Literature DB >> 22138318

Measuring children's decision-making involvement regarding chronic illness management.

Victoria A Miller1, Diana Harris.   

Abstract

OBJECTIVES: To develop a measure of decision-making involvement in children and adolescents with cystic fibrosis, diabetes, and asthma.
METHODS: Parent-child dyads completed the Decision-Making Involvement Scale (DMIS) and measures of locus of control and family communication. DMIS items were subjected to exploratory and confirmatory factor analysis (CFA). Temporal stability and construct validity were assessed.
RESULTS: The parent form was reduced to 20 items representing five factors. CFA showed that the five factors were an acceptable fit to the parent- and child-report data. Internal consistency values ranged from 0.71 to 0.91. Temporal stability was supported by moderate-substantial intraclass correlation coefficients. DMIS subscales were associated with child age, child locus of control, and family communication.
CONCLUSIONS: The DMIS can be used to inform our understanding of the transition to greater independence for illness management. Additional research is needed to examine outcomes of decision-making involvement, including treatment adherence and responsibility.

Entities:  

Mesh:

Year:  2011        PMID: 22138318      PMCID: PMC3306170          DOI: 10.1093/jpepsy/jsr097

Source DB:  PubMed          Journal:  J Pediatr Psychol        ISSN: 0146-8693


  28 in total

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Review 2.  Do self-report instruments allow meaningful comparisons across diverse population groups? Testing measurement invariance using the confirmatory factor analysis framework.

Authors:  Steven E Gregorich
Journal:  Med Care       Date:  2006-11       Impact factor: 2.983

3.  Parental involvement in diabetes management tasks: relationships to blood glucose monitoring adherence and metabolic control in young adolescents with insulin-dependent diabetes mellitus.

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Journal:  J Pediatr       Date:  1997-02       Impact factor: 4.406

Review 4.  Intraclass correlations: uses in assessing rater reliability.

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Journal:  Psychol Bull       Date:  1979-03       Impact factor: 17.737

5.  Methods for testing data quality, scaling assumptions, and reliability: the IQOLA Project approach. International Quality of Life Assessment.

Authors:  J E Ware; B Gandek
Journal:  J Clin Epidemiol       Date:  1998-11       Impact factor: 6.437

6.  Adolescent decision making: a broadly based theory and its application to the prevention of early pregnancy.

Authors:  C P Gordon
Journal:  Adolescence       Date:  1996

7.  Test-retest reliability of the Multidimensional Anxiety Scale for Children.

Authors:  J S March; K Sullivan
Journal:  J Anxiety Disord       Date:  1999 Jul-Aug

8.  A developmental approach to child assent for nontherapeutic research.

Authors:  Victoria A Miller; Robert M Nelson
Journal:  J Pediatr       Date:  2006-07       Impact factor: 4.406

9.  An office-based intervention to maintain parent-adolescent teamwork in diabetes management. Impact on parent involvement, family conflict, and subsequent glycemic control.

Authors:  B J Anderson; J Brackett; J Ho; L M Laffel
Journal:  Diabetes Care       Date:  1999-05       Impact factor: 19.112

10.  Parent and adolescent versions of the diabetes-specific parental support for adolescents' autonomy scale: development and initial testing.

Authors:  Kathleen M Hanna; Linda A Dimeglio; J Dennis Fortenberry
Journal:  J Pediatr Psychol       Date:  2005-02-23
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  21 in total

1.  Shared decision-making among caregivers and health care providers of youth with type 1 diabetes.

Authors:  Jessica M Valenzuela; Laura B Smith; Jeanette M Stafford; Ralph B D'Agostino; Jean M Lawrence; Joyce P Yi-Frazier; Michael Seid; Lawrence M Dolan
Journal:  J Clin Psychol Med Settings       Date:  2014-09

2.  Testing the Utility of a Bio-Neuropsychosocial Model for Predicting Medical Adherence and Responsibility During Early Adolescence in Youth With Spina Bifida.

Authors:  Alexandra M Psihogios; Caitlin Murray; Kathy Zebracki; Laura Acevedo; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2017-10-01

3.  Children's Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy.

Authors:  Victoria A Miller; Chris Feudtner; Abbas F Jawad
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4.  Adolescent and parent perspectives on medical decision-making for chronic illness.

Authors:  Jennie G David; Mindy S Lo; David A Langer
Journal:  Fam Syst Health       Date:  2017-11-27       Impact factor: 1.950

5.  A multivariate model exploring the predictive value of demographic, adolescent, and family factors on glycemic control in adolescents with type 1 diabetes.

Authors:  Shivani Agarwal; Abbas F Jawad; Victoria A Miller
Journal:  Pediatr Diabetes       Date:  2015-10-21       Impact factor: 4.866

Review 6.  An emerging field of research: challenges in pediatric decision making.

Authors:  Ellen A Lipstein; William B Brinkman; Alexander G Fiks; Kristin S Hendrix; Jennifer Kryworuchko; Victoria A Miller; Lisa A Prosser; Wendy J Ungar; David Fox
Journal:  Med Decis Making       Date:  2014-08-21       Impact factor: 2.583

7.  Putting patient participation into practice in pediatrics-results from a qualitative study in pediatric oncology.

Authors:  Katharina Maria Ruhe; Tenzin Wangmo; Eva De Clercq; Domnita Oana Badarau; Marc Ansari; Thomas Kühne; Felix Niggli; Bernice Simone Elger
Journal:  Eur J Pediatr       Date:  2016-08-01       Impact factor: 3.183

8.  Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study.

Authors:  Melissa K Cousino; Victoria A Miller; Cynthia Smith; Karen Uzark; Ray Lowery; Nichole Rottach; Elizabeth D Blume; Kurt R Schumacher
Journal:  Palliat Med       Date:  2019-10-24       Impact factor: 4.762

9.  Correlates of Problem Resolution during Parent-Child Discussions about Chronic Illness Management.

Authors:  Elizabeth Friedrich; Abbas F Jawad; Victoria A Miller
Journal:  Child Health Care       Date:  2015-09-18

10.  Relationship of youth involvement in diabetes-related decisions to treatment adherence.

Authors:  Victoria A Miller; Abbas F Jawad
Journal:  J Clin Psychol Med Settings       Date:  2014-06
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