Literature DB >> 22918672

Can patients really make an informed choice? An evaluation of the availability of online information about consultant surgeons in the United Kingdom.

Sarkhell Saadi Radha1, Nick Caplan, Alan St Clair Gibson, Michael Shenouda, Sujith Konan, Deiary Kader.   

Abstract

OBJECTIVES: The National Health Service (NHS) 'Choose and Book' online scheme, which allows patients to select the location and time of hospital appointments, has now been extended to include the option for patients to select a specific consultant to carry out any necessary treatment. The aim of this study was to determine whether there is sufficient online information about consultants or consultant-led teams for patients to make an informed choice regarding a specific consultant.
DESIGN: A web-based analysis of the availability of information.
SETTING: North of England. PARTICIPANTS: Two hundred websites of orthopaedic surgeons. MAIN OUTCOME MEASURES: The websites were analysed using a bespoke template that took into account recommendations of the 2010 UK Government white paper. Each website was scored in relation to the availability of specific content relating to each surgeon.
RESULTS: The majority of websites detailed authorship information (73.2%), level of professional qualification (98.5%) and area of general (73.7%) and specialist (93.3%) interest. However, approximately 50% of websites provided no information in relation to update cycle, involvement in teaching or research and patient satisfaction. Only five (2.6%) of the websites presented death rates, and none indicated morbidity rates.
CONCLUSIONS: For patients to be able to make informed choices about their healthcare, surgeons need to ensure that sufficient information is available online, according to the identified limitations of the websites investigated in this study.

Entities:  

Year:  2012        PMID: 22918672      PMCID: PMC4400617          DOI: 10.1136/bmjopen-2012-001203

Source DB:  PubMed          Journal:  BMJ Open        ISSN: 2044-6055            Impact factor:   2.692


The National Health Service ‘Choose and Book’ scheme has been in operation for nearly a decade. The success of the ‘Choose and Book’ policy depends on an adequate amount of online information being available to patients on individual consultants and consultant-led teams. The aim of this study was to investigate the availability of online information relating to consultants and consultant-led teams. The majority of the websites examined included general information, such as each surgeon's professional qualification and areas of interest. Only half of the websites included more detailed information about involvement in teaching or research, or patient satisfaction. This study was the first to examine the availability of online information relating to individual consultants in the UK. The study focused on the websites of orthopaedic surgeons in the north of England, and future studies should extend this analysis to other fields of medicine, and across a wider geographic area. Future comparisons should also be made to information pertaining to private providers.

