Literature DB >> 23219848

The art of letting go: referral to palliative care and its discontents.

Alex Broom1, Emma Kirby, Phillip Good, Julia Wootton, Jon Adams.   

Abstract

Accompanying patients from active treatment towards specialist palliative care is a complex sphere of clinical practice that can be fraught with interpersonal and emotional challenges. While medical specialists are expected to break 'bad news' to their patients and ease their transitions to specialist palliative care if required, few have received formal training in such interpersonal complexities. Furthermore, there also often exists clinical ambiguity around whether to continue active treatment vis-à-vis refocusing on quality of life and palliation. In this paper we explore the experiences of twenty Australian medical specialists, focussing on issues such as: dilemmas around when and how to talk about dying and palliation; the art of referral and practices of representation; and, accounts of emotion and subjective influences on referral. The results illustrate how this transitional realm can be embedded in emotions, relationships and the allure of potentially life-prolonging intervention. We argue that the practice of referral should be understood as a relational and contextually-bound process.
Copyright © 2012 Elsevier Ltd. All rights reserved.

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Year:  2012        PMID: 23219848     DOI: 10.1016/j.socscimed.2012.11.008

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  8 in total

1.  Perspectives on Palliative Care in Cancer Clinical Trials: Diverse Meanings from Multidisciplinary Cancer Care Providers.

Authors:  Michelle A Mollica; Erin E Kent; Kathleen M Castro; Erin M Ellis; Rebecca A Ferrer; Angela L Falisi; Anna Gaysynsky; Grace C Huang; Martha A Palan; Wen-Ying Sylvia Chou
Journal:  J Palliat Med       Date:  2018-02-01       Impact factor: 2.947

2.  The role and significance of nurses in managing transitions to palliative care: a qualitative study.

Authors:  Emma Kirby; Alex Broom; Phillip Good
Journal:  BMJ Open       Date:  2014-09-30       Impact factor: 2.692

3.  A Qualitative Study of Medical Oncologists' Experiences of Their Profession and Workforce Sustainability.

Authors:  Alex Broom; W K Tim Wong; Emma Kirby; David Sibbritt; Deme Karikios; Rosemary Harrup; Zarnie Lwin
Journal:  PLoS One       Date:  2016-11-30       Impact factor: 3.240

4.  Integration and activity of hospital-based palliative care consultation teams: the INSIGHT multicentric cohort study.

Authors:  Pascale Vinant; Ingrid Joffin; Laure Serresse; Sophie Grabar; Hélène Jaulmes; Malika Daoud; Gabriel Abitbol; Pascale Fouassier; Isabelle Triol; Sylvie Rostaing; Marie-Dominique Brette; Isabelle Colombet
Journal:  BMC Palliat Care       Date:  2017-05-30       Impact factor: 3.234

5.  Determinants of hospital death in haematological cancers: findings from a qualitative study.

Authors:  Dorothy McCaughan; Eve Roman; Alexandra G Smith; Anne Garry; Miriam Johnson; Russell Patmore; Martin Howard; Debra A Howell
Journal:  BMJ Support Palliat Care       Date:  2017-06-29       Impact factor: 3.568

6.  Palliative and End-of-Life Care in the Home in Regional/Rural Victoria, Australia: The Role and Lived Experience of Primary Carers.

Authors:  Elizabeth M Miller; Joanne E Porter; Rebecca Peel
Journal:  SAGE Open Nurs       Date:  2021-09-14

7.  A sociology of precision-in-practice: The affective and temporal complexities of everyday clinical care.

Authors:  Katherine Kenny; Alex Broom; Alexander Page; Barbara Prainsack; Claire E Wakefield; Malinda Itchins; Zarnie Lwin; Mustafa Khasraw
Journal:  Sociol Health Illn       Date:  2021-11-29

8.  "It doesn't exist…": negotiating palliative care from a culturally and linguistically diverse patient and caregiver perspective.

Authors:  Emma Kirby; Zarnie Lwin; Katherine Kenny; Alex Broom; Holi Birman; Phillip Good
Journal:  BMC Palliat Care       Date:  2018-07-02       Impact factor: 3.234

  8 in total

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