INTRODUCTION: Although it is federally-mandated that racial/ethnic minorities be included in research studies, recruiting diverse populations remains a challenge. This is particularly difficult when research involves children. The purpose of this study was to assess attitudes and beliefs toward medical research among a racially and socioeconomically diverse population of parents of school children. METHODS: A cross-sectional parent-report survey was conducted in New York City public elementary schools using stratified random selection to obtain a diverse population. Fear of medical research and likelihood to participate in medical research were assessed using a validated questionnaire. Differences in fear/likelihood to participate in research across race/ethnicity and socioeconomic characteristics were evaluated. RESULTS: In general, parents were afraid of their child "being treated as a guinea pig", but were willing to allow their child to participate in research if asked by their own doctor. Factors associated with a lower score on fear toward research were; primary language other than English (OR=0.59), access to an interpreter (OR=0.73) and access to medical service within a day (OR=0.51). Latinos had the highest fear score (OR=1.87) compared to Whites. Asians were the ethnic group most likely to participate in research (OR=1.71). Low education level (OR=2.18) and public health insurance (OR=1.37) were associated with a higher score for likelihood of allowing one's child to participate in medical research. CONCLUSION: Minority parents reported more fear of allowing their children to participate in medical research, but were as likely to consent their children's participation, especially if asked by their own physician.
INTRODUCTION: Although it is federally-mandated that racial/ethnic minorities be included in research studies, recruiting diverse populations remains a challenge. This is particularly difficult when research involves children. The purpose of this study was to assess attitudes and beliefs toward medical research among a racially and socioeconomically diverse population of parents of school children. METHODS: A cross-sectional parent-report survey was conducted in New York City public elementary schools using stratified random selection to obtain a diverse population. Fear of medical research and likelihood to participate in medical research were assessed using a validated questionnaire. Differences in fear/likelihood to participate in research across race/ethnicity and socioeconomic characteristics were evaluated. RESULTS: In general, parents were afraid of their child "being treated as a guinea pig", but were willing to allow their child to participate in research if asked by their own doctor. Factors associated with a lower score on fear toward research were; primary language other than English (OR=0.59), access to an interpreter (OR=0.73) and access to medical service within a day (OR=0.51). Latinos had the highest fear score (OR=1.87) compared to Whites. Asians were the ethnic group most likely to participate in research (OR=1.71). Low education level (OR=2.18) and public health insurance (OR=1.37) were associated with a higher score for likelihood of allowing one's child to participate in medical research. CONCLUSION: Minority parents reported more fear of allowing their children to participate in medical research, but were as likely to consent their children's participation, especially if asked by their own physician.
Authors: Ralph V Katz; S Steven Kegeles; Nancy R Kressin; B Lee Green; Min Qi Wang; Sherman A James; Stefanie Luise Russell; Cristina Claudio Journal: J Health Care Poor Underserved Date: 2006-11
Authors: Electra D Paskett; Katherine W Reeves; John M McLaughlin; Mira L Katz; Ann Scheck McAlearney; Mack T Ruffin; Chanita Hughes Halbert; Cristina Merete; Faith Davis; Sarah Gehlert Journal: Contemp Clin Trials Date: 2008-07-31 Impact factor: 2.226
Authors: Trina E Chang; Charlotte D Brill; Lara Traeger; C Andres Bedoya; Aya Inamori; Patrick N Hagan; Katherine Flaherty; Katherine Hails; Albert Yeung; Nhi-Ha Trinh Journal: J Immigr Minor Health Date: 2015-12
Authors: Khalid M Almutairi; Wadi B Alonazi; Abdulaziz A Alodhayani; Jason M Vinluan; Mahaman Moussa; Abdulrahman S Al-Ajlan; Khalid Alsaleh; Duna Alruwaimi; Nader E Alotaibi Journal: J Relig Health Date: 2017-04
Authors: Lauren M Hamel; Louis A Penner; Terrance L Albrecht; Elisabeth Heath; Clement K Gwede; Susan Eggly Journal: Cancer Control Date: 2016-10 Impact factor: 3.302
Authors: Anita Kurt; Hope Kincaid; Lauren Semler; Jeanne L Jacoby; Melanie B Johnson; Beth A Careyva; Brian Stello; Timothy Friel; John C Smulian; Mark C Knouse Journal: J Racial Ethn Health Disparities Date: 2017-12-26
Authors: Rafeek A Yusuf; Deevakar Rogith; Shelly R A Hovick; Susan K Peterson; Allison M Burton-Chase; Bryan M Fellman; Yisheng Li; Carolyn McKinney; Elmer V Bernstam; Funda Meric-Bernstam Journal: Cancer Date: 2014-09-10 Impact factor: 6.860
Authors: Yujie Wang; Fan Tian; Kathryn C Fitzgerald; Jagriti Jackie Bhattarai; Robert T Naismith; Megan Hyland; Peter A Calabresi; Ellen M Mowry Journal: Mult Scler Relat Disord Date: 2020-02-14 Impact factor: 4.339
Authors: Armand H Matheny Antommaria; Kyle B Brothers; John A Myers; Yana B Feygin; Sharon A Aufox; Murray H Brilliant; Pat Conway; Stephanie M Fullerton; Nanibaa' A Garrison; Carol R Horowitz; Gail P Jarvik; Rongling Li; Evette J Ludman; Catherine A McCarty; Jennifer B McCormick; Nathaniel D Mercaldo; Melanie F Myers; Saskia C Sanderson; Martha J Shrubsole; Jonathan S Schildcrout; Janet L Williams; Maureen E Smith; Ellen Wright Clayton; Ingrid A Holm Journal: AJOB Empir Bioeth Date: 2018-09-21
Authors: Sunil Kripalani; William J Heerman; Niral J Patel; Natalie Jackson; Kathryn Goggins; Russell L Rothman; Vivian M Yeh; Kenneth A Wallston; Duane T Smoot; Consuelo H Wilkins Journal: J Gen Intern Med Date: 2019-01-25 Impact factor: 5.128