Literature DB >> 34324633

Traversing the Aging Research and Health Equity Divide: Toward Intersectional Frameworks of Research Justice and Participation.

Andrea Gilmore-Bykovskyi1,2, Raina Croff3, Crystal M Glover4,5, Jonathan D Jackson6,7, Jason Resendez8, Adriana Perez9, Megan Zuelsdorff1, Gina Green-Harris2, Jennifer J Manly10,11.   

Abstract

Meaningful reductions in racial and ethnic inequities in chronic diseases of aging remain unlikely without major advancements in the inclusion of minoritized populations in aging research. While sparse, studies investigating research participation disparities have predominantly focused on individual-level factors and behavioral change, overlooking the influence of study design, structural factors, and social determinants of health on participation. This is also reflected in conventional practices that consistently fail to address established participation barriers, such as study requirements that impose financial, transportation, linguistic, and/or logistical barriers that disproportionately burden participants belonging to minoritized populations. These shortcomings not only risk exacerbating distrust toward research and researchers, but also introduce significant selection biases, diminishing our ability to detect differential mechanisms of risk, resilience, and response to interventions across subpopulations. This forum article examines the intersecting factors that drive both health inequities in aging and disparate participation in aging research among minoritized populations. Using an intersectional, social justice, and emancipatory lens, we characterize the role of social determinants, historical contexts, and contemporaneous structures in shaping research accessibility and inclusion. We also introduce frameworks to accelerate transformative theoretical approaches to fostering equitable inclusion of minoritized populations in aging research.
© The Author(s) 2021. Published by Oxford University Press on behalf of The Gerontological Society of America. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

Entities:  

Keywords:  Chronic illness; Disparities (health, racial); Diversity and ethnicity; Research participation

Mesh:

Year:  2022        PMID: 34324633      PMCID: PMC9154232          DOI: 10.1093/geront/gnab107

Source DB:  PubMed          Journal:  Gerontologist        ISSN: 0016-9013


  32 in total

1.  Beyond diversity to inclusion: recruitment and retention of diverse groups in Alzheimer research.

Authors:  Peggye Dilworth-Anderson; Monique D Cohen
Journal:  Alzheimer Dis Assoc Disord       Date:  2010 Jul-Sep       Impact factor: 2.703

2.  Introduction to the science of recruitment and retention among ethnically diverse populations.

Authors:  Peggye Dilworth-Anderson
Journal:  Gerontologist       Date:  2011-06

Review 3.  Towards a More Inclusive and Dynamic Understanding of Medical Mistrust Informed by Science.

Authors:  Jessica Jaiswal; Perry N Halkitis
Journal:  Behav Med       Date:  2019 Apr-Jun       Impact factor: 3.104

4.  Recruitment and retention of older adults in aging research.

Authors:  Lona Mody; Douglas K Miller; Joanne M McGloin; Marcie Freeman; Edward R Marcantonio; Jay Magaziner; Stephanie Studenski
Journal:  J Am Geriatr Soc       Date:  2008-12       Impact factor: 5.562

5.  Implementation of NIH inclusion guidelines: survey of NIH study section members.

Authors:  Holly A Taylor
Journal:  Clin Trials       Date:  2008       Impact factor: 2.486

6.  Using Mistrust, Distrust, and Low Trust Precisely in Medical Care and Medical Research Advances Health Equity.

Authors:  Derek M Griffith; Erin M Bergner; Alecia S Fair; Consuelo H Wilkins
Journal:  Am J Prev Med       Date:  2020-11-15       Impact factor: 5.043

Review 7.  Recruitment and retention of underrepresented populations in Alzheimer's disease research: A systematic review.

Authors:  Andrea L Gilmore-Bykovskyi; Yuanyuan Jin; Carey Gleason; Susan Flowers-Benton; Laura M Block; Peggye Dilworth-Anderson; Lisa L Barnes; Manish N Shah; Megan Zuelsdorff
Journal:  Alzheimers Dement (N Y)       Date:  2019-11-19

8.  The Urgency of Justice in Research: Beyond COVID-19.

Authors:  Andrea Gilmore-Bykovskyi; Jonathan D Jackson; Consuelo H Wilkins
Journal:  Trends Mol Med       Date:  2020-11-17       Impact factor: 11.951

Review 9.  Aging and COVID-19 in Minority Populations: a Perfect Storm.

Authors:  Tubanji Walubita; Ariel Beccia; Esther Boama-Nyarko; Melissa Goulding; Carly Herbert; Jessica Kloppenburg; Guadalupe Mabry; Grace Masters; Asli McCullers; Sarah Forrester
Journal:  Curr Epidemiol Rep       Date:  2021-03-16

10.  Amyloid PET Imaging in Self-Identified Non-Hispanic Black Participants of the Anti-Amyloid in Asymptomatic Alzheimer's Disease (A4) Study.

Authors:  Kacie D Deters; Valerio Napolioni; Reisa A Sperling; Michael D Greicius; Richard Mayeux; Timothy Hohman; Elizabeth C Mormino
Journal:  Neurology       Date:  2021-02-10       Impact factor: 9.910

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  4 in total

1.  Exposing the Brain Proteomic Signatures of Alzheimer's Disease in Diverse Racial Groups: Leveraging Multiple Data Sets and Machine Learning.

Authors:  Heather Desaire; Kaitlyn E Stepler; Renã A S Robinson
Journal:  J Proteome Res       Date:  2022-03-11       Impact factor: 5.370

2.  Cingulo-opercular and frontoparietal control network connectivity and executive functioning in older adults.

Authors:  Hanna K Hausman; Cheshire Hardcastle; Alejandro Albizu; Jessica N Kraft; Nicole D Evangelista; Emanuel M Boutzoukas; Kailey Langer; Andrew O'Shea; Emily J Van Etten; Pradyumna K Bharadwaj; Hyun Song; Samantha G Smith; Eric Porges; Steven T DeKosky; Georg A Hishaw; Samuel Wu; Michael Marsiske; Ronald Cohen; Gene E Alexander; Adam J Woods
Journal:  Geroscience       Date:  2021-12-23       Impact factor: 7.581

3.  Vascular cognitive impairment and dementia: An early career researcher perspective.

Authors:  Nárlon C Boa Sorte Silva; Oliver Bracko; Amy R Nelson; Fabricio Ferreira de Oliveira; Lisa S Robison; C Elizabeth Shaaban; Atticus H Hainsworth; Brittani R Price
Journal:  Alzheimers Dement (Amst)       Date:  2022-04-27

4.  Psychological well-being and cognitive aging in Black, Native American, and White Alzheimer's Disease Research Center participants.

Authors:  Mary F Wyman; Carol A Van Hulle; Emre Umucu; Sydnee Livingston; Nickolas H Lambrou; Fabu P Carter; Sterling C Johnson; Sanjay Asthana; Carey E Gleason; Megan Zuelsdorff
Journal:  Front Hum Neurosci       Date:  2022-07-29       Impact factor: 3.473

  4 in total

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