Literature DB >> 22572922

Acceptability and feasibility of family use of The Cellie Cancer Coping Kit.

Meghan L Marsac1, Aimee K Hildenbrand, Kathleen Clawson, Leela Jackson, Kristen Kohser, Lamia Barakat, Nancy Kassam-Adams, Richard Aplenc, Anne Vinsel, Melissa A Alderfer.   

Abstract

PURPOSE: This study aims to examine the acceptability and feasibility of child and parent use of The Cellie Cancer Coping Kit (Cellie Kit). The Cellie kit is designed to promote coping and decrease distress in children undergoing pediatric cancer treatment. It includes a plush toy, coping cards, and book for caregivers.
METHODS: In study 1, 15 children (ages 6-12) undergoing cancer treatment and their parents reviewed the Cellie Kit materials and provided feedback on its acceptability and perceived feasibility of use. In study 2, 15 additional children (ages 6-12) and their parents participated in a pilot intervention of the Cellie Kit and completed follow-up interviews and a satisfaction measure.
RESULTS: In study 1, all parents reported that they could understand the book and enact its coping tips and that the Cellie Kit was relevant to their families' cancer experience. Children explained they would use the Cellie Kit for emotional expression, fun, and comfort. The Cellie Kit was revised after study 1 to integrate additional material suggested by families. In study 2, all families completing follow-up assessments reported utilizing the Cellie Kit. A majority (86 % of children and 100 % of parents) indicated that they would recommend the Cellie Kit to others, and most (64 % of children and 93 % of parents) reported learning new information and/or skills from the Cellie Kit.
CONCLUSIONS: The Cellie Kit is an engaging, helpful, and easy-to-use coping tool for families facing pediatric cancer treatment. Future research should examine the efficacy of brief interventions using the Cellie Kit to promote adjustment to pediatric cancer.

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Year:  2012        PMID: 22572922     DOI: 10.1007/s00520-012-1475-y

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  26 in total

Review 1.  Evidence-based interventions for survivors of childhood cancer and their families.

Authors:  Anne E Kazak
Journal:  J Pediatr Psychol       Date:  2005 Jan-Feb

2.  Health-related quality of life among child and adolescent survivors of childhood cancer.

Authors:  Kathy N Speechley; Maru Barrera; Amanda K Shaw; Howard I Morrison; Elizabeth Maunsell
Journal:  J Clin Oncol       Date:  2006-06-01       Impact factor: 44.544

3.  Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: report of a multisite randomized trial.

Authors:  Olle Jane Z Sahler; Diane L Fairclough; Sean Phipps; Raymond K Mulhern; Michael J Dolgin; Robert B Noll; Ernest R Katz; James W Varni; Donna R Copeland; Robert W Butler
Journal:  J Consult Clin Psychol       Date:  2005-04

4.  ShopTalk: a pilot study of the feasibility and utility of a therapeutic board game for youth living with cancer.

Authors:  Lori Wiener; Haven Battles; Cynthia Mamalian; Sima Zadeh
Journal:  Support Care Cancer       Date:  2011-03-31       Impact factor: 3.603

Review 5.  A systematic review of randomized controlled trials examining psychological interventions for needle-related procedural pain and distress in children and adolescents: an abbreviated cochrane review.

Authors:  Lindsay S Uman; Christine T Chambers; Patrick J McGrath; Stephen Kisely
Journal:  J Pediatr Psychol       Date:  2008-04-02

6.  Predicting pediatric distress during radiation therapy procedures: the role of medical, psychosocial, and demographic factors.

Authors:  James L Klosky; Vida L Tyc; Xin Tong; Deo Kumar Srivastava; Mindy Kronenberg; Alberto J de Armendi; Thomas E Merchant
Journal:  Pediatrics       Date:  2007-04-23       Impact factor: 7.124

7.  Distressing events for children and adolescents with cancer: child, parent, and nurse perceptions.

Authors:  Mariann Hedström; Kristina Haglund; Inger Skolin; Louise von Essen
Journal:  J Pediatr Oncol Nurs       Date:  2003 May-Jun       Impact factor: 1.636

8.  Posttraumatic stress symptoms in adolescent survivors of childhood cancer and their mothers.

Authors:  Ronald T Brown; Avi Madan-Swain; Richard Lambert
Journal:  J Trauma Stress       Date:  2003-08

9.  Children in remission from acute lymphoblastic leukaemia: mental health, psychosocial adjustment and parental functioning.

Authors:  T Reinfjell; G E Lofstad; H M Nordahl; A Vikan; T H Diseth
Journal:  Eur J Cancer Care (Engl)       Date:  2009-03-31       Impact factor: 2.520

Review 10.  Evidence-based assessment, intervention and psychosocial care in pediatric oncology: a blueprint for comprehensive services across treatment.

Authors:  Anne E Kazak; Mary T Rourke; Melissa A Alderfer; Ahna Pai; Anne F Reilly; Anna T Meadows
Journal:  J Pediatr Psychol       Date:  2007-07-11
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  7 in total

1.  The Cellie Coping Kit for Sickle Cell Disease: Initial acceptability and feasibility.

Authors:  Meghan L Marsac; Olivia G Klingbeil; Aimee K Hildenbrand; Melissa A Alderfer; Nancy Kassam-Adams; Kim Smith-Whitley; Lamia P Barakat
Journal:  Clin Pract Pediatr Psychol       Date:  2014-12-01

2.  Acceptability and feasibility of a therapeutic board game for children and adolescents with cancer: the Italian version of Shop Talk.

Authors:  Alessandra Bettini; Elena Amore; Laura Vagnoli; Francesca Maffei; Rosanna Martin
Journal:  Support Care Cancer       Date:  2019-03-25       Impact factor: 3.603

3.  What is the state of children's participation in qualitative research on health interventions?: a scoping study.

Authors:  Jean M Hunleth; Julie S Spray; Corey Meehan; Colleen Walsh Lang; Janet Njelesani
Journal:  BMC Pediatr       Date:  2022-06-04       Impact factor: 2.567

4.  A mixed methods assessment of coping with pediatric cancer.

Authors:  Aimee K Hildenbrand; Melissa A Alderfer; Janet A Deatrick; Meghan L Marsac
Journal:  J Psychosoc Oncol       Date:  2014

5.  Support for families at home during childhood cancer treatment: a pilot study with Mr.V the Spaceman, a family-based activities tool.

Authors:  Kelly L A van Bindsbergen; Patrizia D'Olivo; Marco C Rozendaal; Johannes H M Merks; Martha A Grootenhuis
Journal:  Support Care Cancer       Date:  2021-02-07       Impact factor: 3.359

6.  The Child Illness and Resilience Program (CHiRP): a study protocol of a stepped care intervention to improve the resilience and wellbeing of families living with childhood chronic illness.

Authors:  Katrina M Hamall; Todd R Heard; Kerry J Inder; Katherine M McGill; Frances Kay-Lambkin
Journal:  BMC Psychol       Date:  2014-03-11

7.  Experiences of interventions aiming to improve the mental health and well-being of children and young people with a long-term physical condition: A systematic review and meta-ethnography.

Authors:  Liz Shaw; Darren Moore; Michael Nunns; Jo Thompson Coon; Tamsin Ford; Vashti Berry; Erin Walker; Isobel Heyman; Christopher Dickens; Sophie Bennett; Roz Shafran; Ruth Garside
Journal:  Child Care Health Dev       Date:  2019-08-16       Impact factor: 2.508

  7 in total

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