Introduction

The Department of Health's publication ‘Better Information, Better Choices, Better Health: Putting Information at the Centre of Health’ stressed the need for high-quality information about National Health Service (NHS) organisations to be available for patients. This includes accurate, comprehensive and understandable information, along with provision for ease of accessibility.1 The quality of information available is also central to the overall quality of patient experience within the NHS,2 suggesting the importance of healthcare providers presenting all the necessary information appropriately, including accurate and relevant data and sources. The electronic ‘Choose and Book’ referral system has been in operation since 2004.3 This service was originally intended to give patients in England a choice of place, date and time of their first outpatient appointment. The government recently extended this service to include choosing between individual consultant-led teams.3 In order for patients to make such a choice, it is essential that they have high-quality, comprehensive and easily accessible information about relevant consultants available to them, thus making their choice appropriately informed. A number of online information resources have been developed, which allow patients to compare various aspects of different hospitals.4 However, patients have reported that they would find information about individual specialties or surgeons more useful in choosing their healthcare provider for elective surgery.5 Such information, including surgical outcomes, has been available since 2004 in cardiac surgery.6 In other fields of medicine, where such information is not so readily available, patients will have to rely on the information contained within the websites of individual surgeons, either private or locally managed. The 2008 national Omnibus survey reported that 65% of British households have internet access compared to only 46% in 2002.7 Currently, both healthcare providers and patients use internet-based sources regularly.8 9 Indeed, healthcare professionals have been increasingly faced with challenging questions from patients based on information found online, despite concerns about the quality of web-based information when it comes to health issues.8 9 Despite the increasing proportion of the population that use the internet, the use of online information for healthcare choices is still relatively low.10 Interventions are clearly needed to improve the ability of patients to retrieve, interpret and use information about healthcare professionals.11 To ensure that patients can continue to make informed choices as their use of online information increases, it is necessary that this information is available consistently across all surgical fields, not just cardiac surgery. Indeed, this information has generally been criticised in recent years for not being timely, and having inadequate content.12 To the best of our knowledge, no studies have identified what information patients use in selecting the consultant they are referred to. Lim and Eldin13 reported that older people were more likely to choose a hospital if they think a consultant is performing the surgery, suggesting the involvement of a surgeon could be ‘a proxy for expertise and quality of the clinical care’.4 Boyce et al5 found patients expressed that a key motivation for choice of hospital was knowing details of expertise (specialist doctors) within the hospital, suggesting the importance of the skills, experience and expertise of the individual consultants. It has been suggested that websites should also help develop trust within the patient by being provided by organisations that would not directly benefit from advertising a particular consultant.14 Despite the importance of information being available online to patients to allow them to make informed choices in terms of consultant-led teams, no research to date has examined whether such information is available in a consistent way across a range of consultants. The aim of this study was to evaluate the availability of consultant-specific online information to allow patients make appropriately informed choices.

Method

The names of 200 consultant orthopaedic surgeons across the north of England were selected to be included in the evaluation of the availability of online information. These names were obtained from representatives of the Royal College of Surgeons. In order to be included in the study, the consultants had to currently be: employed within an NHS hospital in the north of England; practising as a qualified consultant orthopaedic surgeon; and registered with the Royal College of Surgeons. An internet search was performed between May and August 2011 using the strategy derived by Biermann et al.15 Each orthopaedic consultant's full name was entered into the seven most commonly used English language search engines (applicable at the time of our search): AOL, Google, Lycos, MSN (Bing), Netscape, Askjeeves and Yahoo. The first 30 relevant resultant links were used for initial evaluation, as it has been previously suggested that subsequent results are usually duplicates.16 We assumed searches performed by the general population would be superficial approach searches as performed by novice, rather than expert, users.17–19 Websites that were found not to contain any relevant information were excluded. The relevant websites on each search engine were evaluated for suitability to be rated. From the websites returned by each search engine, the web page with the most information for each consultant, as per the assessment tool, was subsequently used for the study. An assessment tool was developed and used in assessing website content and quality (table 1). This comprised two main parts. Part A was designed to answer questions on the websites themselves, including each website's accessibility, update cycle, availability of authorship information, type of author, target audience, and whether the website was used for any kind of promotion or advertisement. Part B was designed to analyse the availability of website content, focusing on information about individual surgeons. For part B, a template was produced with a view to gather as much information as possible about consultants, to include such items as are regularly used by medical staff for self-promotion (eg, Curriculum Vitaes) as well as those items that have been reported in the literature as being important to patients. An initial review of a selection of websites was used to identify typical items of information that are typically presented. These included their highest level of qualification, areas of general interest and/or any specialist interests, whether they were involved in research projects and/or whether they had published research, morbidity rates, death rates and levels of patient satisfaction, and whether a photograph of the surgeon was available on the website. The websites were also examined to determine whether surgeons were involved in teaching or had any management experience. Prior to the main website analysis, the assessment template was reviewed by clinical staff outside of the research team, including a consultant surgeon, a research physiotherapist, academic researchers, junior and senior medical doctors and nurses (n=18), to ensure that all relevant items had been included.
Table 1

Assessment tool/template used to assess (A) the descriptive content of each website and (B) the quality of information contained in each website that is relevant to the surgeon

