Literature DB >> 21094087

Family members of patients with cancer: what they know, how they know and what they want to know.

Bridie McCarthy1.   

Abstract

BACKGROUND: Recent changes in healthcare management generally and in cancer care in particular, indicate a major shift in the clinical management of cancer from hospitals and healthcare professionals (HCPs) to patients and families. In light of these changes national and international policies and reports by the Department of Health and Children (2001, 2006) and the World Health Organisation (2004) have recommended that HCPs support family members (FMs) to care for loved ones. The purpose of this review therefore was to explore the extent to which FMs' needs are realised by HCPs in practice.
OBJECTIVES: To examine recent research (2000-2010) in relation to; the type of information that FMs of patients with cancer generally seek, how they seek this information from HCPs, and, FMs' experiences of communicating with HCPs in this context.
METHODS: A review of the literature was conducted using key databases Medline, Pub med, Psych-Info and CINAHL.
RESULTS: Thirty four papers were included in the review. Overall the studies demonstrated that FMs of patients with cancer have similar information needs and demonstrate similar strategies for seeking information. While many FMs report positive communication experiences with HCPs and have information needs met, the majority of FMs report negative communication encounters with HCPs.
CONCLUSION: HCPs are highly significant in the lives of FMs of patients with cancer. The review concludes with identifying; FMs most wanted information needs, their struggles with accessing HCPs and the type of communication encounters FMs most desire to have with HCPs. Recommendations for education, practice and research are addressed. Copyright Â
© 2010 Elsevier Ltd. All rights reserved.

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Year:  2010        PMID: 21094087     DOI: 10.1016/j.ejon.2010.10.009

Source DB:  PubMed          Journal:  Eur J Oncol Nurs        ISSN: 1462-3889            Impact factor:   2.398


  18 in total

1.  Privacy-solidarity conflict: the communication with the support group.

Authors:  C Y Finocchiaro; A Botturi; E Lamperti; S Gauri; A Petruzzi; G Simonetti; L Sarno; A Salmaggi
Journal:  Neurol Sci       Date:  2011-11       Impact factor: 3.307

2.  Influences of patient sociodemographics on cancer information received through the first 9 months of treatment.

Authors:  Anthony Molisani; Levent Dumenci; Robin K Matsuyama
Journal:  J Cancer Educ       Date:  2014-03       Impact factor: 2.037

3.  No man's land: information needs and resources of men with metastatic castrate resistant prostate cancer.

Authors:  V A Jenkins; L J Fallowfield
Journal:  Support Care Cancer       Date:  2016-07-28       Impact factor: 3.603

4.  Enhancing the experience of carers in the chemotherapy outpatient setting: an exploratory randomised controlled trial to test impact, acceptability and feasibility of a complex intervention co-designed by carers and staff.

Authors:  V Tsianakas; G Robert; A Richardson; R Verity; C Oakley; T Murrells; M Flynn; E Ream
Journal:  Support Care Cancer       Date:  2015-03-06       Impact factor: 3.603

5.  The relationship between partner information-seeking, information-sharing, and patient medication adherence.

Authors:  Delesha M Carpenter; Emily A Elstad; Adam J Sage; Lorie L Geryk; Robert F DeVellis; Susan J Blalock
Journal:  Patient Educ Couns       Date:  2014-10-23

6.  Family caregivers for adult cancer patients: knowledge and self-efficacy for pain management in a resource-limited setting.

Authors:  Irene Betty Kizza; Jeanette Maritz
Journal:  Support Care Cancer       Date:  2018-10-16       Impact factor: 3.603

7.  Promoting improved family caregiver health literacy: evaluation of caregiver communication resources.

Authors:  Elaine Wittenberg; Joy Goldsmith; Betty Ferrell; Sandra L Ragan
Journal:  Psychooncology       Date:  2016-03-16       Impact factor: 3.894

Review 8.  Informal caregiving for cancer patients.

Authors:  Francesca Romito; Gil Goldzweig; Claudia Cormio; Mariët Hagedoorn; Barbara L Andersen
Journal:  Cancer       Date:  2013-06-01       Impact factor: 6.860

9.  COMFORT™SM communication for oncology nurses: Program overview and preliminary evaluation of a nationwide train-the-trainer course.

Authors:  Elaine Wittenberg; Betty Ferrell; Joy Goldsmith; Sandra L Ragan; Haley Buller
Journal:  Patient Educ Couns       Date:  2017-09-22

10.  Communication among cancer patients, caregivers, and hospice nurses: Content, process and change over time.

Authors:  Lee Ellington; Margaret F Clayton; Maija Reblin; Gary Donaldson; Seth Latimer
Journal:  Patient Educ Couns       Date:  2017-09-22
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