Literature DB >> 23529944

Transitioning adolescents and young adults with a chronic health condition to adult healthcare - an exemplar program.

Karen Kaufmann Rauen1, Kathleen J Sawin, Tera Bartelt, William P Waring, Merle Orr, R Corey O'Connor.   

Abstract

Pediatric specialists have successfully improved the longevity and quality of life of many children with chronic health conditions. As these children reach adolescence and young adulthood, the scope of their concomitant medical problems often include those typically seen in older patients. As a result, these individuals need continuing quality health care in focused adult healthcare facilities. This article describes the effective partnership between pediatric and adult healthcare providers to create and implement an exemplar Spina Bifida Transition Program. The processes, strategies and tools discussed are likely to be useful to other healthcare professionals interested in developing pediatric to adult transition programs for adolescents and young adults with chronic health conditions.
© 2013 Association of Rehabilitation Nurses.

Entities:  

Mesh:

Year:  2013        PMID: 23529944      PMCID: PMC4986513          DOI: 10.1002/rnj.74

Source DB:  PubMed          Journal:  Rehabil Nurs        ISSN: 0278-4807            Impact factor:   1.625


  17 in total

1.  Understanding the role of health care providers during the transition of adolescents with disabilities and special health care needs.

Authors:  Sarah J Geenen; Laurie E Powers; Wayne Sells
Journal:  J Adolesc Health       Date:  2003-03       Impact factor: 5.012

2.  Correlates of functional status, self-management, and developmental competence outcomes in adolescents with spina bifida.

Authors:  Kathleen J Sawin; Constance F Buran; Timothy J Brei; Philip S Fastenau
Journal:  SCI Nurs       Date:  2003

Review 3.  Transition of adolescents with special health care needs: review and analysis of the literature.

Authors:  Cecily L Betz
Journal:  Issues Compr Pediatr Nurs       Date:  2004 Jul-Sep

Review 4.  Health care transitions among youth with disabilities or special health care needs: an ecological approach.

Authors:  Grace Wang; Barbara Burns McGrath; Carolyn Watts
Journal:  J Pediatr Nurs       Date:  2009-08-22       Impact factor: 2.145

Review 5.  Rehabilitation and medical management of the adult with spina bifida.

Authors:  Brad E Dicianno; Brad G Kurowski; Jennifer Marie J Yang; Michael B Chancellor; Ghassan K Bejjani; Andrea D Fairman; Nancy Lewis; Jennifer Sotirake
Journal:  Am J Phys Med Rehabil       Date:  2008-12       Impact factor: 2.159

6.  Improving transition from pediatric to adult cystic fibrosis care: lessons from a national survey of current practices.

Authors:  Suzanne Elizabeth McLaughlin; Marie Diener-West; Alka Indurkhya; Haya Rubin; Rebekah Heckmann; Michael Patrick Boyle
Journal:  Pediatrics       Date:  2008-05       Impact factor: 7.124

7.  Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views.

Authors:  M P Boyle; Z Farukhi; M L Nosky
Journal:  Pediatr Pulmonol       Date:  2001-12

Review 8.  Transition to adult health care for adolescents with spina bifida: research issues.

Authors:  Susan M Sawyer; Sarah Macnee
Journal:  Dev Disabil Res Rev       Date:  2010

9.  Health care transition: youth, family, and provider perspectives.

Authors:  John G Reiss; Robert W Gibson; Leslie R Walker
Journal:  Pediatrics       Date:  2005-01       Impact factor: 7.124

10.  Transition programs in cystic fibrosis centers: perceptions of team members.

Authors:  Patrick A Flume; Lloyd A Taylor; Deborah L Anderson; Sue Gray; David Turner
Journal:  Pediatr Pulmonol       Date:  2004-01
View more
  4 in total

1.  The National Spina Bifida Patient Registry: profile of a large cohort of participants from the first 10 clinics.

Authors:  Kathleen J Sawin; Tiebin Liu; Elisabeth Ward; Judy Thibadeau; Michael S Schechter; Minn M Soe; William Walker
Journal:  J Pediatr       Date:  2014-10-30       Impact factor: 4.406

2.  Quality of life related to urinary continence in adult spina bifida patients.

Authors:  Joceline S Liu; Caroline Dong; Jessica T Casey; Alyssa Greiman; Shubhra Mukherjee; Stephanie J Kielb
Journal:  Cent European J Urol       Date:  2015-03-13

3.  The need for specialized training for adults with congenital urologic conditions: differences in opinion among specialties.

Authors:  Joshua Roth; Sean Elliott; Konrad Szymanski; Mark Cain; Rosalia Misseri
Journal:  Cent European J Urol       Date:  2020-03-23

4.  Transitioning in hydrocephalus: Current practices in Canadian Paediatric Neurosurgery centres.

Authors:  Navneet Singh; Patrick J McDonald
Journal:  Paediatr Child Health       Date:  2018-03-19       Impact factor: 2.253

  4 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.