ItemResponse categories
Part A: Website description
 AccessibilityEasy to open, page not found, no longer exists
 Last date of update of informationYes/no; if yes, how old?
 Availability of authorship informationYes/no
 Type of authorProfessional organisation, profit organisation, educational institution, instrument company, club, others
 Target audience informationYes/no
 Type of target audienceGeneral public, healthcare providers, patients, insurers, targeted workers
Part B: Adequacy of content
 Picture of surgeonYes/no
 Highest qualificationPrimary medical degree, MRCS, FRCS, others
 Area(s) of general interest*Yes/no
 Area(s) of specialist interest(s)*Yes/no
 Mortality rateYes/no
 Morbidity rate†Yes/no
 ResearchYes/no
 Research publicationsYes/no
 TeachingYes/no
 Management and leadership skillsYes/no
 Patient satisfactionExcellent, good, average, poor, not given

*The area(s) of interest include(s) descriptions such as, for example, lower-limb surgery, upper-limb surgery, spinal surgery, etc. The specialist interest(s) include(s) descriptions such as sports injuries, soft tissue surgery, arthroscopic surgery, trauma surgery, etc.

†Morbidity: complications related to orthopaedic procedure(s).

Assessment tool/template used to assess (A) the descriptive content of each website and (B) the quality of information contained in each website that is relevant to the surgeon *The area(s) of interest include(s) descriptions such as, for example, lower-limb surgery, upper-limb surgery, spinal surgery, etc. The specialist interest(s) include(s) descriptions such as sports injuries, soft tissue surgery, arthroscopic surgery, trauma surgery, etc. †Morbidity: complications related to orthopaedic procedure(s). All data were entered into a spread sheet in Microsoft Excel. For each item illustrated in table 1, frequencies for each scoring category (eg, yes/no) were determined. These frequencies were also expressed as a percentage of either the total sample, or a relevant smaller sample. For those websites that reported patient satisfaction, associations between satisfaction score (1=poor, 2=average, 3=good, 4=excellent) and involvement in research, publication of research and involvement in teaching were determined using χ2 analyses. All χ2 analyses were performed in SPSS (V. 19, IBM). The required level for statistical significance was set at p<0.05.

Results

Part A: analysis of description of website

Websites for the vast majority of surgeons (194, 97.0%) were easily accessible. Six (3.0%) were not accessible, either because relevant web pages were not found within the first five results in each of the search engines, or because pages such as social media, dictionary or a completely different person's profile were found. In terms of the availability of authorship information, 142 (73.2%) websites had authorship information described on the website. The authors of the websites were variable and included professional organisations (21, 14.8%), instrument companies (39, 27.5%), educational institutions (10, 7.0%), for-profit organisations (7, 4.9%) and others such as advertisement companies (65, 45.8%). Eighty-six (44.3%) websites did not state the last date of website update (table 2). Of those that did, most were updated between 13–18 months ago (40, 20.6%). One hundred and eighty-three (94.3%) websites specified the target audience (table 3), the vast majority of which were aimed at patients and the general public.
Table 2

Frequency (%) of websites that indicated last date of update

Frequency
Not stated86 (44.3%)
0–6 months17 (8.8%)
7–12 months28 (14.4%)
13–18 months40 (20.6%)
19–24 months11 (5.7%)
2–3 years16 (8.2%)
Table 3

Frequency (%) of websites that targeted specific types of audiences.

Frequency
Not stated11 (5.7%)
General public139 (71.6%)
Healthcare providers98 (50.5%)
Patients126 (64.9%)
Insurers21 (10.8%)
Target workers9 (4.6%)

Each row is not mutually exclusive as some websites targeted more than one type of audience.

Frequency (%) of websites that indicated last date of update Frequency (%) of websites that targeted specific types of audiences. Each row is not mutually exclusive as some websites targeted more than one type of audience.

