Literature DB >> 29113842

Ambulatory Care Use among Patients with Spina Bifida: Change in Care from Childhood to Adulthood.

Courtney L Shepard1, Ella J Doerge2, Adam B Eickmeyer3, Kate H Kraft3, Julian Wan3, John T Stoffel4.   

Abstract

PURPOSE: We examined the ambulatory health care visit use of children with spina bifida, adults who transitioned to adult care and adults who continued to seek care in a pediatric setting.
MATERIALS AND METHODS: We evaluated use during a 1-year period of patients with spina bifida who visited any outpatient medical clinic within an integrated health care system. Patients were categorized as pediatric (younger than 18 years) or adult (age 18 or older). Adults were divided into those who did not fully transition to adult care and patients who fully transitioned (adult). Frequency and type of health care use were compared. Subanalysis was performed for patients 18 to 25 years old to examine variables associated with successful complete transition to adult care.
RESULTS: During 1 year 382 children, 88 patients who did not transition and 293 adult patients with spina bifida had 4,931 clinic visits. Children had greater ambulatory care use (7.25 visits per year) compared to fully transitioned adults (5.33 visits per year, p=0.046). Children more commonly visited surgical clinics (52.3% of visits) and adults more commonly visited medical clinics (48.9%) (p <0.005). Adult transitioned patients were more likely to be female (p=0.004). Of the patients 18 to 25 years old, those who did not transition to adult care had similar outpatient visit types but greater use of inpatient and emergency care than those who transitioned.
CONCLUSIONS: Children with spina bifida used more ambulatory care than adults and were more likely to visit a surgical specialist. Adult patients with spina bifida who successfully transitioned to adult care were more likely to be female, and patients who failed to transition were more likely to receive more inpatient and emergency care.
Copyright © 2018 American Urological Association Education and Research, Inc. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  ambulatory care; meningomyelocele; spinal dysraphism; transitional care

Mesh:

Year:  2017        PMID: 29113842      PMCID: PMC5897162          DOI: 10.1016/j.juro.2017.10.040

Source DB:  PubMed          Journal:  J Urol        ISSN: 0022-5347            Impact factor:   7.450


  20 in total

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Authors: 
Journal:  Pediatrics       Date:  2002-12       Impact factor: 7.124

2.  Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine.

Authors:  David S Rosen; Robert W Blum; Maria Britto; Susan M Sawyer; David M Siegel
Journal:  J Adolesc Health       Date:  2003-10       Impact factor: 5.012

3.  Life course health and healthcare utilization among adults with spina bifida.

Authors:  Gregory S Liptak; Laura M Robinson; Philip W Davidson; Adam Dziorny; Rebecca Lavalley; Mary Grace Flaherty; Nienke P Dosa
Journal:  Dev Med Child Neurol       Date:  2015-11-02       Impact factor: 5.449

4.  What do we know about men's help-seeking and health service use?

Authors:  James A Smith; Annette Braunack-Mayer; Gary Wittert
Journal:  Med J Aust       Date:  2006-01-16       Impact factor: 7.738

5.  Barriers to transition in young adults with neurogenic bladder.

Authors:  G M Grimsby; R Burgess; S Culver; B J Schlomer; M A Jacobs
Journal:  J Pediatr Urol       Date:  2016-05-13       Impact factor: 1.830

6.  Parent-provider-community partnerships: optimizing outcomes for children with disabilities.

Authors:  Nancy A Murphy; Paul S Carbone
Journal:  Pediatrics       Date:  2011-09-26       Impact factor: 7.124

7.  Residency training in transition of youth with childhood-onset chronic disease.

Authors:  Manisha S Patel; Kitty O'Hare
Journal:  Pediatrics       Date:  2010-12       Impact factor: 7.124

8.  The cost of preventable conditions in adults with spina bifida.

Authors:  S L Kinsman; M C Doehring
Journal:  Eur J Pediatr Surg       Date:  1996-12       Impact factor: 2.191

9.  Inpatient and emergency room visits for adolescents and young adults with spina bifida living in South Carolina.

Authors:  Joshua R Mann; Julie A Royer; Margaret A Turk; Suzanne McDermott; Margaret M Holland; Orgul D Ozturk; James W Hardin; Judy K Thibadeau
Journal:  PM R       Date:  2014-12-12       Impact factor: 2.298

10.  A snapshot of the adult spina bifida patient - high incidence of urologic procedures.

Authors:  Joceline S Liu; Alyssa Greiman; Jessica T Casey; Shubhra Mukherjee; Stephanie J Kielb
Journal:  Cent European J Urol       Date:  2016-01-28
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  5 in total

1.  Priorities and Outcomes for Youth-Adult Transitions in Hospital Care: Perspectives of Inpatient Clinical Leaders at US Children's Hospitals.

Authors:  Ryan J Coller; Sarah Ahrens; Mary L Ehlenbach; Kristin A Shadman; Mala Mathur; Kristin Caldera; Paul J Chung; Andrew LaRocque; Heather Peto; Kole Binger; Windy Smith; Ann Sheehy
Journal:  Hosp Pediatr       Date:  2020-08-05

2.  A Provider-Facing eHealth Tool for Transitioning Youth With Special Health Care Needs From Pediatric to Adult Care: Mixed Methods, User-Engaged Usability Study.

Authors:  Darcy Jones McMaughan; Sherry Lin; Jennifer Ozmetin; Judith Gayle Beverly; Joshua Brog; Emily Naiser
Journal:  JMIR Form Res       Date:  2021-05-25

3.  A Patient Navigator Intervention Supporting Timely Transfer Care of Adolescent and Young Adults of Hispanic Descents Attending an Urban Primary Care Pediatrics Clinic.

Authors:  Sophie Allende-Richter; Patricia Glidden; Mariam Maloyan; Zana Khoury; Melanie Ramirez; Kitty O'Hare
Journal:  Pediatr Qual Saf       Date:  2021-03-10

4.  Variability in Kidney Function Estimates in Emerging Adults With Spina Bifida: Implications for Transitioning From Pediatric to Adult Care.

Authors:  Diana K Bowen; Lauren C Balmert; Theresa Meyer; Ilina Rosoklija; Kavita S Hodgkins; Cybele Ghossein; Earl Y Cheng; Elizabeth B Yerkes; Tamara Isakova; David I Chu
Journal:  Urology       Date:  2020-11-24       Impact factor: 2.649

5.  Assessment of: self-management skills towards transition readiness and patient portal use among Hispanic adolescent and young adult patients.

Authors:  Sophie Allende-Richter; Melanie Ramirez; Zana Khoury; Fabienne Bourgeois; Alexandra Epee-Bounya; Kitty O'Hare
Journal:  BMJ Paediatr Open       Date:  2020-04-26
  5 in total

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