Literature DB >> 32023163

Pediatric Palliative Care in Oncology.

Jennifer Snaman1,2, Sarah McCarthy3, Lori Wiener4, Joanne Wolfe1,2.   

Abstract

Pediatric palliative care aims to alleviate suffering and improve the quality of life of children with serious disease and increase support for their parents and other family members. Integration of palliative care into the routine care of children, adolescents, and young adults with cancer has resulted in improved outcomes in patients and their families. The field of pediatric palliative oncology-encompassing primary palliative care provided by the multidisciplinary oncology team as well as subspecialty palliative care provided by the palliative care team for more complex cases-is unique from palliative care in adults given its focus on care of the child and the larger family. In this review, we focus on advancements in the specific domains within pediatric palliative oncology care including family-centered communication, assessment and management of physical symptoms and distress, psychosocial concerns, and spiritual considerations of the patient, parents, and siblings.

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Mesh:

Year:  2020        PMID: 32023163      PMCID: PMC7082155          DOI: 10.1200/JCO.18.02331

Source DB:  PubMed          Journal:  J Clin Oncol        ISSN: 0732-183X            Impact factor:   44.544


  99 in total

Review 1.  Palliative Care as a Standard of Care in Pediatric Oncology.

Authors:  Meaghann S Weaver; Katherine E Heinze; Katherine P Kelly; Lori Wiener; Robert L Casey; Cynthia J Bell; Joanne Wolfe; Amy M Garee; Anne Watson; Pamela S Hinds
Journal:  Pediatr Blood Cancer       Date:  2015-12       Impact factor: 3.167

2.  Delivery of care consistent with the psychosocial standards in pediatric cancer: Current practices in the United States.

Authors:  Michele A Scialla; Kimberly S Canter; Fang Fang Chen; E Anders Kolb; Eric Sandler; Lori Wiener; Anne E Kazak
Journal:  Pediatr Blood Cancer       Date:  2017-10-28       Impact factor: 3.167

Review 3.  Involving children and adolescents in medical decision making: developmental and clinical considerations.

Authors:  M A McCabe
Journal:  J Pediatr Psychol       Date:  1996-08

4.  A Summary of Pediatric Palliative Care Team Structure and Services as Reported by Centers Caring for Children with Cancer.

Authors:  Meaghann S Weaver; Abby R Rosenberg; Julia Tager; Christopher S Wichman; Lori Wiener
Journal:  J Palliat Med       Date:  2017-11-27       Impact factor: 2.947

5.  PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations.

Authors:  J W Varni; M Seid; P S Kurtin
Journal:  Med Care       Date:  2001-08       Impact factor: 2.983

6.  The duty of the physician to care for the family in pediatric palliative care: context, communication, and caring.

Authors:  Barbara L Jones; Nancy Contro; Kendra D Koch
Journal:  Pediatrics       Date:  2014-02       Impact factor: 7.124

7.  Strange Bedfellows No More: How Integrated Stem-Cell Transplantation and Palliative Care Programs Can Together Improve End-of-Life Care.

Authors:  Deena R Levine; Justin N Baker; Joanne Wolfe; Leslie E Lehmann; Christina Ullrich
Journal:  J Oncol Pract       Date:  2017-09       Impact factor: 3.840

8.  Acute stress in parents of children newly diagnosed with cancer.

Authors:  Anna Maria Patiño-Fernández; Ahna L H Pai; Melissa Alderfer; Wei-Ting Hwang; Anne Reilly; Anne E Kazak
Journal:  Pediatr Blood Cancer       Date:  2008-02       Impact factor: 3.167

9.  Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions.

Authors:  Abby R Rosenberg; Joanne Wolfe
Journal:  Lancet Child Adolesc Health       Date:  2017-07-24

10.  Patient-Reported Health-Related Quality-of-Life Assessment at the Point-of-Care with Adolescents and Young Adults with Cancer.