Part B analysis of website content

The second part of this study looked at the quality of information available on individual surgeons. A photograph of the surgeon was not available in 15 (7.7%) websites. Almost all the websites studied provided some detail of qualifications of the surgeons (191, 98.5%), with the majority (185, 95.4%) stating their highest level of qualification as Fellow of the Royal College of Surgeons (FRCS). Two (1.0%) included primary medical qualifications as the highest academic recognition received, with four (2.1%) stating other academic qualifications. None of the websites presented morbidity rates (defined as any postoperative complication directly related to the procedure such as infection, neurovascular damage, dislocation, stiffness, etc.); however, death rates from a few procedures were mentioned on five (2.6%) websites. Less than half of the websites (85, 43.8%) detailed involvement by the surgeon in teaching or give any indication that might reflect on teaching skills, such as teaching qualification(s) of the surgeon. The mean patient satisfaction score for those involved in teaching was 2.5±0.5, and 2.1±0.3 for those not involved in teaching. χ2 analysis showed a significant association between involvement in teaching and patient satisfaction (χ2(2)=17.837, p<0.001), suggesting that surgeons involved in teaching received higher patient satisfaction scores than those not involved in teaching. Sixty-three websites (32.5%) provided details of any management and/or leadership skills relating to the surgeon. Frequency (%) of websites indicating involvement in research and/or publishing of research Information in relation to general areas of interest was available on 143 (73.7%) websites, and a higher proportion of websites included details of specialist areas of interest (181, 93.3%). Approximately half of all websites provided details of whether surgeons were involved in research, or evidence of involvement in publication of research (table 4). The mean patient satisfaction score for those involved in research was 2.2±0.4, and 2.6±0.5 for those not involved in research. χ2 analysis showed a significant association between involvement in research and patient satisfaction (χ2(2)=15.097, p<0.01). The mean patient satisfaction score for those who publish research was 2.2±0.4, and 2.5±0.5 for those not publishing research. χ2 analysis showed a significant association between involvement in research and patient satisfaction (χ2(2)=10.118, p<0.01). These findings suggest that those involved in research or publishing research receive lower patient satisfaction scores than those not involved in research.
Table 4

Frequency (%) of websites indicating involvement in research and/or publishing of research

YesNo
Involvement in research96 (49.5%)98 (50.5%)
Publications92 (47.2%)102 (52.6%)
Frequency (%) of websites that stated level of patient satisfaction Patient satisfaction was categorised as excellent, good, average, poor or not given. Half of the websites gave no information on patient satisfaction (98, 50.1%). Thirty (15.5%) websites provided good ratings for patient satisfaction, and 65 (33.5%) websites showed average ratings (table 5).
Table 5

Frequency (%) of websites that stated level of patient satisfaction

Frequency
Excellent0 (0%)
Good30 (15.5%)
Average65 (33.5%)
Poor1 (0.5%)
Not given98 (50.5%)
Frequency (%) of websites that stated level of patient satisfaction

