Literature DB >> 22025770

Identifying the long-term needs of stroke survivors using the International Classification of Functioning, Disability and Health.

Kethakie Sumathipala1, Eloise Radcliffe, Euan Sadler, Charles D A Wolfe, Christopher McKevitt.   

Abstract

OBJECTIVES: To investigate how contextual factors, as described by the World Health Organisation's International Classification of Functioning, Disability and Health (ICF), impact on stroke survivors' functioning and how needs are perceived in the long term after stroke.
METHODS: Semi-structured interviews were conducted with 35 participants between 1 and 11 years after stroke. Data were analysed thematically using the ICF conceptual framework.
RESULTS: Long-term needs related to activities of daily living, social participation, mobility aids, home adaptations, housing, financial support, rehabilitation, information and transport. Participants identified a range of ICF environmental and personal factors including 'support and relationships,' 'products and technology,' 'services, systems and policies,' 'attitudes,' life experiences, social position and personal attitudes. Interactions between these contextual factors shaped functioning and how long-term needs were perceived. Social support from family and friends was a key facilitator of functioning for most participants, buffering the impact of disabilities and mediating perceived needs. Needs were not always stroke specific as many participants experienced other health problems. DISCUSSION: The ICF framework was useful to investigate how contextual factors shaped functioning and mediated perceived long-term needs. Development of services to meet long-term needs among stroke survivors should consider the range of environmental and personal factors affecting how needs are perceived.

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Year:  2011        PMID: 22025770     DOI: 10.1177/1742395311423848

Source DB:  PubMed          Journal:  Chronic Illn        ISSN: 1742-3953


  17 in total

1.  Clinical Implications of Family-Centered Care in Stroke Rehabilitation.

Authors:  Kerry Rae Creasy; Barbara J Lutz; Mary Ellen Young; Jeanne-Marie R Stacciarini
Journal:  Rehabil Nurs       Date:  2015-02-03       Impact factor: 1.625

2.  Needs of Persons with Neurological Disorders.

Authors:  E Sinu; B P Nirmala; Krishna Reddy; Priya Thomas
Journal:  Indian J Psychiatr Soc Work       Date:  2018-01

3.  An extended stroke rehabilitation service for people who have had a stroke: the EXTRAS RCT.

Authors:  Lisa Shaw; Nawaraj Bhattarai; Robin Cant; Avril Drummond; Gary A Ford; Anne Forster; Richard Francis; Katie Hills; Denise Howel; Anne Marie Laverty; Christopher McKevitt; Peter McMeekin; Christopher Price; Elaine Stamp; Eleanor Stevens; Luke Vale; Helen Rodgers
Journal:  Health Technol Assess       Date:  2020-05       Impact factor: 4.014

4.  The impact of interactions with providers on stroke caregivers' needs.

Authors:  Kerry Rae Creasy; Barbara J Lutz; Mary Ellen Young; Ariel Ford; Crystal Martz
Journal:  Rehabil Nurs       Date:  2013 Mar-Apr       Impact factor: 1.625

5.  Is health-related quality of life between 90 and 180 days following stroke associated with long-term unmet needs?

Authors:  N E Andrew; M F Kilkenny; N A Lannin; D A Cadilhac
Journal:  Qual Life Res       Date:  2016-02-04       Impact factor: 4.147

Review 6.  Uncovering treatment burden as a key concept for stroke care: a systematic review of qualitative research.

Authors:  Katie Gallacher; Deborah Morrison; Bhautesh Jani; Sara Macdonald; Carl R May; Victor M Montori; Patricia J Erwin; G David Batty; David T Eton; Peter Langhorne; Frances S Mair
Journal:  PLoS Med       Date:  2013-06-25       Impact factor: 11.069

7.  What aspects of rehabilitation provision contribute to self-reported met needs for rehabilitation one year after stroke--amount, place, operator or timing?

Authors:  Malin Tistad; Lena von Koch; Christina Sjöstrand; Kerstin Tham; Charlotte Ytterberg
Journal:  Health Expect       Date:  2013-06-25       Impact factor: 3.377

Review 8.  The use of the international classification of functioning, disability and health (ICF) in indigenous healthcare: a systematic literature review.

Authors:  Vanessa M Alford; Louisa J Remedios; Gillian R Webb; Shaun Ewen
Journal:  Int J Equity Health       Date:  2013-05-16

9.  The relationship between caregiver impacts and the unmet needs of survivors of stroke.

Authors:  Nadine E Andrew; Monique F Kilkenny; Rebecca Naylor; Tara Purvis; Dominique A Cadilhac
Journal:  Patient Prefer Adherence       Date:  2015-07-27       Impact factor: 2.711

10.  The Importance of Patient Involvement in Stroke Rehabilitation.

Authors:  Hanne Kaae Kristensen; Malin Tistad; Lena von Koch; Charlotte Ytterberg
Journal:  PLoS One       Date:  2016-06-10       Impact factor: 3.240

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