Literature DB >> 21035018

Health care transitions among youth with disabilities or special health care needs: an ecological approach.

Grace Wang1, Barbara Burns McGrath, Carolyn Watts.   

Abstract

This literature review of 46 articles uses the ecological model as a framework for organizing concepts and themes related to health care transition among youth with disabilities or special health care needs (SHCN). Transition involves interactions in immediate and distal environmental systems. Important interactions in immediate environments include those with family members, health care providers, and peers. Activities in distal systems include policies at the governmental and health system levels. The ecological model can help researchers and practitioners to design experimental interventions in multiple settings that ensure smooth transitions and support the well-being of youth with disabilities or SHCN.
Copyright © 2010 Elsevier Inc. All rights reserved.

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Year:  2009        PMID： 21035018      PMCID： PMC2994364          DOI： 10.1016/j.pedn.2009.07.003

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN： 0882-5963            Impact factor:   2.145


  54 in total

1.  Understanding the role of health care providers during the transition of adolescents with disabilities and special health care needs.

Authors:  Sarah J Geenen; Laurie E Powers; Wayne Sells
Journal:  J Adolesc Health       Date:  2003-03       Impact factor: 5.012

2.  Transition for youth with chronic conditions: primary care physicians' approaches.

Authors:  Peter Scal
Journal:  Pediatrics       Date:  2002-12       Impact factor: 7.124

3.  Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine.

Authors:  David S Rosen; Robert W Blum; Maria Britto; Susan M Sawyer; David M Siegel
Journal:  J Adolesc Health       Date:  2003-10       Impact factor: 5.012

4.  Self-reported health care self-care needs of transition-age youth: a pilot study.

Authors:  Cecily L Betz; Gay Redcay; Sylvia Tan
Journal:  Issues Compr Pediatr Nurs       Date:  2003 Jul-Sep

5.  Transition to adult care for adolescents with sickle cell disease: results of a national survey.

Authors:  Joseph Telfair; John E Ehiri; Penny S Loosier; Monica L Baskin
Journal:  Int J Adolesc Med Health       Date:  2004 Jan-Mar

6.  Health care for childhood cancer survivors: insights and perspectives from a Delphi panel of young adult survivors of childhood cancer..

Authors:  Brad J Zebrack; Debra A Eshelman; Melissa M Hudson; Ann C Mertens; Kelly L Cotter; Barbara M Foster; Lauren Loftis; Margaret Sozio; Kevin C Oeffinger
Journal:  Cancer       Date:  2004-02-15       Impact factor: 6.860

7.  Transition programs in cystic fibrosis centers: perceptions of team members.

Authors:  Patrick A Flume; Lloyd A Taylor; Deborah L Anderson; Sue Gray; David Turner
Journal:  Pediatr Pulmonol       Date:  2004-01

8.  Implementing community-based systems of services for children and youths with special health care needs: how well are we doing?

Authors:  Merle McPherson; Gloria Weissman; Bonnie B Strickland; Peter C van Dyck; Stephen J Blumberg; Paul W Newacheck
Journal:  Pediatrics       Date:  2004-05       Impact factor: 7.124

9.  Cystic fibrosis and the transition to adulthood.

Authors:  MaryKay Lannon Palmer; Laura S Boisen
Journal:  Soc Work Health Care       Date:  2002

10.  Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care.

Authors:  Julie Zack; Carolyn P Jacobs; Peter M Keenan; Kathy Harney; Elizabeth R Woods; Andrew A Colin; S Jean Emans
Journal:  Pediatr Pulmonol       Date:  2003-11
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  11 in total

Review 1.  Developmentally appropriate healthcare for young people: a scoping study.

Authors:  Albert Farre; Victoria Wood; Tim Rapley; Jeremy R Parr; Debbie Reape; Janet E McDonagh
Journal:  Arch Dis Child       Date:  2014-09-26       Impact factor: 3.791

2.  Transitioning adolescents and young adults with a chronic health condition to adult healthcare - an exemplar program.

Authors:  Karen Kaufmann Rauen; Kathleen J Sawin; Tera Bartelt; William P Waring; Merle Orr; R Corey O'Connor
Journal:  Rehabil Nurs       Date:  2013 Mar-Apr       Impact factor: 1.625

3.  Medical care transition planning and dental care use for youth with special health care needs during the transition from adolescence to young adulthood: a preliminary explanatory model.

Authors:  Donald L Chi
Journal:  Matern Child Health J       Date:  2014-05

4.  Health Care Disparities of Ohioans With Developmental Disabilities Across the Lifespan.

Authors:  Jessica A Prokup; Rebecca Andridge; Susan M Havercamp; Emily A Yang
Journal:  Ann Fam Med       Date:  2017-09       Impact factor: 5.166

5.  Parent and youth priorities during the transition to adulthood for youth with special health care needs and developmental disability.

Authors:  Roberta S Rehm; Elena Fuentes-Afflick; Lucille T Fisher; Catherine A Chesla
Journal:  ANS Adv Nurs Sci       Date:  2012 Jul-Sep       Impact factor: 1.824

6.  Adolescents and Young Adults With Spina Bifida Transitioning to Adulthood: A Comprehensive Community-Based Needs Assessment.

Authors:  Ashley M Jenkins; Diane Burns; Rhonda Horick; Brittany Spicer; Lisa M Vaughn; Jason Woodward
Journal:  Acad Pediatr       Date:  2021-02-10       Impact factor: 2.993

7.  Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care.

Authors:  Karen Cook; Harold Siden; Susan Jack; Lehana Thabane; Gina Browne
Journal:  Nurs Res Pract       Date:  2013-08-12

Review 8.  Transitioning adolescent and young adults with chronic disease and/or disabilities from paediatric to adult care services - an integrative review.

Authors:  Huaqiong Zhou; Pamela Roberts; Satvinder Dhaliwal; Phillip Della
Journal:  J Clin Nurs       Date:  2016-05-05       Impact factor: 3.036

9.  Why is transition between child and adult services a dangerous time for young people with chronic kidney disease? A mixed-method systematic review.

Authors:  David J Dallimore; Barbara Neukirchinger; Jane Noyes
Journal:  PLoS One       Date:  2018-08-02       Impact factor: 3.240

10.  "Because we all have to grow up": supporting adolescents in Uganda to develop core competencies to transition towards managing their HIV more independently.

Authors:  Chloe Lanyon; Janet Seeley; Stella Namukwaya; Victor Musiime; Sara Paparini; Helen Nakyambadde; Christine Matama; Anna Turkova; Sarah Bernays
Journal:  J Int AIDS Soc       Date:  2020-09       Impact factor: 5.396
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