Literature DB >> 22331002

Development of patients' decision aid for older women with stage I breast cancer considering radiotherapy after lumpectomy.

Jennifer Wong1, Laura D'Alimonte, Jan Angus, Larry Paszat, Kelly Metcalfe, Tim Whelan, Hilary Llewellyn-Thomas, Eiran Warner, Edmee Franssen, Ewa Szumacher.   

Abstract

PURPOSE: To develop a patient decision aid (PtDA) for older women with Stage I, pathologically node negative, estrogen receptor-positive progesterone receptor-positive breast cancer who are considering adjuvant radiotherapy after lumpectomy and to examine its impact on patients' decision making. METHODS AND MATERIALS: A PtDA was developed and evaluated in three steps according to the Ottawa Decision Support Framework: (1) needs assessment (n = 16); (2) Pilot I to examine PtDA acceptability (n = 12); and (3) Pilot II, a pretest posttest (n = 38) with older women with estrogen receptor-positive progesterone receptor-positive breast cancer after lumpectomy who were receiving adjuvant radiation therapy. Measures included patients' satisfaction with the PtDA, self-reported decisional conflict, level of distress, treatment-related knowledge, and choice predisposition.
RESULTS: The PtDA is a booklet that details each adjuvant treatment option's benefits, risks, and side effects tailored to the patient's clinical profile; includes a values clarification exercise; and includes steps to guide patients towards their decision. On the basis of qualitative comments and satisfaction ratings, all women thought that the PtDA was helpful and informative. In comparison with their baseline scores, patients had a statistically significant (p < 0.05) reduction in decisional conflict (adjusted mean difference [AMD], -7.18; 95% confidence interval [CI], -13.50 to 12.59); increased clarity of the benefits and risks (AMD, -10.86; CI, -20.33 to 21.49); and improved general treatment knowledge (AMD, 8.99; CI, 2.88-10.28) after using the PtDA. General trends were also reported in the patients' choice predisposition scores that suggested potential differences in treatment decision after PtDA use.
CONCLUSIONS: This study provides evidence that this PtDA may be a helpful educational tool for this group of women. The quality of care for older breast cancer patients may be enhanced by the use of a tailored PtDA to help patients be better informed about their treatment options.
Copyright © 2012 Elsevier Inc. All rights reserved.

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Year:  2012        PMID: 22331002     DOI: 10.1016/j.ijrobp.2011.11.028

Source DB:  PubMed          Journal:  Int J Radiat Oncol Biol Phys        ISSN: 0360-3016            Impact factor:   7.038


  8 in total

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Review 4.  Assessing the quality and communicative aspects of patient decision aids for early-stage breast cancer treatment: a systematic review.

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6.  Values clarification in a decision aid about fertility preservation: does it add to information provision?

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7.  Developing a patient decision aid for the treatment of women with early stage breast cancer: the struggle between simplicity and complexity.

Authors:  W Savelberg; T van der Weijden; L Boersma; M Smidt; C Willekens; A Moser
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8.  Risk communication in a patient decision aid for radiotherapy in breast cancer: How to deal with uncertainty?

Authors:  D B Raphael; N S Russell; J M Immink; P G Westhoff; M C Stenfert Kroese; M R Stam; L M van Maurik; H J G D van den Bongard; J H Maduro; M G A Sattler; T van der Weijden; L J Boersma
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  8 in total

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