Literature DB >> 22767889

Continuity of care in the transition from child to adult diabetes services: a realistic evaluation study.

Davina Allen1, David Cohen, Kerry Hood, Mike Robling, Christine Atwell, Claire Lane, Lesley Lowes, Sue Channon, David Gillespie, Sam Groves, John Harvey, John Gregory.   

Abstract

OBJECTIVES: To identify the continuity mechanisms central to a smooth transition from child to adult diabetes care, the service components through which these can be achieved and their inter-relations in different contexts.
METHODS: A realistic evaluation study of five models of transition in England comprising: organizational analysis (semi-structured interviews with 38 health care professionals and selected observations); case studies of 46 young people under-going transition and 39 carers (three qualitative interviews over a 12-18 month period, medical record review and clinical interviews); surveys of 82 (32% response rate at least once and 11% response rate at two time points) young people in the population approaching, undergoing or less than 12 months post-transition, and their carers (questionnaires included psychosocial outcome measures); and a costs and consequences analysis.
RESULTS: Seven continuities contribute to smooth transition: relational, longitudinal, management, informational, flexible, developmental and cultural. Relational, longitudinal, flexible and cultural continuity are the most important. Models with high levels of relational, longitudinal, flexible and cultural continuity achieve smooth transition with relatively informal, low-cost informational and management continuity mechanisms. Models with low levels of relational and longitudinal continuity need to invest in more formal interventions to facilitate management, flexible and informational continuity so that smooth transition is not compromised.
CONCLUSIONS: Focusing on continuity mechanisms, their inter-relations and the effectiveness of different constellations of service components in achieving smooth transition has furnished evidence to inform the development of innovative models which build on the logic of these findings but are sensitive to local context. Further studies are needed to confirm the quantitative findings from a broader range of services and patients.

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Year:  2012        PMID: 22767889     DOI: 10.1258/JHSRP.2011.011044

Source DB:  PubMed          Journal:  J Health Serv Res Policy        ISSN: 1355-8196


  9 in total

1.  A Systematic Review of Transitional Care for Emerging Adults with Diabetes.

Authors:  Mary K Findley; EunSeok Cha; Eugene Wong; Melissa Spezia Faulkner
Journal:  J Pediatr Nurs       Date:  2015-07-09       Impact factor: 2.145

Review 2.  What makes for a 'good' or 'bad' paediatric diabetes service from the viewpoint of children, young people, carers and clinicians? A synthesis of qualitative findings.

Authors:  Katherine Curtis-Tyler; Lisa Arai; Terence Stephenson; Helen Roberts
Journal:  Arch Dis Child       Date:  2015-03-19       Impact factor: 3.791

3.  Characteristics of young people with long term conditions close to transfer to adult health services.

Authors:  Hannah Merrick; Helen McConachie; Ann Le Couteur; Kay Mann; Jeremy R Parr; Mark S Pearce; Allan Colver
Journal:  BMC Health Serv Res       Date:  2015-09-30       Impact factor: 2.655

4.  Development of a provisional model to improve transitional care for female adolescents with a rare genital malformation as an example for orphan diseases.

Authors:  Elisabeth Simoes; Andrea Kronenthaler; Christine Emrich; Monika A Rieger; Kristin Katharina Rall; Norbert Schäffeler; Hanna Hiltner; Esther Ueding; Sara Y Brucker
Journal:  Biomed Res Int       Date:  2014-12-03       Impact factor: 3.411

5.  Transitional care in clinical networks for young people with juvenile idiopathic arthritis: current situation and challenges.

Authors:  Mary Cruikshank; Helen E Foster; Jane Stewart; Joyce E Davidson; Tim Rapley
Journal:  Clin Rheumatol       Date:  2015-04-30       Impact factor: 2.980

6.  Type 1 Diabetes Patient Experiences Before and After Transfer from a Paediatric to an Adult Hospital.

Authors:  Mercè Vidal Flor; Margarida Jansà I Morató; Carmen Yoldi Vergara; Roque Cardona-Hernández; Marga Giménez Alvárez; Ignacio Conget Donlo; Pilar Isla Pera
Journal:  Patient Prefer Adherence       Date:  2022-08-19       Impact factor: 2.314

7.  Study protocol: longitudinal study of the transition of young people with complex health needs from child to adult health services.

Authors:  Allan F Colver; Hannah Merrick; Mark Deverill; Ann Le Couteur; Jeremy Parr; Mark S Pearce; Tim Rapley; Luke Vale; Rose Watson; Helen McConachie
Journal:  BMC Public Health       Date:  2013-07-23       Impact factor: 3.295

8.  "Just a Typical Teenager": The Social Ecology of "Normal Adolescence"-Insights from Diabetes Care.

Authors:  Davina Allen
Journal:  Symb Interact       Date:  2013-02

9.  Falling through the gaps: exploring the role of integrated commissioning in improving transition from children's to adults' services for young people with long-term health conditions in England.

Authors:  Gregory Maniatopoulos; Ann Le Couteur; Luke Vale; Allan Colver
Journal:  J Health Serv Res Policy       Date:  2018-02-23
  9 in total

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