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Literature DB >> 22992427

Parental decision making for children with cancer at the end of life: a meta-ethnography.

Abstract

Parents of pediatric oncology patients are faced with difficult decisions when their child reaches the end of life. For health care providers to provide optimal care, they must understand parents' perspectives and preferences in end-of-life decision making. Therefore, this article provides a systematic review of the literature on the end-of-life decision making of parents of children with cancer as well as recommendations for practice and future research. Parents participated in surveys, focus groups, participant observation, and interviews to help researchers understand the expectations, hopes, fears, and values that guide their decision making. Common themes were patient-provider communication, extending time, and understanding prognosis.

Entities: Chemical

Mesh：

Year: 2012 PMID： 22992427 PMCID： PMC8970687 DOI： 10.1177/1043454212456905

Source DB: PubMed Journal: J Pediatr Oncol Nurs ISSN： 1043-4542 Impact factor: 1.636

18 in total

1. Decision making by parents and healthcare professionals when considering continued care for pediatric patients with cancer.

Authors: P S Hinds; L Oakes; W Furman; P Foppiano; M S Olson; A Quargnenti; J Gattuso; B Powell; D K Srivastava; D Jayawardene; J T Sandlund; C Strong
Journal: Oncol Nurs Forum Date: 1997-10 Impact factor: 2.172

2. Parent and physician perspectives on quality of care at the end of life in children with cancer.

Authors: Jennifer W Mack; Joanne M Hilden; Jan Watterson; Caron Moore; Brian Turner; Holcombe E Grier; Jane C Weeks; Joanne Wolfe
Journal: J Clin Oncol Date: 2005-09-19 Impact factor: 44.544

3. Factors influencing parental readiness to let their child with cancer die.

Authors: Marijke C Kars; Mieke H F Grypdonck; Auke Beishuizen; Esther M M Meijer-van den Bergh; Johannes J M van Delden
Journal: Pediatr Blood Cancer Date: 2010-07-01 Impact factor: 3.167

Review 4. NIH State-of-the-Science Conference Statement on improving end-of-life care.

Authors:
Journal: NIH Consens State Sci Statements Date: 2004 Dec 6-8

5. Understanding of prognosis among parents of children who died of cancer: impact on treatment goals and integration of palliative care.

Authors: J Wolfe; N Klar; H E Grier; J Duncan; S Salem-Schatz; E J Emanuel; J C Weeks
Journal: JAMA Date: 2000-11-15 Impact factor: 56.272

6. Parental decision making in pediatric cancer end-of-life care: using focus group methodology as a prephase to seek participant design input.

Authors: Deborah Tomlinson; Michael Capra; Janet Gammon; Jocelyne Volpe; Maru Barrera; Pamela S Hinds; Eric Bouffet; Mark L Geenberg; Sylvain Baruchel; Hilary A Llewellyn-Thomas; Lillian Sung
Journal: Eur J Oncol Nurs Date: 2005-12-27 Impact factor: 2.398

7. Decision making by parents of children with incurable cancer who opt for enrollment on a phase I trial compared with choosing a do not resuscitate/terminal care option.

Authors: Scott H Maurer; Pamela S Hinds; Sheri L Spunt; Wayne L Furman; Javier R Kane; Justin N Baker
Journal: J Clin Oncol Date: 2010-05-24 Impact factor: 44.544

8. "Trying to be a good parent" as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children.

Authors: Pamela S Hinds; Linda L Oakes; Judy Hicks; Brent Powell; Deo Kumar Srivastava; Sheri L Spunt; Joann Harper; Justin N Baker; Nancy K West; Wayne L Furman
Journal: J Clin Oncol Date: 2009-10-05 Impact factor: 44.544

9. Understanding of prognosis and goals of care among couples whose child died of cancer.

Authors: Kelly E Edwards; Bridget A Neville; Earl F Cook; Sarah H Aldridge; Veronica Dussel; Joanne Wolfe
Journal: J Clin Oncol Date: 2008-03-10 Impact factor: 44.544

10. Conducting a meta-ethnography of qualitative literature: lessons learnt.

Authors: Salla Atkins; Simon Lewin; Helen Smith; Mark Engel; Atle Fretheim; Jimmy Volmink
Journal: BMC Med Res Methodol Date: 2008-04-16 Impact factor: 4.615

7 in total

1. Determinants of access to pediatric hospice care: A conceptual model.

Authors: Lisa C Lindley
Journal: J Hosp Palliat Nurs Date: 2015-04 Impact factor: 1.918

2. A profile of children with complex chronic conditions at end of life among Medicaid beneficiaries: implications for health care reform.

Authors: Lisa C Lindley; Maureen E Lyon
Journal: J Palliat Med Date: 2013-10-08 Impact factor: 2.947

3. Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: A realist review.

Authors: Sarah Mitchell; Karina Bennett; Andrew Morris; Anne-Marie Slowther; Jane Coad; Jeremy Dale
Journal: Palliat Med Date: 2019-08-21 Impact factor: 4.762

4. A meta-ethnographic study of fathers' experiences of caring for a child with a life-limiting illness.

Authors: Gianina-Ioana Postavaru; Helen Swaby; Rabbi Swaby
Journal: Palliat Med Date: 2020-12-18 Impact factor: 4.762

5. Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making.

Authors: Danai Papadatou; Vasiliki Kalliani; Eleni Karakosta; Panagiota Liakopoulou; Myra Bluebond-Langner
Journal: Palliat Med Date: 2020-12-14 Impact factor: 4.762

Review 6. A conceptual model of barriers and facilitators to primary clinical teams requesting pediatric palliative care consultation based upon a narrative review.

Authors: Jennifer K Walter; Douglas L Hill; Concetta DiDomenico; Shefali Parikh; Chris Feudtner
Journal: BMC Palliat Care Date: 2019-12-21 Impact factor: 3.234

Review 7. Palliative Care in Paediatric Oncology: an Update.

Authors: Naveen Salins; Sean Hughes; Nancy Preston
Journal: Curr Oncol Rep Date: 2022-01-21 Impact factor: 5.075

7 in total