  2019-11-21
  7 in total

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