Literature DB >> 22104055

ResearchMatch: a national registry to recruit volunteers for clinical research.

Paul A Harris1, Kirstin W Scott, Laurie Lebo, Niknik Hassan, Chad Lightner, Jill Pulley.   

Abstract

The authors designed ResearchMatch, a disease-neutral, Web-based recruitment registry to help match individuals who wish to participate in clinical research studies with researchers actively searching for volunteers throughout the United States. In this article, they describe ResearchMatch's stakeholders, workflow model, technical infrastructure, and, for the registry's first 19 months of operation, utilization metrics. Having launched volunteer registration tools in November 2009 and researcher registration tools in March 2010, ResearchMatch had, as of June 2011, registered 15,871 volunteer participants from all 50 states. The registry was created as a collaborative project for institutions in the Clinical and Translational Science Awards (CTSA) consortium. Also as of June 2011, a total of 751 researchers from 61 participating CTSA institutions had registered to use the tool to recruit participants into 540 active studies and trials. ResearchMatch has proven successful in connecting volunteers with researchers, and the authors are currently evaluating regulatory and workflow options to open access to researchers at non-CTSA institutions.

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Year:  2012        PMID: 22104055      PMCID: PMC3688834          DOI: 10.1097/ACM.0b013e31823ab7d2

Source DB:  PubMed          Journal:  Acad Med        ISSN: 1040-2446            Impact factor:   6.893


  10 in total

Review 1.  Collecting behavioural data using the world wide web: considerations for researchers.

Authors:  S D Rhodes; D A Bowie; K C Hergenrather
Journal:  J Epidemiol Community Health       Date:  2003-01       Impact factor: 3.710

2.  Clinical trials: the challenge of recruitment and retention of participants.

Authors:  Raisa B Gul; Parveen A Ali
Journal:  J Clin Nurs       Date:  2010-01       Impact factor: 3.036

3.  Clinical research subject recruitment: the Volunteer for Vanderbilt Research Program www.volunteer.mc.vanderbilt.edu.

Authors:  Paul A Harris; Lynda Lane; Italo Biaggioni
Journal:  J Am Med Inform Assoc       Date:  2005-07-27       Impact factor: 4.497

4.  Using the Internet to search for cancer clinical trials: a comparative audit of clinical trial search tools.

Authors:  Nancy L Atkinson; Sandra L Saperstein; Holly A Massett; Colleen Ryan Leonard; Lakshmi Grama; Rick Manrow
Journal:  Contemp Clin Trials       Date:  2008-02-07       Impact factor: 2.226

Review 5.  Barriers to recruiting underrepresented populations to cancer clinical trials: a systematic review.

Authors:  Jean G Ford; Mollie W Howerton; Gabriel Y Lai; Tiffany L Gary; Shari Bolen; M Chris Gibbons; Jon Tilburt; Charles Baffi; Teerath Peter Tanpitukpongse; Renee F Wilson; Neil R Powe; Eric B Bass
Journal:  Cancer       Date:  2008-01-15       Impact factor: 6.860

6.  Evaluation of factors affecting awareness of and willingness to participate in cancer clinical trials.

Authors:  Primo N Lara; Debora A Paterniti; Christine Chiechi; Corinne Turrell; Claudia Morain; Nora Horan; Lisa Montell; Jose Gonzalez; Sharon Davis; Ari Umutyan; Cynthia L Martel; David R Gandara; Ted Wun; Laurel A Beckett; Moon S Chen
Journal:  J Clin Oncol       Date:  2005-12-20       Impact factor: 44.544

7.  Patient recruitment: US perspective.

Authors:  P D Walson
Journal:  Pediatrics       Date:  1999-09       Impact factor: 7.124

Review 8.  Methodological issues in online data collection.

Authors:  Mary Ann Cantrell; Paul Lupinacci
Journal:  J Adv Nurs       Date:  2007-12       Impact factor: 3.187

9.  Recruitment of minority and underserved populations in the United States: the Centers for Population Health and Health Disparities experience.

