Literature DB >> 22002118

Privacy-solidarity conflict: the communication with the support group.

C Y Finocchiaro1, A Botturi, E Lamperti, S Gauri, A Petruzzi, G Simonetti, L Sarno, A Salmaggi.   

Abstract

Actually guidelines require that patient must be informed about his condition so that he can choose the persons he wants to share these information with. Nonetheless, the caregiver usually gets an intermediary role in doctor-patient communication thus becoming the doctor's main conversation partner and claiming to be given more information than the patient himself. A more complex situation is about brain tumours patients sometimes affected by cognitive deficiencies, compromising their comprehension skills or their capability of keeping the information they are being given. A preliminary study allowed to submit separately to brain tumour patients and their family members a semi-structured interview. Although doctors communicate diagnosis and therapeutic plans, patients and their family members often do not seem to remember the information they are given. An important percentage of patients and their carers cannot tell correctly what they was said by the doctors. Only a minor percentage of patients do not want to know all details of their disease. Instead, most of the family members, would rather their beloved were given just partial information on their conditions or even not given information at all. Communication with patients and their carers requires careful re-negotiation in a multiple time-points, rather than a one-off communication episode.

Entities:  

Mesh:

Year:  2011        PMID: 22002118     DOI: 10.1007/s10072-011-0792-0

Source DB:  PubMed          Journal:  Neurol Sci        ISSN: 1590-1874            Impact factor:   3.307


  10 in total

Review 1.  Family members of patients with cancer: what they know, how they know and what they want to know.

Authors:  Bridie McCarthy
Journal:  Eur J Oncol Nurs       Date:  2010-11-19       Impact factor: 2.398

2.  Evaluation and ethical review of a tool to explore patient preferences for information and involvement in decision making.

Authors:  F E M Murtagh; A Thorns
Journal:  J Med Ethics       Date:  2006-06       Impact factor: 2.903

3.  The need to know: informal carers and information.

Authors:  S M Morris; C Thomas
Journal:  Eur J Cancer Care (Engl)       Date:  2002-09       Impact factor: 2.520

4.  Family perspectives on communication with healthcare providers during end-of-life cancer care.

Authors:  Renee Royak-Schaler; Shahinaz Gadalla; Jeanne Lemkau; Douglas Ross; Carla Alexander; Deborah Scott
Journal:  Oncol Nurs Forum       Date:  2006-07-01       Impact factor: 2.172

5.  Patient and caregiver perceptions of communication of prognosis in high grade glioma.

Authors:  E A Lobb; G K B Halkett; A K Nowak
Journal:  J Neurooncol       Date:  2010-12-14       Impact factor: 4.130

6.  Misunderstanding in cancer patients: why shoot the messenger?

Authors:  M Gattellari; P N Butow; M H Tattersall; S M Dunn; C A MacLeod
Journal:  Ann Oncol       Date:  1999-01       Impact factor: 32.976

Review 7.  The psychological impact of cancer on patients' partners and other key relatives: a review.

Authors:  C Pitceathly; P Maguire
Journal:  Eur J Cancer       Date:  2003-07       Impact factor: 9.162

8.  Truth may hurt but deceit hurts more: communication in palliative care.

Authors:  L J Fallowfield; V A Jenkins; H A Beveridge
Journal:  Palliat Med       Date:  2002-07       Impact factor: 4.762

9.  General information tapes inhibit recall of the cancer consultation.

Authors:  S M Dunn; P N Butow; M H Tattersall; Q J Jones; J S Sheldon; J J Taylor; M D Sumich
Journal:  J Clin Oncol       Date:  1993-11       Impact factor: 44.544

Review 10.  Sustaining hope when communicating with terminally ill patients and their families: a systematic review.

Authors:  Josephine M Clayton; Karen Hancock; Sharon Parker; Phyllis N Butow; Sharon Walder; Sue Carrick; David Currow; Davina Ghersi; Paul Glare; Rebecca Hagerty; Ian N Olver; Martin H N Tattersall
Journal:  Psychooncology       Date:  2008-07       Impact factor: 3.894

  10 in total
  1 in total

Review 1.  Neuro-oncology family caregiving: review and directions for future research.

Authors:  Paula R Sherwood; Maureen Cwiklik; Heidi S Donovan
Journal:  CNS Oncol       Date:  2015-12-17
  1 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.