Literature DB >> 22948548

Parent and pediatrician perspectives regarding the primary care of children with autism spectrum disorders.

Paul S Carbone1, Nancy A Murphy, Chuck Norlin, Virgina Azor, Xiaoming Sheng, Paul C Young.   

Abstract

Parents of children with autism spectrum disorders (ASD) (n = 144) and primary care providers (PCPs) (n = 144) completed similar surveys assessing the ability of the PCP to address ASD-specific needs. Parents also rated their PCP's ability to deliver family-centered care. A majority of parents rated their PCP's ability as "not good" in addressing 14 of 17 ASD-specific needs, while a majority of PCPs rated themselves as "good" in addressing 10 of 17 areas. On 7 of 17 items, parents rated their PCPs lower than PCPs rated themselves. Parents who reported receiving family-centered care were more likely to rate the PCP's ability to meet ASD specific needs as "good". Both parents and PCPs identified areas for improvement in caring for children with ASD.

Entities:  

Mesh:

Year:  2013        PMID: 22948548     DOI: 10.1007/s10803-012-1640-7

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  43 in total

Review 1.  Sensory integration therapies for children with developmental and behavioral disorders.

Authors:  Michelle Zimmer; Larry Desch
Journal:  Pediatrics       Date:  2012-05-28       Impact factor: 7.124

Review 2.  Complementary and alternative medicine in autism: an evidence-based approach to negotiating safe and efficacious interventions with families.

Authors:  R Scott Akins; Kathy Angkustsiri; Robin L Hansen
Journal:  Neurotherapeutics       Date:  2010-07       Impact factor: 7.620

3.  Use of complementary and alternative medicine among children diagnosed with autism spectrum disorder.

Authors:  Ellen Hanson; Leslie A Kalish; Emily Bunce; Christine Curtis; Samuel McDaniel; Janice Ware; Judith Petry
Journal:  J Autism Dev Disord       Date:  2007-04

4.  The medical home for children with autism spectrum disorders: parent and pediatrician perspectives.

Authors:  Paul S Carbone; Diane D Behl; Virgina Azor; Nancy A Murphy
Journal:  J Autism Dev Disord       Date:  2009-09-19

5.  Comorbid psychiatric disorders in children with autism: interview development and rates of disorders.

Authors:  Ovsanna T Leyfer; Susan E Folstein; Susan Bacalman; Naomi O Davis; Elena Dinh; Jubel Morgan; Helen Tager-Flusberg; Janet E Lainhart
Journal:  J Autism Dev Disord       Date:  2006-10

6.  Detecting, studying, and treating autism early: the one-year well-baby check-up approach.

Authors:  Karen Pierce; Cindy Carter; Melanie Weinfeld; Jamie Desmond; Roxana Hazin; Robert Bjork; Nicole Gallagher
Journal:  J Pediatr       Date:  2011-04-27       Impact factor: 4.406

7.  A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006.

Authors:  Michael D Kogan; Bonnie B Strickland; Stephen J Blumberg; Gopal K Singh; James M Perrin; Peter C van Dyck
Journal:  Pediatrics       Date:  2008-12       Impact factor: 7.124

8.  Care coordination for children and youth with special health care needs: a descriptive, multisite study of activities, personnel costs, and outcomes.

Authors:  Richard C Antonelli; Christopher J Stille; Donna M Antonelli
Journal:  Pediatrics       Date:  2008-07       Impact factor: 7.124

Review 9.  Management of children with autism spectrum disorders.

Authors:  Scott M Myers; Chris Plauché Johnson
Journal:  Pediatrics       Date:  2007-10-29       Impact factor: 7.124

Review 10.  Vaccines and autism: a tale of shifting hypotheses.

Authors:  Jeffrey S Gerber; Paul A Offit
Journal:  Clin Infect Dis       Date:  2009-02-15       Impact factor: 9.079

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  12 in total

1.  Timeliness of Autism Spectrum Disorder Diagnosis and Use of Services Among U.S. Elementary School-Aged Children.

Authors:  Katharine Zuckerman; Olivia Jasmine Lindly; Alison Elizabeth Chavez
Journal:  Psychiatr Serv       Date:  2016-08-01       Impact factor: 3.084

2.  Early Intervention Providers' Perspectives About Working with Families of Toddlers with Suspected ASD: A Qualitative Study.

Authors:  Wendy L Stone; Lisa V Ibanez; Pascale Carpentier; Elyanah Posner; Alice Bravo; Lindsay Frederick; Jill Locke
Journal:  J Autism Dev Disord       Date:  2021-03

3.  Expanding the Capacity of Primary Care to Treat Co-morbidities in Children with Autism Spectrum Disorder.

Authors:  Jeanne Van Cleave; Chloe Holifield; Ann M Neumeyer; James M Perrin; Erin Powers; Linda Van; Karen A Kuhlthau
Journal:  J Autism Dev Disord       Date:  2018-12

Review 4.  Healthcare Providers' Experiences with Autism: A Scoping Review.

Authors:  Rae Morris; Andrea Greenblatt; Michael Saini
Journal:  J Autism Dev Disord       Date:  2019-06

5.  Effectiveness of the Extension for Community Health Outcomes Model as Applied to Primary Care for Autism: A Partial Stepped-Wedge Randomized Clinical Trial.

Authors:  Micah O Mazurek; Robert A Parker; James Chan; Karen Kuhlthau; Kristin Sohl
Journal:  JAMA Pediatr       Date:  2020-05-04       Impact factor: 16.193

6.  Comparison of maternal beliefs about causes of autism spectrum disorder and association with utilization of services and treatments.

Authors:  Virginia Chaidez; Erik Fernandez Y Garcia; Lulu W Wang; Kathleen Angkustsiri; Paula Krakowiak; Irva Hertz-Picciotto; Robin L Hansen
Journal:  Child Care Health Dev       Date:  2018-08-22       Impact factor: 2.943

7.  Promoting early autism detection and intervention in underserved communities: study protocol for a pragmatic trial using a stepped-wedge design.

Authors:  Lisa V Ibañez; Ann Vander Stoep; Kathleen Myers; Chuan Zhou; Shannon Dorsey; Kyle J Steinman; Wendy L Stone
Journal:  BMC Psychiatry       Date:  2019-06-07       Impact factor: 3.630

Review 8.  Medical Encounters for Youth With Autism Spectrum Disorder: A Comprehensive Review of Environmental Considerations and Interventions.

Authors:  Jolie Straus; Sarah Coburn; Stephanie Maskell; Jessica Pappagianopoulos; Kathryn Cantrell
Journal:  Clin Med Insights Pediatr       Date:  2019-04-29

9.  The Patient-Centered Medical Home: Mental Health and Parenting Stress in Mothers of Children With Autism.

Authors:  Christine A Limbers; Abbi Gutierrez; L Adelyn Cohen
Journal:  J Prim Care Community Health       Date:  2020 Jan-Dec

10.  Improving autism and developmental screening and referral in US primary care practices serving Latinos.

Authors:  Katharine E Zuckerman; Alison E Chavez; Laura Wilson; Katie Unger; Colleen Reuland; Katrina Ramsey; Margaret King; Julie Scholz; Eric Fombonne
Journal:  Autism       Date:  2020-09-14
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