Literature DB >> 22048056

Development and pretesting of a decision-aid to use when counseling parents facing imminent extreme premature delivery.

Úrsula Guillén1, Sanghee Suh, David Munson, Michael Posencheg, Elissa Truitt, John A F Zupancic, Amiram Gafni, Haresh Kirpalani.   

Abstract

OBJECTIVE: To develop and pretest a decision-aid to help parents facing extreme premature delivery during antenatal counseling regarding delivery room resuscitation. STUDY
DESIGN: Semistructured interviews with 31 clinicians and with 30 parents of children born <26 weeks' gestation were conducted following standard methods of qualitative research. These characterized perceptions of prenatal counseling to identify information that parents value when making decisions regarding delivery room resuscitation. These parental needs were formatted into a decision-aid. We assessed the primary outcome of how effectively the decision-aid improved knowledge during a simulated counseling session. Two groups of women were studied: parents with a history of prematurity ("experienced") and healthy women without prior knowledge of prematurity ("naïve").
RESULTS: Interviewees thought that visual formats to present survival and short- and long-term outcome information facilitated their own preparation, recall, and understanding. Accordingly, we designed a decision-aid as a set of cards with pictures and pictographs to show survival rates and complications. There was significant improvement in knowledge in 13 "experienced" parents (P = .04) and 11 "naïve" women (P < .0001). Participants found the cards useful and easy to understand.
CONCLUSIONS: A decision-aid for parents facing extreme premature delivery may improve their understanding of complicated information during antenatal counseling. Copyright Â
© 2012 Mosby, Inc. All rights reserved.

Entities:  

Mesh:

Year:  2011        PMID: 22048056     DOI: 10.1016/j.jpeds.2011.08.070

Source DB:  PubMed          Journal:  J Pediatr        ISSN: 0022-3476            Impact factor:   4.406


  24 in total

1.  Smartphone-based prenatal education for parents with preterm birth risk factors.

Authors:  U Olivia Kim; K Barnekow; S I Ahamed; S Dreier; C Jones; M Taylor; Md K Hasan; M A Basir
Journal:  Patient Educ Couns       Date:  2018-10-29

2.  Prenatal (non)treatment decisions in extreme prematurity: evaluation of Decisional Conflict and Regret among parents.

Authors:  R Geurtzen; J Draaisma; R Hermens; H Scheepers; M Woiski; A van Heijst; M Hogeveen
Journal:  J Perinatol       Date:  2017-06-15       Impact factor: 2.521

3.  Counselling and management for anticipated extremely preterm birth.

Authors:  Brigitte Lemyre; Gregory Moore
Journal:  Paediatr Child Health       Date:  2017-08-11       Impact factor: 2.253

4.  Constructing a Culturally Informed Spanish Decision-Aid to Counsel Latino Parents Facing Imminent Extreme Premature Delivery.

Authors:  Matthew J Drago; Ursula Guillén; Maria Schiaratura; Jennifer Batza; Annette Zygmunt; Anja Mowes; David Munson; John M Lorenz; Christiana Farkouh-Karoleski; Haresh Kirpalani
Journal:  Matern Child Health J       Date:  2018-07

5.  Development of a video decision aid to inform parents on potential outcomes of extreme prematurity.

Authors:  Ú Guillén; S Suh; E Wang; V Stickelman; H Kirpalani
Journal:  J Perinatol       Date:  2016-08-18       Impact factor: 2.521

6.  Constructing a relevant decision aid for parents of children with bronchopulmonary dysplasia.

Authors:  M Skibo; U Guillen; H Zhang; D Munson; A Mackley; K Nilan; H Kirpalani
Journal:  J Perinatol       Date:  2017-10-19       Impact factor: 2.521

7.  Identifying design considerations for a shared decision aid for use at the point of outpatient clinical care: An ethnographic study at an inner city clinic.

Authors:  Negin Hajizadeh; Rafael E Perez Figueroa; Lauren M Uhler; Erin Chiou; Jennifer E Perchonok; Enid Montague
Journal:  J Particip Med       Date:  2013-03-06

Review 8.  Short- and Long-Term Outcomes for Extremely Preterm Infants.

Authors:  Ravi Mangal Patel
Journal:  Am J Perinatol       Date:  2016-01-22       Impact factor: 1.862

9.  Antenatal counseling in the gray zone of viability.

Authors:  Allison Osborne; Rebecca Fish; Kristin C Voos
Journal:  J Perinatol       Date:  2020-10-06       Impact factor: 2.521

10.  Oral antibiotics at discharge for children with acute osteomyelitis: a rapid cycle improvement project.

Authors:  Patrick W Brady; William B Brinkman; Jeffrey M Simmons; Connie Yau; Christine M White; Eric S Kirkendall; Joshua K Schaffzin; Patrick H Conway; Michael T Vossmeyer
Journal:  BMJ Qual Saf       Date:  2013-12-17       Impact factor: 7.035

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