Literature DB >> 23483724

When silence is not golden: Engaging adolescents and young adults in discussions around end-of-life care choices.

Lori Wiener1, Sima Zadeh, Leonard H Wexler, Maryland Pao.   

Abstract

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Year:  2013        PMID: 23483724      PMCID: PMC3601378          DOI: 10.1002/pbc.24490

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN: 1545-5009            Impact factor:   3.167


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  9 in total

1.  A faculty development course for end-of-life care.

Authors:  D E Weissman
Journal:  J Palliat Med       Date:  1998       Impact factor: 2.947

2.  Communicating with the dying child: An invitation to listening--a report of the SIOP working committee on psychosocial issues in pediatric oncology.

Authors:  Momcilo Jankovic; John J Spinetta; Giuseppe Masera; Ronald D Barr; Giulio J D'Angio; Claudia Epelman; Audrey Evans; Helen Vasiliatou Kosmidis; Tim Eden
Journal:  Pediatr Blood Cancer       Date:  2008-05       Impact factor: 3.167

Review 3.  Advanced care planning in children with life-limiting conditions - the Wishes Document.

Authors:  J Fraser; N Harris; A J Berringer; H Prescott; F Finlay
Journal:  Arch Dis Child       Date:  2010-02       Impact factor: 3.791

4.  End-of-life conversations: evolving practice and theory.

Authors:  D G Larson; D R Tobin
Journal:  JAMA       Date:  2000-09-27       Impact factor: 56.272

5.  Pediatric advance care planning.

Authors:  Bernard J Hammes; Judy Klevan; Michelle Kempf; Marc S Williams
Journal:  J Palliat Med       Date:  2005-08       Impact factor: 2.947

6.  Who will speak for me? Improving end-of-life decision-making for adolescents with HIV and their families.

Authors:  Maureen E Lyon; Patricia A Garvie; Robert McCarter; Linda Briggs; Jianping He; Lawrence J D'Angelo
Journal:  Pediatrics       Date:  2009-02       Impact factor: 7.124

7.  The FOOTPRINTS model of pediatric palliative care.

Authors:  Suzanne Toce; Mary Ann Collins
Journal:  J Palliat Med       Date:  2003-12       Impact factor: 2.947

8.  Allowing adolescents and young adults to plan their end-of-life care.

Authors:  Lori Wiener; Sima Zadeh; Haven Battles; Kristin Baird; Elizabeth Ballard; Janet Osherow; Maryland Pao
Journal:  Pediatrics       Date:  2012-10-08       Impact factor: 7.124

9.  Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? Is it helpful?

Authors:  Ezekiel J Emanuel; Diane L Fairclough; Pam Wolfe; Linda L Emanuel
Journal:  Arch Intern Med       Date:  2004-10-11
  9 in total
  18 in total

1.  Family-centred advanced care planning with adolescents living with HIV is perceived as important, helpful and meaningful.

Authors:  Lori Wiener; Abby R Rosenberg
Journal:  Evid Based Nurs       Date:  2017-06-13

Review 2.  Pediatric Palliative Care in Oncology.

Authors:  Jennifer Snaman; Sarah McCarthy; Lori Wiener; Joanne Wolfe
Journal:  J Clin Oncol       Date:  2020-02-05       Impact factor: 44.544

Review 3.  Ethics, Emotions, and the Skills of Talking About Progressing Disease With Terminally Ill Adolescents: A Review.

Authors:  Abby R Rosenberg; Joanne Wolfe; Lori Wiener; Maureen Lyon; Chris Feudtner
Journal:  JAMA Pediatr       Date:  2016-12-01       Impact factor: 16.193

4.  Parent-Child Communication and Adjustment Among Children With Advanced and Non-Advanced Cancer in the First Year Following Diagnosis or Relapse.

Authors:  Madelaine C Keim; Vicky Lehmann; Emily L Shultz; Adrien M Winning; Joseph R Rausch; Maru Barrera; Mary Jo Gilmer; Lexa K Murphy; Kathryn A Vannatta; Bruce E Compas; Cynthia A Gerhardt
Journal:  J Pediatr Psychol       Date:  2017-09-01

5.  Deeper Conversations Need Not Wait Until the End.

Authors:  Lori Wiener; Chris Feudtner; Pamela Hinds; Joanne Wolfe; Jennifer Mack
Journal:  J Clin Oncol       Date:  2015-08-17       Impact factor: 44.544

6.  Advance Directive Utilization Is Associated with Less Aggressive End-of-Life Care in Patients Undergoing Allogeneic Hematopoietic Cell Transplantation.

Authors:  Kathryn Cappell; Vandana Sundaram; Annie Park; Parveen Shiraz; Ridhi Gupta; Patricia Jenkins; Vyjeyanthi S J Periyakoil; Lori Muffly
Journal:  Biol Blood Marrow Transplant       Date:  2018-01-31       Impact factor: 5.742

Review 7.  Palliative Care for Cancer Survivors.

Authors:  Sydney M Dy; Sarina R Isenberg; Nebras Abu Al Hamayel
Journal:  Med Clin North Am       Date:  2017-11       Impact factor: 5.456

8.  Opening end-of-life discussions: how to introduce Voicing My CHOiCES™, an advance care planning guide for adolescents and young adults.

Authors:  Sima Zadeh; Maryland Pao; Lori Wiener
Journal:  Palliat Support Care       Date:  2014-03-13

9.  Supporting Family Decision-making for a Child Who Is Seriously Ill: Creating Synchrony and Connection.

Authors:  Vanessa N Madrigal; Katherine Patterson Kelly
Journal:  Pediatrics       Date:  2018-11       Impact factor: 7.124

10.  End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice.

Authors:  Ursula M Sansom-Daly; Claire E Wakefield; Pandora Patterson; Richard J Cohn; Abby R Rosenberg; Lori Wiener; Joanna E Fardell
Journal:  J Adolesc Young Adult Oncol       Date:  2019-10-29       Impact factor: 2.223

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