Literature DB >> 22720319

Beyond diversity to inclusion: recruitment and retention of diverse groups in Alzheimer research.

Peggye Dilworth-Anderson1, Monique D Cohen.   

Abstract

This article provides a discussion on using an inclusive approach to recruitment and retention of diverse groups in Alzheimer research. The discussion begins by framing the issues of diversity and inclusion and reviewing some of the conceptual and theoretical frameworks that can help researchers develop an inclusive approach to research. Next, some specific inclusive strategies that the researchers can use to recruit and retain diverse samples are discussed. Last, ideas on a retooling process that can prepare researchers to use inclusive approaches are discussed. Ultimately, an inclusive approach to recruitment and retention goes beyond diversity and instead, emphasizes shared interest and representation by researchers and participants in the research process.

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Year:  2010        PMID: 22720319

Source DB:  PubMed          Journal:  Alzheimer Dis Assoc Disord        ISSN: 0893-0341            Impact factor:   2.703


  11 in total

1.  Introduction to the science of recruitment and retention among ethnically diverse populations.

Authors:  Peggye Dilworth-Anderson
Journal:  Gerontologist       Date:  2011-06

2.  Dementia Caregiving Research: Expanding and Reframing the Lens of Diversity, Inclusivity, and Intersectionality.

Authors:  Peggye Dilworth-Anderson; Heehyul Moon; María P Aranda
Journal:  Gerontologist       Date:  2020-07-15

3.  Perspectives on ethnic and racial disparities in Alzheimer's disease and related dementias: Update and areas of immediate need.

Authors:  Ganesh M Babulal; Yakeel T Quiroz; Benedict C Albensi; Eider Arenaza-Urquijo; Arlene J Astell; Claudio Babiloni; Alex Bahar-Fuchs; Joanne Bell; Gene L Bowman; Adam M Brickman; Gaël Chételat; Carrie Ciro; Ann D Cohen; Peggye Dilworth-Anderson; Hiroko H Dodge; Simone Dreux; Steven Edland; Anna Esbensen; Lisbeth Evered; Michael Ewers; Keith N Fargo; Juan Fortea; Hector Gonzalez; Deborah R Gustafson; Elizabeth Head; James A Hendrix; Scott M Hofer; Leigh A Johnson; Roos Jutten; Kerry Kilborn; Krista L Lanctôt; Jennifer J Manly; Ralph N Martins; Michelle M Mielke; Martha Clare Morris; Melissa E Murray; Esther S Oh; Mario A Parra; Robert A Rissman; Catherine M Roe; Octavio A Santos; Nikolaos Scarmeas; Lon S Schneider; Nicole Schupf; Sietske Sikkes; Heather M Snyder; Hamid R Sohrabi; Yaakov Stern; Andre Strydom; Yi Tang; Graciela Muniz Terrera; Charlotte Teunissen; Debora Melo van Lent; Michael Weinborn; Linda Wesselman; Donna M Wilcock; Henrik Zetterberg; Sid E O'Bryant
Journal:  Alzheimers Dement       Date:  2018-12-13       Impact factor: 21.566

4.  Obstacles and opportunities in Alzheimer's clinical trial recruitment.

Authors:  Jennifer L Watson; Laurie Ryan; Nina Silverberg; Vicky Cahan; Marie A Bernard
Journal:  Health Aff (Millwood)       Date:  2014-04       Impact factor: 6.301

5.  Achieving Health Equity in Embedded Pragmatic Trials for People Living with Dementia and Their Family Caregivers.

Authors:  Ana R Quiñones; Susan L Mitchell; Jonathan D Jackson; María P Aranda; Peggye Dilworth-Anderson; Ellen P McCarthy; Ladson Hinton
Journal:  J Am Geriatr Soc       Date:  2020-07       Impact factor: 5.562

6.  Earning the Trust of African American Communities to Increase Representation in Dementia Research.

Authors:  Elena Portacolone; Nynikka R Palmer; Peter Lichtenberg; Catherine M Waters; Carl V Hill; Sahru Keiser; Leah Vest; Marsha Maloof; Thi Tran; Paula Martinez; Javier Guerrero; Julene K Johnson
Journal:  Ethn Dis       Date:  2020-11-19       Impact factor: 1.847

7.  Recruitment of a diverse research cohort in a large metropolitan area for dementia intervention studies.

Authors:  Melissa Reuland; Danetta Sloan; Inga Margret Antonsdottir; Morgan Spliedt; Mary C Deirdre Johnston; Quincy Samus
Journal:  Contemp Clin Trials       Date:  2021-11-14       Impact factor: 2.261

8.  The Effectiveness of Small-group Community-based Information Sessions on Clinical Trial Recruitment for Secondary Prevention of Alzheimer's Disease.

Authors:  Sarah D Tarrant; Shoshana H Bardach; Kendra Bates; Heather Nichols; Jacqueline Towner; Clay Tamatha; Allison Caban-Holt; Linda J Van-Eldik; Richard R Murphy; Reisa Sperling; Gregory A Jicha
Journal:  Alzheimer Dis Assoc Disord       Date:  2017 Apr-Jun       Impact factor: 2.703

9.  Traversing the Aging Research and Health Equity Divide: Toward Intersectional Frameworks of Research Justice and Participation.

Authors:  Andrea Gilmore-Bykovskyi; Raina Croff; Crystal M Glover; Jonathan D Jackson; Jason Resendez; Adriana Perez; Megan Zuelsdorff; Gina Green-Harris; Jennifer J Manly
Journal:  Gerontologist       Date:  2022-05-26

10.  Disparities by Race and Ethnicity Among Adults Recruited for a Preclinical Alzheimer Disease Trial.

Authors:  Rema Raman; Yakeel T Quiroz; Oliver Langford; Jiyoon Choi; Marina Ritchie; Morgan Baumgartner; Dorene Rentz; Neelum T Aggarwal; Paul Aisen; Reisa Sperling; Joshua D Grill
Journal:  JAMA Netw Open       Date:  2021-07-01
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