Literature DB >> 21949138

Parent-provider-community partnerships: optimizing outcomes for children with disabilities.

Nancy A Murphy, Paul S Carbone.   

Abstract

Children with disabilities and their families have multifaceted medical, developmental, educational, and habilitative needs that are best addressed through strong partnerships among parents, providers, and communities. However, traditional health care systems are designed to address acute rather than chronic conditions. Children with disabilities require high-quality medical homes that provide care coordination and transitional care, and their families require social and financial supports. Integrated community systems of care that promote participation of all children are needed. The purpose of this clinical report is to explore the challenges of developing effective community-based systems of care and to offer suggestions to pediatricians and policy-makers regarding the development of partnerships among children with disabilities, their families, and health care and other providers to maximize health and well-being of these children and their families.

Entities:  

Mesh:

Year:  2011        PMID: 21949138     DOI: 10.1542/peds.2011-1467

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  14 in total

Review 1.  Parent Training in Autism Spectrum Disorder: What's in a Name?

Authors:  Karen Bearss; T Lindsey Burrell; Lindsay Stewart; Lawrence Scahill
Journal:  Clin Child Fam Psychol Rev       Date:  2015-06

2.  Parental Perceptions of Family Centered Care in Medical Homes of Children with Neurodevelopmental Disabilities.

Authors:  Michaela L Zajicek-Farber; Gaetano R Lotrecchiano; Toby M Long; Jon Matthew Farber
Journal:  Matern Child Health J       Date:  2015-08

3.  Parent and pediatrician perspectives regarding the primary care of children with autism spectrum disorders.

Authors:  Paul S Carbone; Nancy A Murphy; Chuck Norlin; Virgina Azor; Xiaoming Sheng; Paul C Young
Journal:  J Autism Dev Disord       Date:  2013-04

4.  Healthcare Coordination and Transition for Individuals with Genetic Conditions.

Authors:  Sharon Romelczyk; Sharon Homan; Joseph Telfair; Gaurav Dave; Alisha Keehn; Deborah Maiese
Journal:  Matern Child Health J       Date:  2015-10

5.  Engaging Caregivers in the Treatment of Youth with Complex Developmental and Mental Health Needs.

Authors:  Ahrang Yoo; Monique Kim; Melissa M Ross; Angela Vaughn-Lee; Beverly Butler; Susan dosReis
Journal:  J Behav Health Serv Res       Date:  2018-07       Impact factor: 1.505

6.  Care needs of children with disabilities - Use of the Pediatric Evaluation of Disability Inventory.

Authors:  Fernanda Moreira Teles; Rosa Resegue; Rosana Fiorini Puccini
Journal:  Rev Paul Pediatr       Date:  2016-03-28

7.  Parent-reported outcomes of comprehensive care for children with medical complexity.

Authors:  Dennis Z Kuo; James M Robbins; Robert E Lyle; Kathleen W Barrett; Katherine H Burns; Patrick H Casey
Journal:  Fam Syst Health       Date:  2013-06       Impact factor: 1.950

8.  The relationship between the medical home and unmet needs for children with autism spectrum disorders.

Authors:  Janet E Farmer; Mary J Clark; Wayne A Mayfield; Nancy Cheak-Zamora; Alison R Marvin; J Kiely Law; Paul A Law
Journal:  Matern Child Health J       Date:  2014-04

9.  Ambulatory Care Use among Patients with Spina Bifida: Change in Care from Childhood to Adulthood.

Authors:  Courtney L Shepard; Ella J Doerge; Adam B Eickmeyer; Kate H Kraft; Julian Wan; John T Stoffel
Journal:  J Urol       Date:  2017-11-04       Impact factor: 7.450

10.  Medical complexity and pediatric emergency department and inpatient utilization.

Authors:  Lila O'Mahony; D Shane O'Mahony; Tamara D Simon; John Neff; Eileen J Klein; Linda Quan
Journal:  Pediatrics       Date:  2013-01-14       Impact factor: 7.124

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