Literature DB >> 22361900

Secondary researchers' duties to return incidental findings and individual research results: a partial-entrustment account.

Henry S Richardson1, Mildred K Cho.   

Abstract

Existing attempts to explain why secondary researchers might have any obligation to return findings to the contributors of genetic samples falter because of the lack of any direct interaction between the secondary researchers and the contributors. The partial-entrustment account of these obligations defended here circumvents this problem by explaining how a chain of special responsibilities can be forged even in the absence of any direct interaction.Genet Med 2012:14(4):467-472.

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Year:  2012        PMID: 22361900     DOI: 10.1038/gim.2012.12

Source DB:  PubMed          Journal:  Genet Med        ISSN: 1098-3600            Impact factor:   8.822


  14 in total

1.  Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.

Authors:  Stephanie A Kraft; Mildred K Cho; Katherine Gillespie; Meghan Halley; Nina Varsava; Kelly E Ormond; Harold S Luft; Benjamin S Wilfond; Sandra Soo-Jin Lee
Journal:  Am J Bioeth       Date:  2018-04       Impact factor: 11.229

2.  Attitudes of non-African American focus group participants toward return of results from exome and whole genome sequencing.

Authors:  Joon-Ho Yu; Julia Crouch; Seema M Jamal; Michael J Bamshad; Holly K Tabor
Journal:  Am J Med Genet A       Date:  2014-05-20       Impact factor: 2.802

3.  Reporting incidental findings in genomic scale clinical sequencing--a clinical laboratory perspective: a report of the Association for Molecular Pathology.

Authors:  Madhuri Hegde; Sherri Bale; Pinar Bayrak-Toydemir; Jane Gibson; Linda Jo Bone Jeng; Loren Joseph; Jordan Laser; Ira M Lubin; Christine E Miller; Lainie F Ross; Paul G Rothberg; Alice K Tanner; Patrik Vitazka; Rong Mao
Journal:  J Mol Diagn       Date:  2015-02-12       Impact factor: 5.568

4.  Think Pragmatically: Investigators' Obligations to Patient-Subjects When Research is Embedded in Care.

Authors:  Stephanie Morain; Emily Largent
Journal:  Am J Bioeth       Date:  2022-04-18       Impact factor: 14.676

Review 5.  Evolving approaches to the ethical management of genomic data.

Authors:  Jean E McEwen; Joy T Boyer; Kathie Y Sun
Journal:  Trends Genet       Date:  2013-02-28       Impact factor: 11.639

6.  Attitudes of African Americans toward return of results from exome and whole genome sequencing.

Authors:  Joon-Ho Yu; Julia Crouch; Seema M Jamal; Holly K Tabor; Michael J Bamshad
Journal:  Am J Med Genet A       Date:  2013-05       Impact factor: 2.802

7.  Ethics and Collateral Findings in Pragmatic Clinical Trials.

Authors:  Stephanie R Morain; Kevin Weinfurt; Juli Bollinger; Gail Geller; Debra Jh Mathews; Jeremy Sugarman
Journal:  Am J Bioeth       Date:  2020-01       Impact factor: 11.229

8.  Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Authors:  Susan M Wolf; Brittney N Crock; Brian Van Ness; Frances Lawrenz; Jeffrey P Kahn; Laura M Beskow; Mildred K Cho; Michael F Christman; Robert C Green; Ralph Hall; Judy Illes; Moira Keane; Bartha M Knoppers; Barbara A Koenig; Isaac S Kohane; Bonnie Leroy; Karen J Maschke; William McGeveran; Pilar Ossorio; Lisa S Parker; Gloria M Petersen; Henry S Richardson; Joan A Scott; Sharon F Terry; Benjamin S Wilfond; Wendy A Wolf
Journal:  Genet Med       Date:  2012-04       Impact factor: 8.822

Review 9.  Ethical, legal, and social implications of incorporating genomic information into electronic health records.

Authors:  Ribhi Hazin; Kyle B Brothers; Bradley A Malin; Barbara A Koenig; Saskia C Sanderson; Mark A Rothstein; Marc S Williams; Ellen W Clayton; Iftikhar J Kullo
Journal:  Genet Med       Date:  2013-09-12       Impact factor: 8.822

10.  Self-guided management of exome and whole-genome sequencing results: changing the results return model.

Authors:  Joon-Ho Yu; Seema M Jamal; Holly K Tabor; Michael J Bamshad
Journal:  Genet Med       Date:  2013-04-25       Impact factor: 8.822

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