Literature DB >> 22213752

Child health providers' precautionary discussion of emotions during communication about results of newborn genetic screening.

Michael H Farrell1, Jodi Speiser, Lindsay Deuster, Stephanie Christopher.   

Abstract

OBJECTIVE: To demonstrate a quantitative abstraction method for Communication Quality Assurance projects to assess physicians' communication about hidden emotions after newborn genetic screening.
DESIGN: Communication quality indicator analysis.
SETTING: Standardized parent encounters performed in practicing physicians' clinics or during educational workshops for residents. PARTICIPANTS: Fifty-nine pediatrics residents, 53 pediatricians, and 31 family physicians. INTERVENTION: Participants were asked to counsel standardized parents about a screening result; counseling was recorded, transcribed, and parsed into statements (each with 1 subject and 1 predicate). Pairs of abstractors independently compared statements with a data dictionary containing explicit-criteria definitions. OUTCOME MEASURES: Four groups of "precautionary empathy" behaviors (assessment of emotion, anticipation/validation of emotion, instruction about emotion, and caution about future emotion), with definitions developed for both "definite" and "partial" instances.
RESULTS: Only 38 of 143 transcripts (26.6%) met definite criteria for at least 1 of the precautionary empathy behaviors. When partial criteria were counted, this number increased to 80 of 143 transcripts (55.9%). The most common type of precautionary empathy was the "instruction about emotion" behavior (eg, "don't be worried"), which may sometimes be leading or premature.
CONCLUSIONS: Precautionary empathy behaviors were rare in this analysis. Further study is needed, but this study should raise concerns about the quality of communication services after newborn screening.

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Mesh:

Year:  2012        PMID: 22213752     DOI: 10.1001/archpediatrics.2011.696

Source DB:  PubMed          Journal:  Arch Pediatr Adolesc Med        ISSN: 1072-4710


  9 in total

1.  Improving communication between doctors and parents after newborn screening.

Authors:  Michael H Farrell; Stephanie A Christopher; Audrey Tluczek; Karen Kennedy-Parker; Alison La Pean; Kerry Eskra; Jenelle Collins; Gary Hoffman; Julie Panepinto; Philip M Farrell
Journal:  WMJ       Date:  2011-10

2.  Communicating with parents about newborn screening: the skill of eliciting unspoken emotions.

Authors:  Beth A Tarini
Journal:  Arch Pediatr Adolesc Med       Date:  2012-01

Review 3.  Ethical issues with newborn screening in the genomics era.

Authors:  Beth A Tarini; Aaron J Goldenberg
Journal:  Annu Rev Genomics Hum Genet       Date:  2012-05-01       Impact factor: 8.929

4.  Primary care providers' experiences notifying parents of cystic fibrosis newborn screening results.

Authors:  Caitlin Finan; Samya Z Nasr; Erin Rothwell; Beth A Tarini
Journal:  Clin Pediatr (Phila)       Date:  2014-08-06       Impact factor: 1.168

5.  A method to assess the organizing behaviors used in physicians' counseling of standardized parents after newborn genetic screening.

Authors:  Stephanie A Christopher; Nadia Y Ahmad; Lisa Bradford; Jenelle L Collins; Kerry Eskra; Alison la Pean Kirschner; Faith O O'Tool; Sara J Roedl; Michael H Farrell
Journal:  Commun Med       Date:  2012

6.  Improving the quality of physician communication with rapid-throughput analysis and report cards.

Authors:  Michael H Farrell; Stephanie A Christopher; Alison La Pean Kirschner; Sara J Roedl; Faith O O'Tool; Nadia Y Ahmad; Philip M Farrell
Journal:  Patient Educ Couns       Date:  2014-08-28

7.  Frequency of high-quality communication behaviors used by primary care providers of heterozygous infants after newborn screening.

Authors:  Michael H Farrell; Stephanie A Christopher
Journal:  Patient Educ Couns       Date:  2012-11-26

8.  Benefit of Report Card Feedback After Point-of-Care Assessment of Communication Quality Indicators.

Authors:  Michael H Farrell; Clair R Sprenger; Shelbie L Sullivan; Bree A Trisler; Jessica J F Kram; Erin K Ruppel
Journal:  J Patient Cent Res Rev       Date:  2017-01-31

9.  Knowledge, attitude and practices of obstetric care providers towards maternal red-blood-cell immunization during pregnancy.

Authors:  Yolentha M Slootweg; Chawa Walg; Joke M Koelewijn; Inge L Van Kamp; Masja De Haas
Journal:  Vox Sang       Date:  2019-12-29       Impact factor: 2.144

  9 in total

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