Discussion

Principal findings

The majority of websites studied were accessible; however, there are questions regarding the authorship and availability of the last date of update. This is particularly important as studies have found that patients prefer websites run by recognisable healthcare organisations or professional groups.20 21 Several essential criteria have been described for health websites, including disclosure of site owner, authors and update cycle.22 Items such as documenting the target audience have been regarded as an important aspect of successful online resources and the website content should be tailored in a way such that the target audience should always be emphasised.23 Nearly half of the websites analysed targeted other sectors, not patients. This could create confusion and reduce the specificity of websites to patient needs. With regard to individual surgeons, having a photograph of the surgeon on the website is important to allow patients to recognise whom they will be treated by. The presence of profile pictures in websites has previously been linked to more accurate estimation of personality traits.24 25 Hassin and Trope also found that personality could be judged purely on the basis of a facial photograph.26 Physical features such as the size of a person's eyes and the shape of their mouth can also influence perceptions of personality.27 Nearly all websites provided some information about the qualifications of the surgeon, with the majority stating Fellowship of the Royal College of Surgeons as the highest level attained. Details of a surgeon's qualifications might influence patient confidence and trust in choosing an individual surgeon. Good qualities such as work ethic, reliability, specific knowledge and skills have been linked to having qualifications.28 Only a small number of websites reported death rates and none reported morbidity rates. Magee et al29 found that the majority of patients do not find this information useful in making choices about their healthcare as it was not seen as linking with clinical quality or was suggested by the patients as being ‘frightening’. Conversely, Burge et al30 31 report that patients do consider death rates to be important for choice. Despite this finding, some independent websites report death rates for individual hospitals.32 If such figures are to be published in the future for individual surgeons or consultant-led teams, it could be useful for patients to also know the number of surgical procedures performed by each consultant so that these rates can be presented as a percentage of each consultant's total number of operations. Depending on a consultant's area of specialism, it may be that they are referred specific cases which are of higher risk. By presenting non-risk-adjusted death rates could lead to some surgeons appearing to patients, through misinterpretation, as being riskier. Reported death rates should be fully risk-adjusted to ensure that appropriate comparisons can be made between different surgeons, and to avoid higher-risk patients being declined surgery in an attempt to maintain low death rates.6 Only about half of the websites analysed gave any indication of involvement of the surgeon in teaching related activities. This attribute is a necessity based on General Medical Council guidelines and indicates good medical practice.33 Improved outcomes following surgery have been linked to preoperative patient education,34 suggesting the importance of developing teaching skills. Conversely, involvement in teaching might suggest that surgical procedures are performed by more junior clinical staff under consultant supervision. Older patients have reported as being more likely to choose where they are referred based on whether a consultant will perform the actual surgical procedure,13 and thus involvement in teaching by the consultant might modify patient choice to avoid a teaching institution. Our findings suggest that those surgeons who are involved in teaching received higher patient satisfaction scores. This finding must be interpreted with caution, however, as the statistical analysis could only be performed on those websites which reported patient satisfaction, and it is not known whether all surgeons who are involved in teaching actually reported this on their websites. Clearly, this association should be examined in more detail in future studies. Only about half of the websites investigated provided details of engagement by the surgeon in research or the publication of peer-reviewed articles. The field of medicine is changing continuously and with the development of new techniques and procedures, research has become fundamental to surgical practice. Research is vital in providing the new knowledge needed to improve health outcomes and reduce inequalities.3 Parboosingh35 suggested that there is strong public demand for doctors to keep up-to-date, stressing the importance of continuing professional development and even a need for periodic reassessment. Although many of these consultants are likely to be involved in research activities, it is clear that this is not adequately portrayed to patients. It is interesting to note that our data suggest those surgeons involved in research or publishing research received slightly lower patient satisfaction scores than those not reporting involvement in research. As for the association between teaching and patient satisfaction, these associations should be read with caution due to the uncertainty about whether every surgeon involved in research or publishing actually reported it on their web page. Almost half of the websites analysed did not publish any information on patient satisfaction. The reputation of healthcare organisations for commitment to quality patient care still stands as the main criteria for patients in choosing healthcare providers.36 37 Measuring and incorporating patient satisfaction to the culture of healthcare organisations should be a strategic goal for all healthcare providers.36 Lee38 reported that 90% of hospitals currently have some form of patient satisfaction survey and most of the results are published in a national or regional database. If a trust fails to maintain good patient satisfaction, it will risk rendering poor-quality care and loss of service consumers.39 Contrary to this, Fenton et al40 identified that patients who were more satisfied had a 26% increased risk of mortality. They cautioned against the use of patient satisfaction without further investigation.