Authors:  Joseph R Henderson; Elizabeth Kiernan; Jennifer L McNeer; Angie Mae Rodday; Katherine Spencer; Tara O Henderson; Susan K Parsons
Journal:  J Adolesc Young Adult Oncol       Date:  2017-11-30       Impact factor: 2.223

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  14 in total

1.  The predictive trifecta? Fatigue, pain, and anxiety severity forecast the suffering profile of children with cancer.

Authors:  Meaghann S Weaver; Jichuan Wang; Katie A Greenzang; Molly McFatrich; Pamela S Hinds
Journal:  Support Care Cancer       Date:  2021-10-18       Impact factor: 3.603

2.  Voicing their choices: Advance care planning with adolescents and young adults with cancer and other serious conditions.

Authors:  Lori Wiener; Sima Bedoya; Haven Battles; Leonard Sender; Keri Zabokrtsky; Kristine A Donovan; Lora M A Thompson; Barbara B Lubrano di Ciccone; Margarita Bobonis Babilonia; Karen Fasciano; Paige Malinowski; Maureen Lyon; Jessica Thompkins; Corey Heath; Denise Velazquez; Karen Long-Traynor; Abigail Fry; Maryland Pao
Journal:  Palliat Support Care       Date:  2022-08

Review 3.  Pediatric palliative care for children with cancer: a concept analysis using Rodgers' evolutionary approach.

Authors:  Parvaneh Vasli; Maryam Karami; Hanieh AsadiParvar-Masouleh
Journal:  World J Pediatr       Date:  2022-09-13       Impact factor: 9.186

Review 4.  Relapsed acute myeloid leukemia in children and adolescents: current treatment options and future strategies.

Authors:  Sara Zarnegar-Lumley; Kenneth J Caldwell; Jeffrey E Rubnitz
Journal:  Leukemia       Date:  2022-06-06       Impact factor: 12.883

5.  "I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either": Comparing Bereaved Parents' Narratives With Nursing End-of-Life Assessments in the Pediatric Intensive Care Unit.

Authors:  Elizabeth G Broden; Pamela S Hinds; Allison V Werner-Lin; Martha A Q Curley
Journal:  J Hosp Palliat Nurs       Date:  2022-06-06       Impact factor: 2.131

6.  Psychosocial Impact of the War in Ukraine on Pediatric Cancer Patients and Their Families Receiving Oncological Care Outside Their Country at the Onset of Hostilities.

Authors:  Gamze Uğurluer; Enis Özyar; Funda Corapcioglu; Robert C Miller
Journal:  Adv Radiat Oncol       Date:  2022-04-02

Review 7.  Palliative Care in Pediatric Oncology and Hematopoietic Stem Cell Transplantation.

Authors:  Allison Uber; Jonathan S Ebelhar; Ashley Foster Lanzel; Anna Roche; Viviana Vidal-Anaya; Katharine E Brock
Journal:  Curr Oncol Rep       Date:  2022-01-21       Impact factor: 5.075

8.  A Stakeholder-Driven Qualitative Study to Define High Quality End-of-Life Care for Children With Cancer.

Authors:  Prasanna Ananth; Sophia Mun; Noora Reffat; Randall Li; Tannaz Sedghi; Madeline Avery; Jennifer Snaman; Cary P Gross; Xiaomei Ma; Joanne Wolfe
Journal:  J Pain Symptom Manage       Date:  2021-02-05       Impact factor: 5.576

9.  Decision-Making at End-of-Life for Children With Cancer: A Systematic Review and Meta-Bioethical Analysis.

Authors:  Luis Enrique Juárez-Villegas; Myriam M Altamirano-Bustamante; Marta M Zapata-Tarrés
Journal:  Front Oncol       Date:  2021-10-15       Impact factor: 6.244

Review 10.  Palliative Care in Paediatric Oncology: an Update.

Authors:  Naveen Salins; Sean Hughes; Nancy Preston
Journal:  Curr Oncol Rep       Date:  2022-01-21       Impact factor: 5.075

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