Authors:  Electra D Paskett; Katherine W Reeves; John M McLaughlin; Mira L Katz; Ann Scheck McAlearney; Mack T Ruffin; Chanita Hughes Halbert; Cristina Merete; Faith Davis; Sarah Gehlert
Journal:  Contemp Clin Trials       Date:  2008-07-31       Impact factor: 2.226

10.  Trial publication after registration in ClinicalTrials.Gov: a cross-sectional analysis.

Authors:  Joseph S Ross; Gregory K Mulvey; Elizabeth M Hines; Steven E Nissen; Harlan M Krumholz
Journal:  PLoS Med       Date:  2009-09-08       Impact factor: 11.069

  10 in total
  112 in total

1.  A web-based screening and accrual strategy for a cancer prevention clinical trial in healthy smokers.

Authors:  Arash Mohebati; Allison Knutson; Xi Kathy Zhou; Judith J Smith; Powel H Brown; Andrew J Dannenberg; Eva Szabo
Journal:  Contemp Clin Trials       Date:  2012-07-05       Impact factor: 2.226

2.  Factors associated with urinary incontinence in a community sample of young nulligravid women.

Authors:  Casey G Kowalik; Adam Daily; Sophia D Goodridge; Siobhan M Hartigan; Melissa R Kaufman; Jay H Fowke; Roger R Dmochowski; William S Reynolds
Journal:  Neurourol Urodyn       Date:  2020-04-23       Impact factor: 2.696

3.  The Influence of Decision Aids on Prostate Cancer Screening Preferences: A Randomized Survey Study.

Authors:  Adam B Weiner; Kyle P Tsai; Mary-Kate Keeter; David E Victorson; Edward M Schaeffer; William J Catalona; Shilajit D Kundu
Journal:  J Urol       Date:  2018-05-29       Impact factor: 7.450

4.  Tackling the "so what" problem in scientific research: a systems-based approach to resource and publication tracking.

Authors:  Paul A Harris; Jacqueline Kirby; Jonathan A Swafford; Terri L Edwards; Minhua Zhang; Tonya R Yarbrough; Lynda D Lane; Tara Helmer; Gordon R Bernard; Jill M Pulley
Journal:  Acad Med       Date:  2015-08       Impact factor: 6.893

5.  Attitudes toward Potential Participant Registries.

Authors:  Joshua D Grill; Andrew Holbrook; Aimee Pierce; Dan Hoang; Daniel L Gillen
Journal:  J Alzheimers Dis       Date:  2017       Impact factor: 4.472

Review 6.  Facilitating Alzheimer disease research recruitment.

Authors:  Joshua D Grill; James E Galvin
Journal:  Alzheimer Dis Assoc Disord       Date:  2014 Jan-Mar       Impact factor: 2.703

7.  Toileting Behaviors and Bladder Symptoms in Women Who Limit Restroom Use at Work: A Cross-Sectional Study.

Authors:  W Stuart Reynolds; Casey Kowalik; Sophia D Delpe; Melissa Kaufman; Jay H Fowke; Roger Dmochowski
Journal:  J Urol       Date:  2019-10-09       Impact factor: 7.450

8.  Posttraumatic stress disorder in interstitial cystitis/bladder pain syndrome: Relationship to patient phenotype and clinical practice implications.

Authors:  Lindsey C McKernan; Benjamin N Johnson; William S Reynolds; David A Williams; Jennifer S Cheavens; Roger R Dmochowski; Leslie J Crofford
Journal:  Neurourol Urodyn       Date:  2018-10-23       Impact factor: 2.696

9.  Women's Perceptions of Public Restrooms and the Relationships with Toileting Behaviors and Bladder Symptoms: A Cross-Sectional Study.

Authors:  W Stuart Reynolds; Casey Kowalik; Melissa R Kaufman; Roger R Dmochowski; Jay H Fowke
Journal:  J Urol       Date:  2020-02-25       Impact factor: 7.450

10.  Health research participants' preferences for receiving research results.

Authors:  Christopher R Long; M Kathryn Stewart; Thomas V Cunningham; T Scott Warmack; Pearl A McElfish
Journal:  Clin Trials       Date:  2016-08-24       Impact factor: 2.486

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