Literature DB >> 23304413

Probing the benefits of real-time tracking during cancer care.

Rupa A Patel1, Predrag Klasnja, Andrea Hartzler, Kenton T Unruh, Wanda Pratt.   

Abstract

People with cancer experience many unanticipated symptoms and struggle to communicate them to clinicians. Although researchers have developed patient-reported outcome (PRO) tools to address this problem, such tools capture retrospective data intended for clinicians to review. In contrast, real-time tracking tools with visible results for patients could improve health outcomes and communication with clinicians, while also enhancing patients' symptom management. To understand potential benefits of such tools, we studied the tracking behaviors of 25 women with breast cancer. We provided 10 of these participants with a real-time tracking tool that served as a "technology probe" to uncover behaviors and benefits from voluntary use. Our findings showed that while patients' tracking behaviors without a tool were fragmented and sporadic, these behaviors with a tool were more consistent. Participants also used tracked data to see patterns among symptoms, feel psychosocial comfort, and improve symptom communication with clinicians. We conclude with design implications for future real-time tracking tools.

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Mesh:

Year:  2012        PMID: 23304413      PMCID: PMC3540467     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN: 1559-4076


  13 in total

Review 1.  A concept analysis of self-monitoring.

Authors:  Mary H Wilde; Suzanne Garvin
Journal:  J Adv Nurs       Date:  2007-02       Impact factor: 3.187

2.  Cancer-related fatigue, depressive symptoms, and functional status: a mediation model.

Authors:  Andrea M Barsevick; William N Dudley; Susan L Beck
Journal:  Nurs Res       Date:  2006 Sep-Oct       Impact factor: 2.381

3.  Symptoms during cancer pain treatment following WHO-guidelines: a longitudinal follow-up study of symptom prevalence, severity and etiology.

Authors:  T Meuser; C Pietruck; L Radbruch; P Stute; K A Lehmann; S Grond
Journal:  Pain       Date:  2001-09       Impact factor: 6.961

Review 4.  Barriers to cancer pain management: a review of empirical research.

Authors:  Ramune Jacobsen; Zita Liubarskiene; Claus Møldrup; Lona Christrup; Per Sjøgren; Jurgita Samsanaviciene
Journal:  Medicina (Kaunas)       Date:  2009       Impact factor: 2.430

5.  Patients' memories of painful medical treatments: real-time and retrospective evaluations of two minimally invasive procedures.

Authors:  Donald A Redelmeier; Daniel Kahneman
Journal:  Pain       Date:  1996-07       Impact factor: 6.961

6.  Designing tailored Internet support to assist cancer patients in illness management.

Authors:  Cornelia M Ruland; Annette Jeneson; Trine Andersen; Roar Andersen; Laura Slaughter; Shirley M Moore
Journal:  AMIA Annu Symp Proc       Date:  2007-10-11

7.  How well do medical oncologists' perceptions reflect their patients' reported physical and psychosocial problems? Data from a survey of five oncologists.

Authors:  S Newell; R W Sanson-Fisher; A Girgis; A Bonaventura
Journal:  Cancer       Date:  1998-10-15       Impact factor: 6.860

8.  Symptom-monitoring behaviors of rural cancer patients and survivors.

Authors:  Carol J Hermansen-Kobulnicky
Journal:  Support Care Cancer       Date:  2008-12-23       Impact factor: 3.603

9.  Long-term toxicity monitoring via electronic patient-reported outcomes in patients receiving chemotherapy.

Authors:  Ethan Basch; Alexia Iasonos; Allison Barz; Ann Culkin; Mark G Kris; David Artz; Paul Fearn; John Speakman; Rena Farquhar; Howard I Scher; Mary McCabe; Deborah Schrag
Journal:  J Clin Oncol       Date:  2007-12-01       Impact factor: 44.544

10.  Confronting chemobrain: an in-depth look at survivors' reports of impact on work, social networks, and health care response.

Authors:  Nelli Boykoff; Mona Moieni; Saskia Karen Subramanian
Journal:  J Cancer Surviv       Date:  2009-09-16       Impact factor: 4.442

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  13 in total

1.  Sharing Patient-Generated Data in Clinical Practices: An Interview Study.

Authors:  Haining Zhu; Joanna Colgan; Madhu Reddy; Eun Kyoung Choe
Journal:  AMIA Annu Symp Proc       Date:  2017-02-10

Review 2.  Patient-reported outcome use in oncology: a systematic review of the impact on patient-clinician communication.

Authors:  L Y Yang; D S Manhas; A F Howard; R A Olson
Journal:  Support Care Cancer       Date:  2017-08-28       Impact factor: 3.603

3.  Care Partnerships: Toward Technology to Support Teens' Participation in Their Health Care.

Authors:  Matthew K Hong; Lauren Wilcox; Daniel Machado; Thomas A Olson; Stephen F Simoneaux
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2016-05-07

4.  Supporting Patient-Provider Collaboration to Identify Individual Triggers using Food and Symptom Journals.

Authors:  Jessica Schroeder; Jane Hoffswell; Chia-Fang Chung; James Fogarty; Sean Munson; Jasmine Zia
Journal:  CSCW Conf Comput Support Coop Work       Date:  2017-02-25

5.  Boundary Negotiating Artifacts in Personal Informatics: Patient-Provider Collaboration with Patient-Generated Data.

Authors:  Chia-Fang Chung; Kristin Dew; Allison Cole; Jasmine Zia; James Fogarty; Julie A Kientz; Sean A Munson
Journal:  CSCW Conf Comput Support Coop Work       Date:  2016-02-27

6.  Design Considerations for Post-Acute Care mHealth: Patient Perspectives.

Authors:  Patrick Sanger; Andrea Hartzler; William B Lober; Heather L Evans; Wanda Pratt
Journal:  AMIA Annu Symp Proc       Date:  2014-11-14

7.  The impact of electronic health record-integrated patient-generated health data on clinician burnout.

Authors:  Jiancheng Ye
Journal:  J Am Med Inform Assoc       Date:  2021-04-23       Impact factor: 4.497

8.  The cancer experience map: an approach to including the patient voice in supportive care solutions.

Authors:  Leslie Kelly Hall; Breanne F Kunz; Elizabeth V Davis; Rose I Dawson; Ryan S Powers
Journal:  J Med Internet Res       Date:  2015-05-28       Impact factor: 5.428

9.  More Than Telemonitoring: Health Provider Use and Nonuse of Life-Log Data in Irritable Bowel Syndrome and Weight Management.

Authors:  Chia-Fang Chung; Jonathan Cook; Elizabeth Bales; Jasmine Zia; Sean A Munson
Journal:  J Med Internet Res       Date:  2015-08-21       Impact factor: 5.428

10.  Information Quality Challenges of Patient-Generated Data in Clinical Practice.

Authors:  Peter West; Max Van Kleek; Richard Giordano; Mark Weal; Nigel Shadbolt
Journal:  Front Public Health       Date:  2017-11-01
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