Literature DB >> 22372209

Consent and confidentiality in clinical genetic practice: guidance on genetic testing and sharing genetic information.

Anneke Lucassen, Alison Hall.   

Abstract

Mesh:

Year:  2012        PMID: 22372209      PMCID: PMC4953419          DOI: 10.7861/clinmedicine.12-1-5

Source DB:  PubMed          Journal:  Clin Med (Lond)        ISSN: 1470-2118            Impact factor:   2.659


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  9 in total

1.  The devil is in the details: confidentiality challenges in the age of genetics.

Authors:  Barbara J Daly; Ashley Rosko; Shulin Zhang; Hillard M Lazarus
Journal:  HEC Forum       Date:  2015-03

2.  A Duty To Warn Relatives in Clinical Genetics: Arguably 'Fair just and reasonable' in English Law?

Authors:  C Mitchell; M C Ploem; R C M Hennekam; J Kaye
Journal:  Tottels J Prof Neglig       Date:  2016-07

3.  "If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens.

Authors:  Deborah R Gordon; Barbara A Koenig
Journal:  New Genet Soc       Date:  2021-12-13

4.  Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences.

Authors:  Deborah R Gordon; Carmen Radecki Breitkopf; Marguerite Robinson; Wesley O Petersen; Jason S Egginton; Kari G Chaffee; Gloria M Petersen; Susan M Wolf; Barbara A Koenig
Journal:  AJOB Empir Bioeth       Date:  2018-12-31

5.  Genome sequencing in healthcare: understanding the UK general public's views and implications for clinical practice.

Authors:  Lisa M Ballard; Rachel H Horton; Angela Fenwick; Anneke M Lucassen
Journal:  Eur J Hum Genet       Date:  2019-09-16       Impact factor: 4.246

6.  Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics.

Authors:  Daniele Carrieri; Heidi C Howard; Caroline Benjamin; Angus J Clarke; Sandi Dheensa; Shane Doheny; Naomi Hawkins; Tanya F Halbersma-Konings; Leigh Jackson; Hülya Kayserili; Susan E Kelly; Anneke M Lucassen; Álvaro Mendes; Emmanuelle Rial-Sebbag; Vigdís Stefánsdóttir; Peter D Turnpenny; Carla G van El; Irene M van Langen; Martina C Cornel; Francesca Forzano
Journal:  Eur J Hum Genet       Date:  2018-10-11       Impact factor: 4.246

Review 7.  Family tree and ancestry inference: is there a need for a 'generational' consent?

Authors:  Susan E Wallace; Elli G Gourna; Viktoriya Nikolova; Nuala A Sheehan
Journal:  BMC Med Ethics       Date:  2015-12-09       Impact factor: 2.652

8.  Ethical issues and best practice in clinically based genomic research: Exeter Stakeholders Meeting Report.

Authors:  D Carrieri; C Bewshea; G Walker; T Ahmad; W Bowen; A Hall; S Kelly
Journal:  J Med Ethics       Date:  2016-09-27       Impact factor: 2.903

9.  Beyond individualism: Is there a place for relational autonomy in clinical practice and research?

Authors:  Edward S Dove; Susan E Kelly; Federica Lucivero; Mavis Machirori; Sandi Dheensa; Barbara Prainsack
Journal:  Clin Ethics       Date:  2017-04-13
  9 in total

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