PURPOSE: Preparation for caregiving is improved through engaged interactions between stroke family caregivers and healthcare providers throughout the care trajectory. We explored caregivers' perceptions about interactions with providers in rehabilitation, and how these experiences affected caregiver preparation. DESIGN: Seventeen caregivers, included in this grounded theory study, were interviewed during a rehabilitation stay and postdischarge. Data were analyzed using dimensional and comparative analysis. FINDINGS: Caregivers described interactions with providers on a continuum from collaborative to disconnected, and a range of strategies to enhance interactions. CONCLUSIONS: Caregivers want to be actively engaged with providers during inpatient rehabilitation and collaborative interactions enhance preparedness and care satisfaction. RELEVANCE: Family members should be assessed for caregiving capacity and interactions between providers and caregivers should be individualized to specific needs. Providers must also be aware that many caregivers are not active information seekers. They must engage caregivers who may not even know what questions to ask.
PURPOSE: Preparation for caregiving is improved through engaged interactions between stroke family caregivers and healthcare providers throughout the care trajectory. We explored caregivers' perceptions about interactions with providers in rehabilitation, and how these experiences affected caregiver preparation. DESIGN: Seventeen caregivers, included in this grounded theory study, were interviewed during a rehabilitation stay and postdischarge. Data were analyzed using dimensional and comparative analysis. FINDINGS: Caregivers described interactions with providers on a continuum from collaborative to disconnected, and a range of strategies to enhance interactions. CONCLUSIONS: Caregivers want to be actively engaged with providers during inpatient rehabilitation and collaborative interactions enhance preparedness and care satisfaction. RELEVANCE: Family members should be assessed for caregiving capacity and interactions between providers and caregivers should be individualized to specific needs. Providers must also be aware that many caregivers are not active information seekers. They must engage caregivers who may not even know what questions to ask.
Authors: Anne Visser-Meily; Marcel Post; Jan Willem Gorter; Steven Berdenis V Berlekom; Trudi Van Den Bos; Eline Lindeman Journal: Disabil Rehabil Date: 2006-12-30 Impact factor: 3.033
Authors: Barbara J Lutz; Mary Ellen Young; Kerry Rae Creasy; Crystal Martz; Lydia Eisenbrandt; Jarrett N Brunny; Christa Cook Journal: Gerontologist Date: 2017-10-01
Authors: Tamilyn Bakas; Nenette M Jessup; Susan M McLennon; Barbara Habermann; Michael T Weaver; Gwendolyn Morrison Journal: Disabil Rehabil Date: 2015-12-17 Impact factor: 3.033
Authors: Elton H Lobo; Anne Frølich; Lene J Rasmussen; Patricia M Livingston; John Grundy; Mohamed Abdelrazek; Finn Kensing Journal: Front Public Health Date: 2021-04-16
Authors: Sarah Blanton; Patricia C Clark; Robert H Lyles; George Cotsonis; Brian D Jones; Aimee Reiss; Steven L Wolf; Sandra Dunbar Journal: Pilot Feasibility Stud Date: 2019-04-25