Una C Peplow1, Christine Carpenter. 1. Sandwell and West Birmingham Hospitals, NHS Trust, West Midlands, UK. una.peplow@nhs.net
Abstract
PURPOSE: The purpose of this study was to explore how parents of children with cerebral palsy, attending mainstream primary schools, perceive the relevance of, and adherence with, exercise programs. METHODS: A qualitative research with constructivist approach was used. Semi-structured interviews were conducted with parents. Open-ended questions related to their role in supporting the child's recommended exercise program. A thematic analysis approach was used to generate three main themes. FINDINGS: The themes were: exercise program management and delivery, perceived feelings and personal responses, and external impact and support. CONCLUSION: Exercise programs, to be implemented by families at home and support workers in school, are often characterized as prescriptive and focused on the child's impairment. These need to be integrated into a more holistic approach that considers family and child preferences. If this is to be achieved, parents' perspectives must play a legitimate part in evaluating the effectiveness of practice.
PURPOSE: The purpose of this study was to explore how parents of children with cerebral palsy, attending mainstream primary schools, perceive the relevance of, and adherence with, exercise programs. METHODS: A qualitative research with constructivist approach was used. Semi-structured interviews were conducted with parents. Open-ended questions related to their role in supporting the child's recommended exercise program. A thematic analysis approach was used to generate three main themes. FINDINGS: The themes were: exercise program management and delivery, perceived feelings and personal responses, and external impact and support. CONCLUSION: Exercise programs, to be implemented by families at home and support workers in school, are often characterized as prescriptive and focused on the child's impairment. These need to be integrated into a more holistic approach that considers family and child preferences. If this is to be achieved, parents' perspectives must play a legitimate part in evaluating the effectiveness of practice.
Authors: Laura W M E Beckers; Mellanie M E Geijen; Jos Kleijnen; Eugene A A Rameckers; Marlous L A P Schnackers; Rob J E M Smeets; Yvonne J M Janssen-Potten Journal: BMJ Open Date: 2020-10-06 Impact factor: 2.692
Authors: Laura Beckers; Jan van der Burg; Yvonne Janssen-Potten; Eugène Rameckers; Pauline Aarts; Rob Smeets Journal: BMC Pediatr Date: 2018-04-24 Impact factor: 2.125