Literature DB >> 23104089

Philosophical perspectives on response shift.

Leah McClimans1, Jerome Bickenbach, Marjan Westerman, Licia Carlson, David Wasserman, Carolyn Schwartz.   

Abstract

PURPOSE: This paper brings a philosophical perspective to response shift research with the aim of raising new critical questions, clarifying some of the concepts employed, and providing a philosophical context within which to critically examine the assumptions that shape the field.
METHODS: This critical analysis aims to reveal assumptions and clarify concepts and/or definitions that undergird methodological practice and theory.
RESULTS: We bring attention to the distinction of weak and strong evaluations, and the implications and consequences for construct validity and for designing patient-reported outcome measures (PROMs). We then consider the epistemology of PROMs, suggesting that they are better suited to a social constructivist approach than a scientific realist one. Finally, we examine the relationship between disability and response shift, arguing that in at least some cases, response shifts should not be understood as 'measurement bias'.
CONCLUSION: Our analysis reveals various concerns and further questions related to the role that substantive values play in the assessment of QoL. It also draws response shift into a wider arena, with broader issues of interpretation, self-evaluation, the meaning of the 'good life', and the status and legitimacy we accord to various scientific methods.

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Year:  2012        PMID: 23104089     DOI: 10.1007/s11136-012-0300-x

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  13 in total

1.  Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research.

Authors:  C E Schwartz; M A Sprangers
Journal:  Soc Sci Med       Date:  1999-06       Impact factor: 4.634

2.  Listening to respondents: a qualitative assessment of the Short-Form 36 Health Status Questionnaire.

Authors:  Sara Mallinson
Journal:  Soc Sci Med       Date:  2002-01       Impact factor: 4.634

3.  Evolutionary ethics: can values change.

Authors:  K C Calman
Journal:  J Med Ethics       Date:  2004-08       Impact factor: 2.903

4.  Abandoning the language of "response shift": a plea for conceptual clarity in distinguishing scale recalibration from true changes in quality of life.

Authors:  Peter A Ubel; Yvette Peeters; Dylan Smith
Journal:  Qual Life Res       Date:  2010-01-29       Impact factor: 4.147

Review 5.  Response shift theory: important implications for measuring quality of life in people with disability.

Authors:  Carolyn E Schwartz; Elena M Andresen; Margaret A Nosek; Gloria L Krahn
Journal:  Arch Phys Med Rehabil       Date:  2007-04       Impact factor: 3.966

6.  Formal definitions of measurement bias and explanation bias clarify measurement and conceptual perspectives on response shift.

Authors:  Frans J Oort; Mechteld R M Visser; Mirjam A G Sprangers
Journal:  J Clin Epidemiol       Date:  2009-06-21       Impact factor: 6.437

7.  A theoretical framework for patient-reported outcome measures.

Authors:  Leah McClimans
Journal:  Theor Med Bioeth       Date:  2010-06

8.  Interpretability, validity, and the minimum important difference.

Authors:  Leah McClimans
Journal:  Theor Med Bioeth       Date:  2011-12

9.  Small-cell lung cancer patients are just 'a little bit' tired: response shift and self-presentation in the measurement of fatigue.

Authors:  Marjan J Westerman; Anne-Mei The; Mirjam A G Sprangers; Harry J M Groen; Gerrit van der Wal; Tony Hak
Journal:  Qual Life Res       Date:  2007-02-15       Impact factor: 4.147

10.  Listen to their answers! Response behaviour in the measurement of physical and role functioning.

Authors:  Marjan J Westerman; Tony Hak; Mirjam A G Sprangers; Harry J M Groen; Gerrit van der Wal; Anne-Mei The
Journal:  Qual Life Res       Date:  2008-05       Impact factor: 4.147

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  14 in total

1.  Are Single-Item Global Ratings Useful for Assessing Health Status?

Authors:  Cathaleene Macias; Paul B Gold; Dost Öngür; Bruce M Cohen; Trishan Panch
Journal:  J Clin Psychol Med Settings       Date:  2015-10-22

2.  Quality of Life and Value Assessment in Health Care.

Authors:  Alicia Hall
Journal:  Health Care Anal       Date:  2020-03

3.  Interpretation and use of patient-reported outcome measures through a philosophical lens.

Authors:  Jae Yung Kwon; Sally Thorne; Richard Sawatzky
Journal:  Qual Life Res       Date:  2018-11-19       Impact factor: 4.147

4.  Exploration of the content validity and feasibility of the EQ-5D-3L, ICECAP-O and ASCOT in older adults.

Authors:  Karen M van Leeuwen; Aaltje P D Jansen; Maaike E Muntinga; Judith E Bosmans; Marjan J Westerman; Maurits W van Tulder; Henriette E van der Horst
Journal:  BMC Health Serv Res       Date:  2015-05-15       Impact factor: 2.655

5.  Spiritual Well-being in Patients With Metastatic Colorectal Cancer Receiving Noncurative Chemotherapy: A Qualitative Study.

Authors:  Gudrun Rohde; Christian Kersten; Ingvild Vistad; Terje Mesel
Journal:  Cancer Nurs       Date:  2017 May/Jun       Impact factor: 2.592

Review 6.  What does quality of life mean to older adults? A thematic synthesis.

Authors:  Karen M van Leeuwen; Miriam S van Loon; Fenna A van Nes; Judith E Bosmans; Henrica C W de Vet; Johannes C F Ket; Guy A M Widdershoven; Raymond W J G Ostelo
Journal:  PLoS One       Date:  2019-03-08       Impact factor: 3.240

7.  Correspondence of directly reported and recalled health-related quality of life in a large heterogeneous sample of trauma patients.

Authors:  I Spronk; A J L M Geraerds; G J Bonsel; M A C de Jongh; S Polinder; J A Haagsma
Journal:  Qual Life Res       Date:  2019-07-30       Impact factor: 4.147

8.  Adaptation of the Patient Benefit Assessment Scale for Hospitalised Older Patients: development, reliability and validity of the P-BAS picture version.

Authors:  Maria Johanna van der Kluit; Geke J Dijkstra; Sophia E de Rooij
Journal:  BMC Geriatr       Date:  2022-01-11       Impact factor: 3.921

9.  Quality of life in a broader perspective: Does ASCOT reflect the capability approach?

Authors:  M S van Loon; K M van Leeuwen; R W J G Ostelo; J E Bosmans; G A M Widdershoven
Journal:  Qual Life Res       Date:  2017-12-14       Impact factor: 4.147

10.  Precedent Autonomy and Surrogate Decisionmaking After Severe Brain Injury.

Authors:  Mackenzie Graham
Journal:  Camb Q Healthc Ethics       Date:  2020-10       Impact factor: 1.284

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