Literature DB >> 22914775

Outcomes in adults with autism spectrum disorders: a historical perspective.

Natalie A Henninger1, Julie Lounds Taylor.   

Abstract

In this review, we examine the ways in which researchers have defined successful adult outcomes for individuals with autism spectrum disorders (ASDs) from the first systematic follow-up reports to the present day. The earliest outcome studies used vague and unreliable outcome criteria, and institutionalization was a common marker of poor outcomes. In the past decade, researchers have begun to standardize the measurement of adult outcomes with specific criteria based on friendships, employment, and living arrangements. Although nearly all of these studies have agreed that the majority of adults with ASD have poor outcomes, evolving concepts of what it means to be an adult could have an impact on outcomes measured. For example, some researchers have suggested that taking into account the person-environment fit could reveal a more optimistic picture of outcomes for these adults. Suggestions for future research are discussed.

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Year:  2012        PMID: 22914775      PMCID: PMC3769945          DOI: 10.1177/1362361312441266

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  22 in total

1.  Emerging adulthood. A theory of development from the late teens through the twenties.

Authors:  J J Arnett
Journal:  Am Psychol       Date:  2000-05

2.  A follow-up study of 201 children with autism in Kyushu and Yamaguchi areas, Japan.

Authors:  R Kobayashi; T Murata; K Yoshinaga
Journal:  J Autism Dev Disord       Date:  1992-09

3.  Outcome and prognostic factors in infantile autism and similar conditions: a population-based study of 46 cases followed through puberty.

Authors:  C Gillberg; S Steffenburg
Journal:  J Autism Dev Disord       Date:  1987-06

4.  Social adjustment and placement of autistic children in Middlesex: a follow-up study.

Authors:  V Lotter
Journal:  J Autism Child Schizophr       Date:  1974 Jan-Mar

5.  Follow-up study of eleven autistic children originally reported in 1943.

Authors:  L Kanner
Journal:  J Autism Child Schizophr       Date:  1971 Apr-Jun

6.  A five to fifteen year follow-up study of infantile psychosis. II. Social and behavioural outcome.

Authors:  M Rutter; D Greenfeld; L Lockyer
Journal:  Br J Psychiatry       Date:  1967-11       Impact factor: 9.319

Review 7.  Services for adults with an autism spectrum disorder.

Authors:  Paul T Shattuck; Anne M Roux; Laura E Hudson; Julie Lounds Taylor; Matthew J Maenner; Jean-Francois Trani
Journal:  Can J Psychiatry       Date:  2012-05       Impact factor: 4.356

8.  Longitudinal examination of the behavioral, language, and social changes in a population of adolescents and young adults with autistic disorder.

Authors:  K Ballaban-Gil; I Rapin; R Tuchman; S Shinnar
Journal:  Pediatr Neurol       Date:  1996-10       Impact factor: 3.372

9.  Psychosocial functioning in a group of Swedish adults with Asperger syndrome or high-functioning autism.

Authors:  I Engström; L Ekström; B Emilsson
Journal:  Autism       Date:  2003-03

10.  Adult outcome for children with autism.

Authors:  Patricia Howlin; Susan Goode; Jane Hutton; Michael Rutter
Journal:  J Child Psychol Psychiatry       Date:  2004-02       Impact factor: 8.982

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  65 in total

1.  Contextual Factors Predict Patterns of Change in Functioning over 10 Years Among Adolescents and Adults with Autism Spectrum Disorders.

Authors:  Ashley C Woodman; Leann E Smith; Jan S Greenberg; Marsha R Mailick
Journal:  J Autism Dev Disord       Date:  2016-01

2.  Can the Five Factor Model of Personality Account for the Variability of Autism Symptom Expression? Multivariate Approaches to Behavioral Phenotyping in Adult Autism Spectrum Disorder.

Authors:  Benjamin C Schwartzman; Jeffrey J Wood; Steven K Kapp
Journal:  J Autism Dev Disord       Date:  2016-01

3.  Characterization and prediction of early reading abilities in children on the autism spectrum.

Authors:  Meghan M Davidson; Susan Ellis Weismer
Journal:  J Autism Dev Disord       Date:  2014-04

4.  Competitive employment for youth with autism spectrum disorders: early results from a randomized clinical trial.

Authors:  Paul H Wehman; Carol M Schall; Jennifer McDonough; John Kregel; Valerie Brooke; Alissa Molinelli; Whitney Ham; Carolyn W Graham; J Erin Riehle; Holly T Collins; Weston Thiss
Journal:  J Autism Dev Disord       Date:  2014-03

5.  Employment Interventions for Individuals with ASD: The Relative Efficacy of Supported Employment With or Without Prior Project SEARCH Training.

Authors:  Carol M Schall; Paul Wehman; Valerie Brooke; Carolyn Graham; Jennifer McDonough; Alissa Brooke; Whitney Ham; Rachael Rounds; Stephanie Lau; Jaclyn Allen
Journal:  J Autism Dev Disord       Date:  2015-12

6.  The autism diagnostic observation schedule, module 4: revised algorithm and standardized severity scores.

Authors:  Vanessa Hus; Catherine Lord
Journal:  J Autism Dev Disord       Date:  2014-08

Review 7.  Systematic review of articles describing experience and supports of individuals with autism enrolled in college and university programs.

Authors:  Nicholas W Gelbar; Isaac Smith; Brian Reichow
Journal:  J Autism Dev Disord       Date:  2014-10

8.  Improving the Validity and Generalizability of Adult Autism Research Through Incorporating Family and Cultural Contexts.

Authors:  Kristin A Long; Monica Gordillo; Gael I Orsmond
Journal:  Autism Adulthood       Date:  2020-09-03

9.  Real-World Executive Functions in Adults with Autism Spectrum Disorder: Profiles of Impairment and Associations with Adaptive Functioning and Co-morbid Anxiety and Depression.

Authors:  Gregory L Wallace; Lauren Kenworthy; Cara E Pugliese; Haroon S Popal; Emily I White; Emily Brodsky; Alex Martin
Journal:  J Autism Dev Disord       Date:  2016-03

10.  Social participation among young adults with an autism spectrum disorder.

Authors:  Gael I Orsmond; Paul T Shattuck; Benjamin P Cooper; Paul R Sterzing; Kristy A Anderson
Journal:  J Autism Dev Disord       Date:  2013-11
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