Strengths and limitations of study

To the best of our knowledge, this is the first study to conduct a comprehensive analysis of the availability of web-based information relating to individual consultant surgeons in any field of medicine. The study looked at the profiles for consultant orthopaedic surgeons only, and did not consider other surgical fields. The assessment tool used in this study to rate each website was developed in line with recommendations from the Government's white paper,3 and reviewed by a group of clinicians and academics. This tool could be developed further for future studies through the involvement of patient groups to determine which factors they consider to be important in accessing the information about consultants in order to exercise choice.

Policy implications and future research

Our study has demonstrated a lack of available public information offered by healthcare providers’ websites on consultant surgeons. Such information is essential for patients to be able to make an informed choice.41 While information on waiting times and technical issues are easy to obtain, other performance indicators such as quality of care and safety issues are more difficult to obtain and interpret.42 Our findings are consistent with evidence from others, suggesting that patients are insufficiently informed to be able to exercise choice effectively.43 Future research should examine differences in the availability of online information in other fields of medicine and identify mechanisms that can be introduced to improve consistency in information provision across the healthcare sector to help improve the patient experience. Further research is also needed to evaluate not just the availability of online information, but also the quality, accuracy and reliability of this information, and consistency of information reporting across different trusts. Comparisons should also be made between the information available on both public and private providers. Although there are a variety of different types of information available to patients to help them make healthcare choices, it is not clear as to how each of these items link to patient satisfaction and patient outcomes, and our analyses of the associations between patient satisfaction and involvement in teaching, research or publishing are limited by lack of consistency in reporting each item of information. Further research is needed to determine how different items of information link to patient satisfaction. For valid and generalisable results to be obtained, the mechanisms of obtaining patient satisfaction in different trusts will need to be standardised. This study was an evaluation of the information availability in traditional web pages. In recent years, use of social media has seen a rapid expansion with the majority of people who surf the internet using social media (eg, blogs, social networks, etc).44 Social media clearly, therefore, has a potential role to play in shaping how future healthcare choices are made.45 Future research should identify how patients use social media in making choices relating to their healthcare.

Conclusions

Despite the government policy encouraging patients to make more choices in relation to healthcare, our findings demonstrate that there is a paucity of data available to patients through online media to allow them to make informed choices about which consultant they wish to be referred to. This finding highlights the need for standardisation across websites that provide information about consultants to patients, or indeed, the need for a centralised online tool that can allow patients to access all the required information about available consultants. The most notable areas that websites should look to improve are in the reporting of website update cycle, involvement in teaching, research and the publication of research, and patient satisfaction, all of which were only reported by about half of all websites.
Table 6

Frequency (%) of websites that stated level of patient satisfaction

Frequency
Excellent0 (0%)
Good30 (15.5%)
Average65 (33.5%)
Poor1 (0.5%)
Not given98 (50.5%)
  28 in total

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Review 4.  Surgical "league tables": ischaemic heart disease.

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6.  Sharing decisions with patients: is the information good enough?

Authors:  A Coulter; V Entwistle; D Gilbert
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7.  Does quality influence choice of hospital?

Authors:  H S Luft; D W Garnick; D H Mark; D J Peltzman; C S Phibbs; E Lichtenberg; S J McPhee
Journal:  JAMA       Date:  1990-06-06       Impact factor: 56.272

8.  Public views on healthcare performance indicators and patient choice.

Authors:  Helen Magee; Lucy-Jane Davis; Angela Coulter
Journal:  J R Soc Med       Date:  2003-07       Impact factor: 5.344

9.  Take two aspirin and tweet me in the morning: how Twitter, Facebook, and other social media are reshaping health care.

Authors:  Carleen Hawn
Journal:  Health Aff (Millwood)       Date:  2009 Mar-Apr       Impact factor: 6.301

10.  Evidence-informed patient choice. Practical issues of involving patients in decisions about health care technologies.

Authors:  V A Entwistle; T A Sheldon; A Sowden; I S Watt
Journal:  Int J Technol Assess Health Care       Date:  1998       Impact factor: 2.188

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